SForsgren
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Member # 7686
posted
For those that have been tested, what lab did you use and can you provide me with any high-level information in this regard? I have done the Genovations Detox profile and get the results back next week, but I do not believe it shows this potential defect. Any information or links on doctors that have provided info on this area would be appreciated. Thanks
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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riversinger
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Scott, are you talking about the HLA gene typying for Dr. S's protocols? If so, they are not specifically detox profiles. I think they are considered transplant profiles. It is code # 012542 at Labcorp, which is where you should have it done.
What other info do you want? There aren't any links that I know of, if this is what you are talking about, but I know how to interpret the labs, as there is a cheat sheet in the back of the Mold Warriors book. I've done quite a few.
It looks at completely different information than the Genovations testing. In fact, I am encouraging my doctor's office, which is doing both, to see what kind of overlap there might be.
The HLA has, so far, been used to look at susceptibility to certain neurotoxin compounds, and an inability to clear them. Genovations looks in more detail at specific defects in the detox pathways, and there are supplement protocols to correct the defects. This is pretty basic, but my understanding of the difference.
posted
Im not at all sure what you are asking for but I do know I tested positive for HLA-DR4
This was ordered by Dr. K, lyme neurologist in Ct. He is the one who gave me the diagnosis of Chronic Lyme/Autoimmune due to having had the vaccine. Apparently if you test positive for HLA-DR-4 then the vaccine will do you in. Im proof of that.
Quest did that lab along with 8 pages of other tests, which I cant make heads or tails of. He also sent lyme tests to 2 other labs.
I do know I had to fight with my insurance to pay for the tests cuz they said they only paid for that test for transplant patients.
Dr. K gave me tons of papers stating the connection with this gene, lyme vaccine & chronic lyme. I sent them a hugh package and they paid. No one was going to read all that stuff. They just caved.
Posts: 561 | From connecticut | Registered: May 2004
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My son too tested positive to HLADR4 and I was not able to get much info on it except what you have posted regarding the vaccine and that my son automatically does not make enough antibodies to fight any infection well. That was my understanding of it...I would love to get more info on this too...Especially if there is something with this in relations to a detox pathway....He herx's pretty badly...EB
Posts: 127 | From Rock Tavern, New York | Registered: May 2005
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riversinger
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posted
Besides showing the HLA gene types that are associated with antibiotic treatment resistent arthritis, like sofy is addressing, there are some other gene type combinations that may have a susceptibility to problems with mold, clearing out the dead Lyme bacteria, and certain other neurotoxin forming organisms.
The HLA typing by itself does not indicate a need for treatment. It only shows susceptibility. It does not show whether the body has had exposure, or whether it is reacting.
There is another battery of tests that can be done that can show specific areas of problems. Once it is identified where the immune system is having problems, then specific therapies can be targeted. There is a basic initial program that many know about, with cholestryramine, and possibly Actos, but the therapy goes on beyond that, depending on how the immune and endocrine system has been affected.
The best description in print right now is the book Mold Warriors. Even though it agddresses mold, Lyme is also an important player, and is treated in a very similiar manner. Also, many have both problems, and don't realize that mold is holding their recovery back.
SForsgren
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Member # 7686
posted
Good info. Just bought the book. I have done the cholestyramine protocol with limited effects, but the book should be a good resource. Thanks
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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riversinger
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Scott, once you make your way through the book, you'll have a much better idea what is involved. It can be pretty complex. There aren't any doctors in CA yet that really understand the protocol, though a couple are in the learning process.
The book takes time to digest. The style is kind of rambling, and the info is scattered about. I have tons of little post-its in mine to try and keep track of the important info. Plus Dr. S says there is about 30 hours of Dr. training beyond the book, to get the whole idea down.
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