I hate this fatigue Bullsh..!!!
Posted by HEATHERKISS (Member # 6789) on :
Being fat blows!
Just ignore the sunshine below.
Posted by 5dana8 (Member # 7935) on :
Being tired SUC%$!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted by cantgiveupyet (Member # 8165) on :
Me too! I cant even stay awake to watch my fav TV shows. I used to be a nite owl. Now I crash early and wake up in the middle of the nite.
Posted by HEATHERKISS (Member # 6789) on :
My head hurts! I'm cold.
Once again ignore the sunshine BELOW.
Posted by dmc (Member # 5102) on :
Hang in there guys...it will get better. Hard for you to see any bright spots now but keep plugging.
Posted by Michelle M (Member # 7200) on :
I'm cold, and tired, and my head hurts too. I took a Relpax. My horse got out. I had to leave work early. Go out in the freezing rain. Not just fix the fence. Nooooooo....! The electric fence controller died! I installed a new one. Cursing the f#*@($)*(@ing rain. And winter, generally speaking.
Is it summer yet?
Michelle Posted by Mlaven323 (Member # 8179) on :
That's one beautiful horse, Michelle!
Posted by bettyg (Member # 6147) on :
yes fatigue is bad enough and then to have 24 hr. AWAKE periods is the pits several times in one week....week after week!
that's why I'm on here now....not sleeping. When I can sleep, it's the late morning hours up to noon or 1 pm.
Posted by BostonLyme2005 (Member # 7680) on :
I am sleeping well these days after starting the tetracycline.....But the fatigue comes and goes, like other symptoms......I will be happy when it is gone for good...I did have three full days where I noticed I felt very good, and fatigue was very low...
Posted by WildCondor (Member # 434) on :
Hey sleepies....
2 things that help big time with fatigue and stamina
methylcobalamin B12 shots taken dailt for 4-6 months, plus cordymax 2 pills 3x a day available from PHARMANEX.
the B12 you need a Rx for and sent to a compounding pharmacy, if you need info, let me know, I have the info.
helps so much!!
Posted by 5dana8 (Member # 7935) on :
hey wildcondor Thanks for the energy tips.!
I went to pharmanex site & looked into the cordymax.
It has mushroom mycela in it.Did you get yeast issues when you took this.?
Or is this a benign mushroom extract?
Thanks & take care
Posted by WildCondor (Member # 434) on :
I never have any yeast issues with CordyMax! I dont know the specifics of if it replicates in the body my brain is friend right now but the info is out there, somebody else may know at the moment. It helped me alot, esp. w/ stamina. Posted by siggy (Member # 8654) on :
I think the worst about fatigue is that I never really know when it comes or when I will be feeling better. Just wait till it is over. �
Are there any herbs that could do the trick?? Curious and eager to know.
Posted by sofy (Member # 5721) on :
Ok I will whine about it too. I dont have enough energy to shower, cook or do the laundry. I do have to feed myself so cooking simple meals that last at least 3 days get priority.
Its getting harder and harder to have hope.
I keep reading that vaccine lymies (ME) dont always get better and that just horrifies me. I dont want to live with no purpose except to feed the dog, myself and let the dog out.
Posted by Foggy (Member # 1584) on :
I tried a myriad of remedies Provigil, B12, Nada, etc. for fatigue and they was merely a Band-Aid.
Once I treated Babs with Mepron, the fatigue improved dramatically within days.
Posted by SForsgren (Member # 7686) on :
Anyone tried Corvalen (corvalen.com) for the fatigue? Dr. T. from endfatigue.com is reporting good results with it.
Posted by BostonLyme2005 (Member # 7680) on :
Its nice to see we can all help one another in some way..
Posted by BostonLyme2005 (Member # 7680) on :
Had two god days and now the fatigue is back again......sucks!
Posted by 5dana8 (Member # 7935) on :
Sofy
Some days, I often wonder :Is this my life? And wonder what will become of me.
If it's any consolation your dog needs your love and know ones else will do.
It's important even for a dog, to be loved.It's another living soul.
And some days when I don't have enough energy or good hope for my future I think to myself.I can still love someone.
So go ahead and lay on some of those doggie kisses. Posted by AZURE WISH (Member # 804) on :
At my worst I was sleeping 20 hrs a day and half asleep during the 4 i was "awake". I would fall asleep sitting up - in the middle of my own sentences....and I could only get off the couch to get to the bathroom down the hall ....because the pain and fatigue were so bad....actually I barely have any memory from that time...
I now sleep on average 12 hrs a day.... Some days I actually have enough energy to clean and semi function.... Of course I do not have any real stamina and I get throughly exhausted very easily.... but I am some better.... some days I even feel human....
And on the really bad days I just try to think it could be worse.... It seems to help me get through.
Best Wishes Posted by hatsnscarfs (Member # 6562) on :
Hang in there Boston Lyme, it will get better.
When I started Tetra I had mega fatigue. My energy would suddenly plummet and I would barely be able to move. My brain was tired too. It started to get better around the third month.
Improvement was gradual and doing extra on my good days often led to bad days. I learned to pace myself and not push myself. If I had something inportant to do an a particular day I would do very little the day before.
When I was able to resume outdoor activities like hiking and skiing I made sure not to venture too far in case my energy suddenly vanished.
Now I'm doing my 2nd round of Tetra. I'm on my 19th month of treatment. I'm about to do my nightly Epsom Salt soak and then get 8 hours of sleep so I can be back out on the slopes tomorrow for another great day of skiing!
I'm on vacation in the Rockies and have skied 4 full days so far. I'm feeling great when I'm out on the slopes. When I'm skiing I don't notice the tingling in my arms & shoulder or the vibrating feeling in my blood.... So, I'm sticking to the anti yeast diet, drinking lots of water, soaking in epsom salts every night, using podi patches, taking probiotics... and doing all the things I need to do to have more energy and have a great and active vacation while still fighting Lyme.
When I'm at home I soak in Epsom salts in the morning before work. If I don't do this, the toxins build up and fatigue sets in.
Be patient and keep a log so you can see your progress. Do the most important things you need to do when you have energy since it may be up and down for a while.
hatsnscarfs
Posted by BostonLyme2005 (Member # 7680) on :
Great words!
Every bit of hope helps us all!
Posted by Littlesprout (Member # 7406) on :
I did the King James B1 test, I showed that I needed it. I do B1 injections daily, painful but I can really tell a differece when I try to cut back. The fatigue/weakness gets worse. I do 200mg (1 cc) per day and add some B12 to dilute it, less painful. I get it from a compounding pharm. http://www.lymeinfo.net/thiamin.html
I still have alot of FM pain that I can't get a grip on, but the fatigue is alot better with the B1 (needles are my friend )
Posted by BostonLyme2005 (Member # 7680) on :
Yes,
I hear and read that many different people have a system for helping with fatigue.
Posted by BostonLyme2005 (Member # 7680) on :
Having some better days!
Not where I want to be, but moving forward!
Tetra. is working!
Posted by HEATHERKISS (Member # 6789) on :
My stomache is uncomfortable and I'm constapated. This is the complain link. Right?
Posted by BostonLyme2005 (Member # 7680) on :
Yes!
Please complain away!
Thanks,
Posted by WildCondor (Member # 434) on :
Try the methyl B12 they cordymax etc, trust me it increases energy!!! Sleeping 10-12 hours is essential for me and always has been, you heal while you sleep!!!
Posted by BostonLyme2005 (Member # 7680) on :
Thanks guys.....
I am reviewing all the info you have given me.
Posted by BostonLyme2005 (Member # 7680) on :
All that I did today was wash my car at the carwash and walk around with a power jet hose in my hands and now I am dying a slow death for today!
Oh well! I guess we never knwo how it will hit us...Fatigue Sucks!
Posted by BostonLyme2005 (Member # 7680) on :
The fatigue has returned in nearly full force! So has the arthritis pain!
This SUCKS!
Posted by 5dana8 (Member # 7935) on :
Rob
Did you start your biaxin yet?
I took my first Siberian Eleuthero root this morning and I have to say I had more energy.
I can't take traditional ginseng - it reves me up, but this didn't.
Only time will tell if this is just a fluke or not.
It is described in Buhner's :"healing lyme book".
I got it at iherb.com. 180 caps for $6.59.
I don't think I would take more than one or take it after 12:00. I also made sure to take it with food.
Take care dana
Posted by BostonLyme2005 (Member # 7680) on :
Hi,
I am now on Biaxin/Plaq....Strand taste in my mouth from the meds.....
Posted by AZURE WISH (Member # 804) on :
Ye that mettalic taste is annoying. And you can brush your teeth a hundred times and its just going to come right back. after awhile I got used to it though.
My fatigue is awful today. My cat and I just watched tv all day.
I Ordered new vitamins hoping they will help.
Best Wishes
Posted by cantgiveupyet (Member # 8165) on :
i have severe fatigue today. i could barely take a shower... i got out of the shower and my arms were so heavy.
i have to pull myself together to cook dinner.
Posted by karatelady (Member # 7854) on :
Down here in Georgia the allergies are awful and I am suffering --- lot of fatigue and a nasty back of the neck/headache that won't go away.
I even tried Imitrex and it didn't help which it usually does if its a lyme herx headache. I don't like to take them too often.
I guess I need to Rife for allergies -- haven't done that yet. It is helping with the lyme pain.
Sandy
Posted by BostonLyme2005 (Member # 7680) on :
Hi,
Up here in Mass, I am having a bad morning!
"No matter where you go, there you are"
Posted by Greatcod (Member # 7002) on :
I think that "exhaustion" is a more accurate
word than "fatigue" for describing many Lymies.
And "It feels like I'm dying." When someone uses
those words to describe themselves, I feel
they probably have "it".
The Lyme Boss of Bosses would probably prefer
"a vigorous immune response". That wrings the
humanity right out of it.
Posted by hopeful123 (Member # 3244) on :
i'm still fatigued most of the time....but nowhere as bad as i was before.
it has gotten better.
i think treating the babs did it plus i am being treated for adrenal gland issues and hypothyroid.
not really spending that day in the office so tired i had to fight to stay awake even when i was actually doing work here.
able to tackle some projects at home with some energy.
just not completely better.
Posted by hopeful123 (Member # 3244) on :
i meant to say something about getting better sleep due to elavil 10 mg. at night which helps with sleep and pain.
made a difference in how i feel day to day.
Posted by mammachase (Member # 5697) on :
Fatigue, my neurologist gave me amantadine and I now do not have to take naps during the day, still tired early at night, but at least I can function during the day, anyone else try amantadine?
Posted by BostonLyme2005 (Member # 7680) on :
You can always count on it returning, but you can never bank on when!
Posted by HEATHERKISS (Member # 6789) on :
Not as fatigued as before. in fact functioning pretty normally for the past few months.
It's now a stamina thing. I have to stop and relax alot during physical labor.
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