I have severe burning of my scalp, neck spine and abdomen. I know this is called neuropathy but where is it coming from? Is the Lyme in these areas and inflaming the nerves? Is it neurotoxins if there is such a thing? Is it Bartonella or Babesia. Every time I take antibiotics, escpecially I.V. ones the burning gets so bad it feels like I have third degree burns in these areas. Nothing helps these symptoms. I tried B-12 shots but it got worse. I know it can't be the antibiotics because the burning is only in certain areas that hurt me before. Please help-it's making me insane!
Posted by Laurie (Member # 159) on :
Inflammation of the many, many various nervous systems of the body is a hallmark of neurological Lyme. I know it's driving you crazy because I have burning neuropathic pain in my calves and feet, controlled symptomatically by Neurontin and Elavil.
Posted by timaca (Member # 6911) on :
amkdiaries~
I have no advice as to how to relieve your pain. I can only tell you that I am in the same boat.
I have burning, sparking, creeping, crawling nerves all over my body. It was one of my first lyme symptoms, and got much worse after one dose of IV vancomycin during my knee surgery. I had no idea what was going on at the time, but now know that it was probably a herx.
I am hoping that in time, and with treatment, it will go away. I am considering trying some of the supplements that Dr. B recommends in his guidelines for nerve pain.
Posted by bpeck (Member # 3235) on :
If it's pain from neuropathy ask your Doc. to try hydroxyzine. That's the parent formulation of an over the counter H2 blocker called Clariton.. but clariton doesn't cross the BBB the way Hydroxyzine does.
Barb
Posted by SForsgren (Member # 7686) on :
I also get significant increase in my burning sensations when I change ABX. Just happened again for about 5 days last week when I changed to Levaquin.
Posted by Rubicon (Member # 7919) on :
I feel your pain!! I had all of the same feelings of burning and stabbing, which increases upon switching meds. The pain is mostly in hands, feet, back. In fact, the pain was so bad the past few days, i ask my LLMD to switch my meds.
Had lyme since 1993 and this is my 2nd relapse. I never had neuro symptoms the frist 2 times. Why is this happening this time? Any one know??
Posted by painted turtle (Member # 7801) on :
Robicon I don't know why this is happening are you sure you don't have coinfection??? It sounds like maybe your treatment was not effective if it continued to progress in neuro, but I am sure I don't know. I am learning.
YES! I can relate to the severe burning in my spine...the last 3 days my leg felt like it was gonna fall off it hurt so bad. And numbness in my face ear chin spine everywhere. Not sure what all that amounts to except a lot of pain and I am still only on the oral treatments until I first rule out that babesia nuissance thing.
I noticed something interesting though during this last neuro herx. It starts from my mid spine and burns like crazy in pain not wanting to be touched then it radiates down all the way through my left leg. Then one day after two days of that, my leg started to get better but it moved into my neck and head which got swollen and a migraine was coming on. I took a zomig. Even though it made my heart skip beats, then the next day...not in head anymore! BUT back down to leg. Sneaky little critters. It is interesting to document.
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