Haven't posted in a while -- so @#$%ing busy or sick or both.
My 2 docs are driving me crazy & I swear I don't know why I am NOT in a coma right now!
It's a long story and I'm too tired to write about it - but the short of it is between the errors in judgment of BOTH of them... my latest TSH is a 90!
For those of you unfamiliar with TSH levels - the current "normal" range is 0.3 - 5.5 (which is actually dependent on which lab you use as to what is the 'normal' range.)
However, I've heard the optimum range is 0.3 - 3.0.
As you can see those are little itty bitty numbers.
I just don't understand how my number can be a d*mn NINETY and me still be functioning....except for by the grace of God, of course!
I finally insisted that they actually TALK to each other and hope to have a mutually agreeable plan of action for my thyroid by this afternoon.
Meanwhile, I think I shall take me a little ol' nap...but I just wondered if others have had this experience -- a whacked out TSH -- and if so, anything else happen to you because of it?
Thanks.
Hugs & Kisses,
Posted by riversinger (Member # 4851) on :
Hey, Doc!
No wonder you need a nap! My TSH never got above 2.6, and I was draggin' my wagon.
I suggest you check out the forums associated with http://thyroid.about.com/. I have seen some folks with astronomical TSHs post there. I learned as much about thyroid there as I have about Lyme over here.
Hope they get things figurred out. Posted by char (Member # 8315) on :
Dr.W.A.,
What in the world! You are badly overdue for a good break.
I don't even know what to say.
I can't imagine the fatigue you are enduring.
I am a little fatigued and overwhelmed with our disassembled artificial Christmas tree strewn about the family room and not wherewithall to get it up. I just asked the DHL guy who showed up with a mail-order RX to do it for me. But he didn't.
Maybe Santa Baby will show up here then head to your place with some Christmas cheer.
Char
Posted by sofy (Member # 5721) on :
I dont understand why you arent in a coma either. 90 is an incredible number. Some doc somewhere needs to respond to that number NOW or they are all negligent.
Posted by Ewok (Member # 8319) on :
Jeepers, mine was 19 in June and the ducks said, "No wonder you're tired." Of course, at the time we didn't know LD was involved. 100mcg of Synthroid brought it to normal but I'm hoping that when I get the keets under control I'll be able to wean myself from the Synthroid. 90--I didn't know it went that high. Of course, I'm still fatigued 95% of the time but now I know why. Best of luck with your treatment. Ewok
Posted by Linda LD (Member # 6663) on :
Doctor SmartBottom,
Most people feel BEST when their tsh is under a 1.
Linda
Posted by lymemomtooo (Member # 5396) on :
You're not in a coma because someone is protecting your wise@$$..Can't be any other reason..Like why my daughter has survived..There are forces beyond our control that do help us..Hope your health improves soon..lymemomtooo
Posted by DR. Wiseass (Member # 6777) on :
Thanks all for your replies.
I am still quite fatigued and definitely believe that I am being protected by the grace of God -- and only God knows why... BUT I have learned something this afternoon after my lengthy nap.
Naturally I haven't spoken with a doc again -- once in a day is like a little small miracle right there - but I did talk to a nurse.
First let me give you a little background info:
For the past year my thyroid has been bouncing around from one direction to another.
Doc A had put me on T3 supplementation when I first started seeing him as it was apparent that my body would no longer convert T4 (Synthroid) into T3 which is what the body needs.
When I started seeing Doc B - he routinely ran blood tests and panicked once because he thought my T3 was waay too high and that I was on the verge of having a heart attack - so he took me off T3 and put me back on T4.
All was fine for awhile...fine in the sense that I still had LD and I was coping but not panicking that I would have a heart attack or go into a coma....
I survived summer and then this fall came rolling in and suddenly my thyroid decided it wouldn't convert T4 and my TSH jumped up to 28.7 - which explained why I started losing my hair practically in clumps!
So prior to Thanksgiving... Dr. A put me back on T3 and took me off T4.
Last week while in Dr. B's office, Dr. B took my blood pressure and it was rather high (because I was upset) but Dr. B assumed it was because the T3 was messing with my heart again, and he made me think that I was about to stroke out or have a heart attack.
So Dr. B runs this last test and when I call him that's when he says my TSH is 90 and for me to call Dr. A.
And so kids that brings us back full circle and here's where your little hypotyroid education begins:
While my 28.7 TSH was accurate -- the 90 TSH is accurate but invalid because it was taken while I was supplementing with T3 - which explains why I have enough energy to type this message.
Apparently the body doesn't 'understand' that it's getting the T3 supplementation - and it is sending out TSH signals because it thinks it needs some T4 to try to convert to T3.
This is all confusing stuff, yes? Much too confusing too when one feels overly fatigued and foggy for sure!
AND THIS IS WHY WE MUST ALL CONTINUE TO STUDY EVERYTHING THAT HAS TO DO WITH OUR HEALTH BECAUSE OUR DOCTORS ARE ONLY FALLIBLE HUMAN BEINGS JUST LIKE THE REST OF US.
OK, I'm pooped and have cramps that would kill a lesser woman - but that's a different thread topic.
Thanks again for all your responses....and hopefully after the holiday madness is over with -- and provided I have survived -- I shall be back on Lymenet with more regularity. I do miss you all -- but I am doing my best to just keep up with email these days.
Hugs & Kisses my dear Lymie friends,
Posted by riversinger (Member # 4851) on :
Why aren't you taking a combination of T3 and T4? That is what the body has naturally. Some places in the body need the T4, even though the T3 is the one considered to be active.
Maybe it is the bouncing between two types that is so tough on your system. Hope they get it figured out.
Posted by mimi (Member # 6680) on :
Hey Doc I am so sorry you are feeling so badly. I thought I was the only person that could
function with a TSH that high. Mine has been in
the 70's and 80's while taking high doses of
thyroid meds. My MD said he was suprised I was
still functioning. It started after a long
period of taking lower doses of thyroid meds.
with never any problems until my body was taken
over by these d@#$%&%%mn bugs. I think that it
might be because our immune systems are in over
drive all of the time. Other than that I don't
know the answer but if you do please let me
know. I did try organic iodine mixed with water
and a little vinegar and it did help.
Take care of yourself and I will keep you in my
prayers.
mimi
Posted by Lymetoo (Member # 743) on :
Hey doc! I'm too tired to anything but send blessings and good wishes your direction. Actually, I'm sending Bev your way. Is that OK?? Posted by Aligondo Bruce (Member # 6219) on :
well, you're already at 90. might as well go for the world record. BTW, have you been checked for a TSH-secreting endocrine tumor?
Posted by HEATHERKISS (Member # 6789) on :
I'm sorry you are having a rough time with something else along with stupid TBDs.
Nice to hear from your though,
Posted by lymster (Member # 5964) on :
Hope the MD'S can figure this one out, just whising you get better sooooon.
Without a doubt somebody up there is watching over you.
![[group hug]](graemlins/grouphug.gif)
![[Big Grin]](biggrin.gif)