I have been on antibiotics for a month and am already seeing improvments in all of the strange and varied symptoms I was having.
However my neck pain still bothers me, and am wondering if that symptom could be related to something other than Lyme.
It isn't that my neck is stiff, like you mostly hear. Instead I have tender muscles along the sides of my neck / behind my jaw. It almost feels like my glands are swollen (but when I touch them they don't feel swollen). Sometimes I feel like the muscles get exhausted just chewing my food. It is also feels like I need to consciously focus on swallowing.
Anyone else have such a thing, or should I consider seeing a specialist (i.e. ear, nose and throat doctor) to be sure it not something else.
Posted by CharV (Member # 5849) on :
I think the neck pain which you are describing is one of last symptoms I still have and I have been on and off treatment for almost 2 years now. It gets worse and then it gets better with no rhyme nor reason. My whole family suffers from TBD and we all have a sore/stiff neck from time to time. You kind of learn to live with it.
Posted by LC (Member # 7070) on :
Skater- I have the same thing.....worse when herxing but better and less frequent overall with treatment. I think it means cranial nerve involvement. BB loves the cranial nerves. Do a search on cranial nerves. LC
Posted by groovy2 (Member # 6304) on :
Skater
Babs made my neck pain Much worse-- After a few months of babs treatment neck pain is mostly gone---AHHHH- Maybe look into it--Jay--
Posted by hatsnscarfs (Member # 6562) on :
Jaw pain was my first big symptom. The pain affected my neck too and my neck muscles were really tight. The severe jaw pain slowly, steadily lessened with abx. The neck pain took much longer to resolve. Now after 16 months of abx I have meny days without any neck or jaw pain. When I overdo it though the pain starts to come back.
After approx one year of treatment the pain moved into the back of my neck & shoulders. It was a burning pain that would start up late every night.
That is now almost gone too. These symptoms can take a looonnnggg time to resolve. Slow & steady wins the Lyme recovery race. I find it helpful to write in a Lyme Log every night. That way I can see the small improvements and realize I am making progress. When I read the log now I can't beleive how sick I was a year ago!
IMO seeing specialists for the various Lyme pains is a waste of money and may lead to treatment that makes it worse.
Virtually all the really severe pains I've had that seemed like they would never end have ended and now come and go in a much milder form. This includes severe pain in my neck, jaw, shoulders, ribs, knees...
My lyme pains have an unusual feature that tells me they are Lyme pains: A severe pain will suddenly go away before coming back full force. Normal injurues tend to improve gradually. Lyme pains seem to have more of an on/off switch. Most turn on at a particular time of day and are turned back off when I wake up.
hatsnscarfs
Posted by Christian1975 (Member # 7090) on :
I have exactly the same pains, coming and going.
Been on 3 months of dozy and 4 months of flagyl/zith but it still crops up regularly. I was tested lyme positive with bowen but babesia negative, though my LLMD suspects babesia involvement.
Posted by luvs2ride (Member # 8090) on :
I have come across some interesting dental/metal toxicity articles by GiGi which sounds like it could relate to your persistent jaw/neck pain. You should do a GiGi search and read the articles.