Hi lyme gang,I have been on this websight for years.
Sometimes posting ,sometimes ,just sitting back and reading.
Now all the names are different!!
Why is that??
Has everyone just reregistered under a different name??
Have people got totally better and not came back??
Maybe they are just burned out,on trying??
Are they dead or in a convelesent home??
I have gotten worse lately and am about to loose my job after 22 years of fighting this thing tooth and toenail.
I have tried everything possible,all ABX,rife,colodial silver,nothing,everything,Benny Hinn conventions,God,Natural cures,sunlight,IVabx,benzathine penn deep intramuscular shots for 14 months.I am still loosing.
I have forgot a bunch of other stuf for shure.
Were is everyone????
MADDOG
Posted by Lymetoo (Member # 743) on :
I'm here, MADDOG!!! I know...Just me is not nearly enough...but it's a start!!
Many old timers left several months ago, and we have an awful lot of newbies. Ticks continue to bite, ya know!
Hope you find a way to get better soon. Maybe a Rife machine would help??
Gotta run....just checking into things tonight. Take care.
Posted by henson2 (Member # 463) on :
Hello Maddog!
I'm here! I've made a lot of strides forward, especially cognitive ones, and energy, too... I was away from the list myself for much of last year, but I'm back.
I am so sorry you are having a rough time. Geez, sounds like you have thrown everything at it. I am sorry.
You keep up the good fight, ok? There are some old timers who will come out of the woodwork to send their good wishes.
Sending you strength to keep going and a whole lot of understanding. Please take care of yourself and let us know how you are doing.
(((Hugs)))
Posted by GiGi (Member # 259) on :
I am still here too -- though I don't really need to be here. I am totally well.
I am still trying to impress upon some people that Lyme is not the only infection we are fighting. It won't work without a lot of the stuff I have been talking about here for now just about five years!!
Hope springs eternal! I will keep trying.
Wishing you well. Take care.
Posted by micul (Member # 6314) on :
Hey Maddog,
have you tried the Schardt Protocol with Diflucan? It has worked pretty well for people that were on abx long term, and didn't get lasting results. It seems to be helping some people here on this board.
I think that some of the old timers have changed their names, but some people have left the board because they got better.
Posted by breathwork (Member # 567) on :
Hey Maddog...
I'm still here too....So sorry to hear that you're not feeling up to snuff...in just about any way!
Hang in here...
Carol Ann
Posted by daniella (Member # 6753) on :
I'm here you bad dog...lol
hope you feel better
Posted by pattiecake (Member # 6424) on :
do you have metal fillings in your teeth? If yu are heavy metal toxic you will have a very hard time getting well. Just a thought. pattiecake
Posted by mimi (Member # 6680) on :
Hey MADDOG I remember you but I was newer to the board when you were here. I am so sorry you are having such a rough time. I read that you tried rife but wondered if you answered yes to the other questions. Mercury in your teeth, and diflucan protocol. Did you take abx while using the rife? There are some protocols from Germany that some have found helpful but I am sorry to say I do not know the protocols planning to check it out myself. Didn't mean to ask so many questions just wanted to try and help. It does feel weird without all of the others here. Take care, mimi
Posted by lou (Member # 81) on :
Sorry you are not doing well. Here I was thinking you were out on the rivers having fun. Envying you. My kayak just collects dust.
I am not doing well either, not really getting treated at this point. Don't know what to do about it.
We had a major troll attack and some oldtimers left, and as someone said newbies just keep coming. Until those fools in the medical establishment figure out they are doing major damage to public health with their lyme opinions, we will continue to get people who are desperate for help and information.
Posted by HEATHERKISS (Member # 6789) on :
Hi Maddog,
I remember you. So sorry you are having a rough life.
I thought you left with all the old timers.
Definately try the diflucan or the generic form. It's reasonably priced too. It takes my dizzys away.
Posted by just don (Member # 1129) on :
Yo angry pooch!! Member ME??? I was just thinking of you this morning. Something came in the mail from a friend we have in common. It was a very cool gift. It has my picture on it ( from a VERY pleasant memory) and guess who is standing in the background watching me flail my oars?? Sorry you are having big problems. I am sorta in same boat as you. Can you apply and get SSDI? I lost track and never heard the result of that one disability duck you had to go to. E-mail me IF you like!!Because I am still known as --just don--
Posted by GreanPea (Member # 3411) on :
Hey, MADDOG!
I'm around as well.
I went into remission from about April until just about a month ago. Now I'm back on meds.
Anyhoo, I'm hanging around more now than I did over the summer. I missed all of the hullaballoo, too.
Sorry you're back also.
Pea
Posted by vitch (Member # 8094) on :
I had to reregister when I couldn't remember my password.
Posted by dontlikeliver (Member # 4749) on :
I'm here
Posted by Melanie Reber (Member # 3707) on :
Good morning my friend!
I was actually just asking about you the other day as well! It is nice to see you again . Yes, there are MANY new names that I don't recognize...and it seems as though the questions are getting tougher too! Thank Goodness for those old time stalwarts who do stick around day after day after year to help so many (you know who you are- thank you!)
I suppose I am one of those fortunate ones who have faded from here due to feeling better. Not that I don't want to hang around with you all day, but after putting things off for so long when ill, it takes extra time just to catch back up to speed once better.
I am so sorry that things seem to have gone downhill for you. Weren't you contemplating a move about a year ago? What happened to that? Yes and what happened with disability? Do you have faith in your doc now or are you still pretty much flying solo?
Sorry for all of the questions...but I think they always help with helping you further.
Much love and still aiming for the `V', Melanie
Posted by JimBoB (Member # 8454) on :
See, Maddog, there are a lot of you STILL here. Boy, now THAT is NOT too encouraging for us NEWBIES.
I had hopes of being cured in a year or less from this 6 year infliction, by combining some antibiotics WHEN I can get them. (IF I can). So far, nothing from my duck. Called there yesterday, AGAIN, and the nurse said they are waiting on the local Pathologist to find out IF the Bowen test is still viable. They want the CURRENT info on it. They are not satisfied that Buhner wrote on it in 2005.
SO, I may just be forced to go to alternative abx sources. I have kept my herbs at below the minimum dosage up till now, but I woke up this morning with the pain in the top of my head, back after being without it for about two weeks or more now. AND I noticed last night that I was losing my balance again. My vision is still good yet, but is THAT next? Some pain back in my knee tendons as well.
I have been taking only about 1/8th of Buhner's recommendation for a real GOOD protocol. In hopes of being finally tested for this thing. BUT can't wait till I die before they quit dragging their feet and actually DO something.
JimBoB ###
Posted by JimBoB (Member # 8454) on :
PS: I forgot to finish my FIRST paragraph.
I meant combining the abx with herbs.
I started doubling what I WAS taking of the herbs, today.
JimBoB ###
Posted by bettyg (Member # 6147) on :
Hi Maddog, sorry to hear you are like many of us here.
Go to TREEPATROL'S NEWBIE LINKS, 1st entry on medical, and look for MINOUCAT'S DISABILITY SITES. It's terrific.
I had added there about the DISINISSUES web site. If you can't find it, use the private message they now have on here, and I'll give you more on it.
Posted by charlie (Member # 25) on :
A bunch of us are still here....just flying under the radar most of the time...
Posted by MADDOG (Member # 18) on :
Thanks everyone!! it is good to hear from everyone,new and old time lymies.
The bigest problem I have right now is ininterstitial cystitis caused by inhaling the chems. at work.
The chems are taken out of my blood by my kidneys and dumped in my bladder were they have ate holes in the bladder lining.And now my kidney function is off allso.
If I don't get out of there I will wind up on dialisis.
Quitting means fighting for Dissability or long term workers comp.,both very hard to get.And in the mean time I could loose my home in the long wait.
However kidney failure means instant dissability,so I guess I destroy my life waiting for the failure to happen and suffer all the pain because our government dissability rules are stupid.
The lyme symptoms right now are the eyesight brain thing,paranoia,and joint pain.
MADDOG
Posted by nan (Member # 63) on :
HEy, Maddog! Not dead......yet! And not in a nursing home.....yet! Just working hard at trying to live a fairly normal life even though sometimes I think the keets are winning the battle!
Wish you had better news. Hope things will look up again for you and we'll hear you out howling at the moon soon!
Posted by map1131 (Member # 2022) on :
Hey Maddog I'm still here. You're one of the first I remember from 1999 when I went looking for support on lyme. You had told me you became ill from lyme after being in my Bluegrass state of KY at Mammoth Cave.
I believe I was infected not 40 miles from there. You do need to clean up the toxins in your body and it doesn't sound like you have much of a chance to do that where you are working. I'm sorry you are in such a bad way right now.
I had to go the disablility route 4 yrs ago and it's not a pretty picture to think after devoting yourself to a corp for 28 yrs. But I found out it wasn't the end of my world. My career was not chemically toxic, but it was toxic to my body because I only wanted to take care of the company and not my sick body.
I'm lucky in that we survived on my husbands salary and savings until the Social Security system worked itself out.
Gigi makes a great point in her post. There are many other things you have to target besides lyme. I don't know how much Gigi reading you have done, but you need to go back and read some posts from her on TOXINS, parasites etc.
You can't mop up lyme until you get rid of some heavy duty layers of garbage on top of the lyme.
Take care, Pam
Posted by Ann-OH (Member # 2020) on :
Still here too, Maddog. Wishing you could feel better. How's your lizard pal? Wish you could go somewhere warm for a while.
Hang in there, Ann - OH
Posted by bobdavis (Member # 510) on :
I am still here after all of these years. I was on the old Lymenet before they redid it.
Let me see, you were trying Oxycycline, cow antibiotics many many many years ago. I was taking bird antibiotics. Those were the days my friend.....
Sorry to hear you are not doing so well.
Maybe you have mad cow disease?
I hope I do not get bird flu....
Posted by David95928 (Member # 3521) on :
Still around but only sometimes as I am doing well and busy with work and such. Do you have the option of finding a less toxic job?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by vitch: I had to reregister when I couldn't remember my password.
Hey vitch......What's your old name??
Posted by Reno'sBack (Member # 7367) on :
Hi MADDOG, I'm so sorry things are going so terribly 4 U!
Is changing jobs an option, as Dave asked? You've always struck me as the McGyver-type!
I switched from Dr.S to Dr.P...I feel like I was beating a dead horse! There HAS to be something(?) more to this!!! What do you think?
Please keep your POSITIVE ATTITUDE & KNOW We Love You! Hugs~Reno
Posted by lpkayak (Member # 5230) on :
maddog-i'm here-i was wondering about labrat the other day. i'm going downhill too and back on treatment-but i ended up retiring early on a lower pension cuz i got hurt at work. anyway-i ended up on soc sec disability and it went thru real quick and easy because i gave them documentation of stuff that was wrong with me that wasn't lyme...like osteo arthritis and asthma ( i had trouble with building air too)-the school district would never agree the air was bad but i ended up being diagnosed with asthma at 50 yrs old with no history of it-and my dizziness is diagnosed as post-cuncussive syndrome. who cares what they call it---when it comes down to losing your house and feeding yourself you gotta do what you gotta do. i learned to put my energy into fights i can win...i'm gonna send you my private email if you want to talk more about it. they are telling us to be careful on here about posting our names or numbers or emails cuz some bad things have been happening. what state are you in? it makes a difference as far as disability. good luck.
Posted by bettyg (Member # 6147) on :
maddog,
you mentioned LTDisability from work; from what I have read in the DISINSSUES group I referred you to in MINOUCAT'S disability links .... it's not worth it.
Go for SSDI benefits.
Whatever you do, make sure you keep DUPLICATE copies for yourself. On each set of papers I sent to SSDI or my former laywer, I showed the date they were mailed to them & that each received plus I KEPT A COPY. then signed my 1st name.
That was really helpful to me when I went to local SS office to review my COMPLETE 2nd SSDI file. I could just skip pages I sent in & put post it notes on papers that were generated from DISABIILITY DRS/STAFF. Then I copied them & used them for my defense on answering questions to things they brought up.
It's NOT easy; hope you have 1-2 people who can really help you write things up, etc.
If you go to the FEMALE drs. example she has in the DISINISSUES site, you could win your SSDI on your 1st attempt by following what she has done in having COMPLETE medical documentation there!
Remember, it's NOT our illnesses that count!
It's why we can't do substantial work: sitting, bending, walking, using our fingers, crawling, climbing, etc. That's where our drs. must state specifically WHY we no longer can do that type of work.
your paranoia; go to a psychiatrist and have them do their 10 page questionnnaire on you. That really helped me WIN my 2nd claim; judge quoted her over & over since they didn't want to deal with my undx lyme of 34 years, my fibro, chronic fatigue, etc.
good luck
Posted by meg (Member # 22) on :
Hey Mr Baddoggie-
Still plodding along here....same old name.
Sorry to hear about your problems my friend, seems like you did so well on the shots. I haven't kept up on the co-infection issue with you..have you checked those?
Your last line of symptoms sound like mine, hang in there.
Posted by lymebrat (Member # 3208) on :
Hey Maddog,
I'm still here too..
Good to "see" you ..
~LymeBrat
Posted by Lou B (Member # 64) on :
Hey MADDOG, my crazy-dog-man friend of many years,
Sorry to hear you're on the down-slide again. Fight it with all the fight you've got ... do not give up ... not now, not ever!!!
Angela and I are still here, 9+ years fighting the battle and supporting the victims of Lyme and other TBD's.
Hang on my friend and bark at the moon,
Posted by pab (Member # 904) on :
![[Big Grin]](biggrin.gif)
I know...Just me is not nearly enough...but it's a start!!![[Smile]](smile.gif)
![[Frown]](frown.gif)
Hope things will look up again for you and we'll hear you out howling at the moon soon!![[hi]](graemlins/hi.gif)
![[Eek!]](eek.gif)
![[confused]](graemlins/confused.gif)
There HAS to be something(?) more to this!!! What do you think?