Hi all i posted earlier any uk sufferers... My doctor will not give me a test as he says there is a very minimal chance i have it...... Even though bitten by about 10months ago by something that when i reached to bite site had drawn blood, since then monthly cycles of various things which leaves me with 2 very bad weeks one not so bad and one bareable.. Symptoms- not all at the same time: blood pressure raised, brain fog,headaches, confusion, weakness, burnt tongue, indigestion , acid reflux, ibs, sticky gunk in eyes regularly, ringing in ears,numbness tingling various places, stiif shoulder , neck,jaw pain, chest pain, clicking joints, flu like symptoms, anxiety, depression, shakes, tremours, feeling of vertigo, bad taste in mouth, cant sleep, cant get up. They are many more its driving me mad doc says i am stressed and is only interested in my BP despite the fact i dont drink much ( i cant a small amount makes me feel very drunk)never smoked done drugs anything. Only meds i am on are Ramipril for BP and Paracetomol . My life is so crap at the moment i really have had enough does anyone in the uk understand this. Maybe i dont have it doctor says unlikely i have had blood tests for lots of things , ECG and chest Xray all are ok. No one will listen and think i am mad. Never been ill really up until the time just after the bite. But then not to bad symptoms really kicked in after flight home from holidays 4 weeks after. Also as you can see i have lost my ability to write in paragraphs..... Please help and uk lime docs or info . Thanks for your time and to all you sufferers even if i dont have it my thoughts will always be with you very brave people. KEEP RIGHT ON>>>..
Posted by tequeslady (Member # 6832) on :
Karl:
Most regular doctors have no clue about lyme disease. Sad, but true. You have to find a Lyme Literate Medical Doctor (LLMD).
Have you checked out these sites? Maybe the lyme disease association in the UK can refer you to an LLMD.
Hang in there!! We've all been through a plethora of doctors telling us it's in our head. It's not. You just have to get to someone that has a clue. Then, you'll be on your way.
He had some replies to his previous post. I am wondering if he realized he needed to go back and read them. Some newbies don't know to look on page 2 or 3, etc, when their post disappears from page 1.
You there Karl? Did you see the previous answers?
Posted by Elinor (Member # 8174) on :
Hi Karl.
I'm in England and we have very few doctors who treat lyme, you will probably have to see a private one. I can send you some names but I won't post them on here, we have to protect them for the sake of their careers.
The NHS test is the useless ELISA which only looks for antibodies and it is very unlikely that you will get a positive result now, mine was negative but my private lyme doctor looks for the spirochetes in blood and if he sees them sends a blood sample to Bowen in USA. They will send you the pictures of the bacteria in your blood if they find them and also test for the co-infections babesia and erlichia which can often be found with borrelia.
Some NHS doctors will then prescribe antibiotics on the advice of the LLMD but mine won't, I have to pay for them. If you haven't been infected for too long you would be better to start treatment soon, you have a good chance of success.
Don't be fobbed off by your doc saying it's not likely you have lyme, they are told it is rare but I was bitten in Yorkshire and many on our lyme site Eurolyme were also bitten in parts of the UK where they say there is no lyme!!
If you want the names of doctors let me know and I will send them by private message.
Posted by millymollymandy (Member # 7703) on :
Hi Karl, Just to let you know that I have sent you a private message.
Posted by Karl (Member # 8686) on :
thanks to all so far. Why wont docs recognize this i reckon that there is more in the uk than people think..
thanks all
Posted by Carol in PA (Member # 5338) on :
Karl, Your first post has dropped to the bottom of page 2. Here it is:
You bet there is a lot more than the docs will admit, in Scotland lyme is a notifiable disease but in the rest of UK they don't know how to look for it and could care less about chronic lyme which they claim does not exist.
you will find many who have been let down by the medical profession and have to find their own way. You will also find lots of support and good advice.
Posted by dontlikeliver (Member # 4749) on :