I just found out yesterday I may have passed this #!*! disease to my 2 kids. Even though my mind says it was not my fault, my heart is very heavy. Last summer"05", I found out I've had lyme for 22 years. That means I had it during both my pregnancies and I nursed both kids. Does that mean they are both doomed. What about my husband? Concerned MOM....Anne Posted by treepatrol (Member # 4117) on :
Posted by lymie tony z (Member # 5130) on :
HEY WOE THERE LYMEABEAN...
Don't go blameing yourself...blame the tick!
Or blame a transfusion you may have gotten...or blame your husband(not really) cuz he may have given it to you....
Or blame the fact that the whole family may have been exposed simultaneously at some gathering in the woods or your own back yard...
There is no one thing to blame and certainly not yourself...
So stop it right now!!!!
Hey the govt may even eventually be found to have infected us all with genetically engineered bacteria,or russia,or alqueda...whatever.......
Hey, it's a damn disease that likes humans...what'cha gonna do....
I prob got it from my mom or when we went to the old farm for picnics......who the heck knows..... I never blamed her!!!
So stop it......... Posted by brentb (Member # 6899) on :
quote:Originally posted by imalymeabean: Last summer"05", I found out I've had lyme for 22 years.
Borrelia comes in all shapes and sizes. By that I mean just because your kids have borrelia does not mean they will have symptoms. It depends on the genetics of the borrelia. That said in general carrying borrelia is still not a pleasant idea. My kids have borrelia (not Lyme) and I'm not that worried about it. They take maintenance silver (under the epa guidlines) and appear healthy and happy. It's a complex topic and I'm sure I confused you even more.
Posted by christelleny (Member # 6719) on :
I'm in the same situation, except a Lyme diagnosis for my little one hasn't been confirmed. Each time my 2 year old complains his knees hurt, I can't help wondering: is this it?
Yet, like you, I didn't know when I was pregnant that I was infected. The big medical problems began during the pregnancy.
Guilt is not an option. The best you can do is ensure that your children get the best medical care possible, so they beat it and stay out of it. Then, educate them about the disease so that later in life, if there's a problem, they won't dismiss it.
Posted by SForsgren (Member # 7686) on :
I agree that guilt, etc. won't help, but I also think it is important to get appropriate testing done for the children and to treat if necessary. What may not seem like a problem today may become a larger problem if left untreated.
Posted by lymster (Member # 5964) on :
Dear lymeabean:
I passed this disease to my younger child, he had medical problems since birth, went undiagnosed until he was 7 years old and started treatment since, that was 9 months ago.
I totally understand how you feel; but if blaming yourself will cure him/her I will say blame yourself like there is no tomorrow; however, blaming yourself is not the cure and it will interfer with your own recovery on a negative way. Cheer up and keep going, your children and hubby need you.
Take care, Lymster in WA
Posted by niki (Member # 7720) on :
I have three children I passed lyme onto congenitally and through breast feeding before I knew I had Lyme. I have had it for twenty years. I'll pass on the advice my husband gave me when we found out the kids were positive through Igenix.
We know what it is we know what to do- Stop feeling guilty we don't have time for that we need to get these kids well!
The Lyme doctor was really positive about treating children even with congenital lyme- he said they usually respond much faster than adults. So get a good doctor and start treatment. Focus on getting your children healthy not on what you unknowingly passed on to them. They are here, they are awesome blessings!
Posted by DeniseS (Member # 7276) on :
Hi Anne,
So sorry to hear you may have transmitted this disease to your children. I did. Luckily children usually treat really well. My 2.5 year old only needed to be on abx for 6 mos and that's 2 mos past his first negative test.
Get them tested and treated, the sooner the better.
And do try to be gentle with yourself and angry with the medical establishment that is so *$#@ slow in recognizing LD for what it is.
D
Posted by lymesly (Member # 8528) on :
Hi Anne,
I had my son while I was undiagnosed with Lyme, too. My doc said that if he doesn't have any obvious health problems then he probably didn't get it. Are your children sick much?
Ben (my son) will get the occasional cold, but he isn't a sickly child....although he is very sensitive. So I feel it may not have been passed on, but I do wonder about the extreme sensitivity. His father and I are both sensitive artists though, so maybe it's just that. : )
If your kids haven't been unusually ill their whole lives, they may be OK. I hope so!! It's scary!!
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