I've been on IV claforan for 10 days. I have no energy at all and in the last day I have had this funny feeling in my brain, like it is floating. It just lasts a second or two, but I feel kind of dizzy.
Has anybody experienced this?
Does claforan cross the blood brain barrier?
How does an IV herx differ from oral's if one can generalize.
What other herxheimer rxns have you experienced? Thanks!!
Posted by aliyalex (Member # 6976) on :
PS: I meant what other herx on IV claforan.
Posted by 5dana8 (Member # 7935) on :
hi Aliyalex I am kinda new here too but just found a great way to find lots of information on past posts for whatever topic.
There is a font of info on this site from people who have been in the trench's and their shared experience
This is how you do it:
1-go to the top of page and click on search.Now you have the search page.
2-type in subject: Claforan
3-click on any match or all terms above.
4-click on medical Questions.
5-click on entire message & any date.
6-type in member #
7-hit search.I did this and got 100 posts that came up regaurding claforan.
It can be a hard road.But listening to people here really helps.
Take care and hope the fog lifts soon
Posted by aliyalex (Member # 6976) on :
Actually I did a search before I posted. Sometimes we just need some direct human support.
Posted by 5dana8 (Member # 7935) on :
sorry Aliyalex Didn,t know if you new the search thing.I just found it am very excited.
When I was on IV 6 months tryed just about every ABX including claforan.
Had been sick for a long time and had a high germ laod.I was so tired too.Thought I was gonna die.
And had dizziness and heavy brain fog,heart pvc's,body aches,temps.fevers,chill,head pressure, Head aches,Gi problems...Had the floating brain thing too.
I did make it thru and in the long run am better off now.
It was the hardest thing I have ever done.I am so sorry you are sick but keep lookin at the light at the end of the tunnel.
It's hard to see at times but it's there
Take care dana Posted by NCLymie (Member # 6689) on :
I know how you feel. I have had many experiences with my brain feeling like it almost shuts down and then back up again. It's difficult to explain. I had this long before I was formally diagnosed, and after going through 9 months of iV therapy (lots of different meds) I did have significant improvement. However, I took a year off of antibiotics to get my gut back in shape and I started really going down hill. I have dizzyness and a "buzzing" in my head. Can't figure out if it is in my ears or my brain. When I stand up I hear 'sand' in my ears. If I exert myself, I can hear the 'sand' pulse to my heartbeat. Strange stuff. I am on antibiotics three times a week now and don't know if it's the herx or if it is the lymes disease.
Just want you to know you are not alone. You can expect to feel worse while you are on IV meds. It was the hardest thing I did, but I did get a lot of improvement. However, I believe I will have to be more vigilent about being on oral meds now.
When you see your LLMD, make sure you mention this. I used to keep a journal in a notebook by my bed. I would write down all the meds I took and at what time. I also would write down my symptoms. When I went to the doctor it was much easier to get through the appointment because I had so much brain fog and memory loss I never remembered anything unless I wrote it down. Hope this helps a little. Also, my mother had to come to live with me for four months because I needed someone to take care of me. she wrote down all my meds and made sure I stayed on my schedule for probiotics and ate lots of yogurt. Don't know what I would have done without her. So, if you can get yourself help, do it.
Posted by aliyalex (Member # 6976) on :
Thanks Dana. I am so glad to hear this. I too feel like I am dying. I can't get myself off the sofa. I only work 5 hours a week and that is overwhelming.
On top of that my insurance co just said they won't pay for the home health or claforan b/c it is "investigational" for lyme.
It is just not a good time. Thanks for your input.
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Didn,t know if you new the search thing.I just found it am very excited.![[group hug]](graemlins/grouphug.gif)
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