I went to a new Family practice doc. yesterday who is Lyme literate very nice to talk to someone elase that understands this mess. He said I have nystagmus in my left eye. Need info on how to help with this and stop its progression??????? Posted by Lymetoo (Member # 743) on :
Could you explain what it is? I think I know, but do not want to look even MORE ignorant!! Posted by mimi (Member # 6680) on :
Lymetoo, you are very smart! From what I understand it is jerky movements of the eyes due to nerve damage for some MS & Lyme patients. I do have alot of pain behind my eyes and when he have me follow the light he noticed it. It can cause clumsiness and balance problems. Blindness and pain. Thank you for your help
Posted by Pantsinsocks (Member # 7440) on :
I have it too, along with stecata (sp?), both are related to eye movements. It's a fairly common symptom of Lyme and its buddies, I gather. Treatment is a good Lyme/co-infection protocol, which, since you have an LLMD, I am sure you are on. I think I have seen a reduction in mine over the past 6 months. Best Regards
Posted by Lymetoo (Member # 743) on :
I think I had that when I was going through Lyme treatment. My eyes felt like they were jumping around. Rather irritating and frustrating. Also had tons of clumsiness and balance problems.
All resolved for the most part!! So hang in there!!
[I've noticed the jumpy eye thing now when I Rife!]
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