I seem to have a cycle of episodes with my lyme. First, my left hand will tingle, then I feel hyper, then I get short of breath, then my heart rate goes up to about 130-150 and I can't sleep through the night(have nightmares, twitching). Then the next day I feel terrible!! I have a headache, get the chills, my skin burns, I have horrible tachycardia and fatigue. It takes about 10 days in bed to get over one of these spells then I am functional again until the next spell. I am in my 5th month of IV therapy and thought I would be over these spells by now. I am so discouraged!! Anyone else have these "spells"?
Posted by Lymetoo (Member # 743) on :
Have you been tested and treated for babesia? I blame babs for my tachycardia. If 15 mo of Lyme treatment hasn't helped, you need to do a trial run of babs meds such as mepron and zithromax, or clindamycin and quinine.
Babs also causes intense fatigue and chills, for starters.
Posted by tidegal (Member # 8262) on :
I'm only in my 5th month of treatment and I have taken 3 bottles of mepron with the zithromax for the babesia, I would hope that would clear up any babesia, don't you think? I also have very low bp and I get a creepy crawly feeling on my arms, legs and scalp. Does that make sense?
Thanks for the replies!!!
Posted by Lymetoo (Member # 743) on :
Ya never know. Babesia is hard to clear.
How about yeast? Got your diet and probiotics under wraps?
Posted by seibertneurolyme (Member # 6416) on :
Sounds like babesia to me, but regardless of whether it is lyme or babesia I would be taking very high doses of COQ10 (400 mg or more) if I was having so much tachycardia and fatigue.
One other suggestion would be to make sure you are getting enough magnesium -- the twitching is not usually associated with babs as far as I know.
So sorry you are feeling so bad.
Bea Seibert
Posted by WildCondor (Member # 434) on :
It truly does sound like a co-infection,possibly Babesia, you may need a TTT (Tilt Table test) too. When I got Tachycardia like that it meant Babesia + Lyme and i needed beta blockers plus Mepron + Zithromax to get me bcak to "normal" again. Let me know if i can help :-) Posted by caat (Member # 2321) on :
check COQ10 and mepron, I think it has a drug interaction- not sure.
I'm taking a beta blocker for my heart as needed. Slows the heart rate down. It's wonderful, it is so less scarey now.
Posted by YorktownNL (Member # 7657) on :
My spells are much milder but my blood pressure is also very low (90/60 - 100/70). A Beta blocker put me in the emergency room, I was dizzier than ever and starting to have trouble with my kids names. My heart was so off beat I was afraid to go to sleep. So be careful with BBs.
My heart palps resolved with lyme treatment. Only occasional now.
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