I'm so tired from lack of sleep going on for years.
Anyway, I've beenonhefee sometime at nighttime for hubby and in the mornin when I get up fom
PROBLEM: can't stay awake and when I open my eyes, I'm getting difference colors coming from all over the board.
EDITED: when I looked at screen it had blue colors on left side like a little kid coloring horizontally. I blinked and looked at screen, then it was red colors on my right side.
then I walk up gain trying rto finish whatI startedl
any of you hve this? does it happen often...thank ou all
[ 30. August 2007, 02:10 PM: Message edited by: bettyg ]
Posted by Ann-OH (Member # 2020) on :
Betty, I hope you are talking to your doctor about this. I think you should call him right away.
There are other problems than Lyme that may be causing this disorientation, etc. I know you are a much better typist than this. I am worried. Please get some help right away.
Hope you get an answer soon. Ann - OH
Posted by Linda LD (Member # 6663) on :
Betty,
You could be having a stroke or something--please call your Doc!
L
Posted by treepatrol (Member # 4117) on :
Your having a serious problem Betty right now get out of your House maybe some sort of poisoning carbonmonoxide or worse both of you go to a neighbors and call your DOCTOR !!!
Your writing is all wacked out not LIKE YOU
Posted by treepatrol (Member # 4117) on :
Get out and get some fresh air !!!If your able to walk.
Posted by treepatrol (Member # 4117) on :
Does anybody live near Betty go over to her house and help her this dose not sound good at all
Posted by Linda LD (Member # 6663) on :
Does anyone have her phone number--CALL HER!
L
Posted by WildCondor (Member # 434) on :
Betty are you there? Are you okay??? I would go to the ER right away if I were you!!!!!!!!!!!
Please update us, and let us know when you get it checked out!!!!!!!!!
Posted by JimBoB (Member # 8454) on :
HEY gang, just saw this.
Vicki, Biting Back is from southern Iowa. Don't know what part of Iowa Betty is from. Vicki is near to Iowa City.
Jim Posted by Carol in PA (Member # 5338) on :
Hi, I just saw this post about Betty.
If you know her last name, you can do a search on the white pages, for Iowa.
Just a thought. I have no idea if the surname is common or not. If there are only a few, I would call some of them, might get a relative or something.
Hmmm, better probably to call the local police department, once you know the town.
Carol
Posted by Ann-OH (Member # 2020) on :
Does Trout know how to contact her?
Ann-OH
Posted by tickedntx (Member # 5660) on :
Betty's last name is very common, and I don't remember her husband's name.
Posted by nan (Member # 63) on :
I have never seen her type as she did in that message! Something is very wrong. I pray someone can get help for her.
Posted by Ann-OH (Member # 2020) on :
I hope her husband is home from work now. Sure would like to know how she is doing.
I tried to get on the Iowa website, but it wouldn't come up. Thought I might find someone to contact there.
I found Kent's phone number at the Support Group site here (that's Trout, right?)I called and left a message.I told him about Betty's post here and asked that if he knew Betty G.please call her right away. Hope that helps.
Ann - OH
Posted by 5dana8 (Member # 7935) on :
I just e-mailed the webb master who may know how to contact her.
just read the time on her post.I hope she went to get help.
Posted by tequeslady (Member # 6832) on :
Talk about feeling helpless. I sure wish we could do something.
Posted by Andie333 (Member # 7370) on :
I feel so helpless...
Hopefully, she's okay...
Posted by charlie (Member # 25) on :
Loribelle's in Iowa, does anybody know how to contact her??
I know we're dealing with a whole state....
Posted by Melanie Reber (Member # 3707) on :
I have emailed her with my phone number... hopefully, we will hear something soon?
Posted by Melanie Reber (Member # 3707) on :
Betty, I see your name in the visitors listing here...are you OK?
Let us know.
Posted by bettyg (Member # 6147) on :
Forgot to say that I don't log off...forget most of time & it's super nice to not have to type my password each time since I'm on here daily. Didn't know my name shows up somewhere.
WOW, guys I sure didn't mean to worry you all!
Police WERE just here; 2 nice, attractive young men. They said I was chatting on a board about how bad I felt, and they wanted to make sure I was ok. ARE YOU SUre? YES.
GOSH, I feel awful for shaking you all up!
When I typed that, I could barely stay awake type...fingers wouldn't cooperate & eyes would NOT stay open. That's when I began seeing blue stripes and I'd blink and it would be red stripes.
Last week had some 24-hr. period of NO SLEEP whatsoever although I have 2 samples of sleeping pills & rx ambien, "but NOT to take every night" so I haven't.
Laid down after this. When I got up symptoms:
completely dizzy, both legs were having tremers/quivering, woke up with a sore throat so gargled good with salt water & now the back of throat is RAW;
I also had a full body massage done yesterday, so the toxins are moving all over. YES, I DRINK WATER GALORE for flushing. When I went, I couldn't walk....left sciatic/thigh knots and 24 hr. stabbing pain.
A BIG HUG to you all for your concern and love that is 24/7 on this board. I love you guys! Thanks during a wierd day.
I'm going out for some AIR right now!
[ 10. February 2006, 08:04 AM: Message edited by: bettyg ]
Posted by 5dana8 (Member # 7935) on :
Betty glad to hear your ok.
Have you ever had the lights flashing in colors before.?
Maybe you could call your doc & let him know about this?
Take care
Posted by bettyg (Member # 6147) on :
Dana, NO, I've never had lights flashing like they were today when I posted. I'll be aware of things and see how things go overnight.
If things get wierd, I'll drive myself to ER since it's 5 minutes from where I live.
GOD BLESS ALL YOU LYMIES FOR YOUR HEARTFELT CONCERN. That's what makes me feel good about this board, YOU care; each of us walks in each other's shoes! I'm signing off internet tonight, back when I get up tomorrow.
I'm up most of the night wide awake watching tv or reading.
Bettyg, Iowa
Posted by pq (Member # 6886) on :
i just read this thread. whew! glad to see your o.k. betty!
Posted by Andie333 (Member # 7370) on :
Betty, I'm so relieved to know you're okay and hope tonight goes without any surprises.
Hopefully, you'll let your LLMD know about this last episode.
For now, I'm just glad you're safe.
Andie Posted by tickedntx (Member # 5660) on :
Betty:
You scared the hell out of us! So relieved to see your post tonight!!
Who called the police on your behalf? I am wondering if one of the moderators had them have you tracked through your IP address. Your internet provider would have been able to tell them where you were, I think.
Posted by tequeslady (Member # 6832) on :
Thank God. You really had us scared.
Posted by Mo (Member # 2863) on :
Wow..
Big happenings around here!!
Betty, I'm glad you're OK now, and you got a visit from two cute cops to boot
But, I'm worried about what you describe and that post you wrote was NOT like you..
I really think you should describe this in detail to your Doc(s)...to be safe.
Mo
Posted by Michelle M (Member # 7200) on :
YIKES, Betty! I just tuned in and about had a stroke myself before I got to the bottom.
So glad you are okay.
This Board's the coolest. Talk about resourceful!
Sure hope you can figure out how to get some sleep. Dunno if that's the problem, but prolonged lack of sleep can bring on some mighty fierce stuff, to include hallucinations. Scary.
Rest and feel better.
Michelle
Posted by breathwork (Member # 567) on :
Hooray for a wonderful outcome!
You had us on the edge of our seats here in cyberland, lady!
I am so grateful that all is well for you...and it's wonderful to see this board so caring and focused as a community!
Carol Ann
Posted by pattiecake (Member # 6424) on :
WOW! the response of the people on this board to help Betty was awesomme! I read this thread and was so scared for her and then got to the bottom where she says she got a visit from the police and was so relieved.
You all are the best. BIG HUGS to you all. THat really touched me. pattiecake
Posted by treepatrol (Member # 4117) on :
Sleep or no sleep Betty you should get examined and you may have had a drug reaction or at least get some blood work and check all blood gases and C02 levels. I have been with out sleep fighting forest fires all night long before.
I went at one fire including the drive home 26 hrs and never had that happen what happened to you the most that happened to me was sleepy and slower moving but my mind was wide awake.
Please get home checked and yourself Okay? And tell the Dr everything your taking.
Posted by Pocono Lyme (Member # 5939) on :
OK Betty. Time to get up now and give an update. You have to let those two cute cops go now.
Ya know, at 103, I can't take this much excitement.
So glad you're OK. Posted by bettyg (Member # 6147) on :
Good morning all you caring people!
Before I forget, who Lou B?, contacted my local police? THANK YOU MY DEAR GUARDIAN AS WELL AS YOU BOARD MEMBERS.
RN, yes, I had flagyl Wed. am..on it 1 wk. now.
Tree, yes, I'll call my PCP this morning & advise him of all I'd been thru.
Another wierd thing happened to me during the night before this all, I got LOST going to bathroom .. ended up in other bedroom not knowing where I was. uffda.
It was amazing to watch you all as a team to work together on locating me without a last name and city! You're each great investigators .. all with a piece of info.
You know I reread my beginning thread & couldn't believe this was ME either, and let the ramblings go as is. Guess I was calling for help and didn't know it.
God bless you all for caring & words of comfort. I belong to a very special group of lymies! Have a good day. I'll read/type for awhile & then back to bed to sleep THEN CALL THE DR. TREE AS I PROMISED.
Bettyg, Iowa
Posted by humanbeing (Member # 8572) on :
Just finished reading all the hoopla. Wow, Betty, so many great friends you have here. As a newbie, it makes me proud to be in your good hands. Posted by Ann-OH (Member # 2020) on :
So glad you are ok, Betty! When someone as good a typist as you makes all those errors in the middle of the day, one has to be frightened.
I hope you are in contact with your doctor. The flashing lights still worry me.
I called Kent (Trout) and left a message in the early evening. He returned my call a bit later and said he would call someone who knew your number. A bit later he called back and said he had contacted someone who would call you.
In the rush, I didn't get the name. I hope you have talked to her, too.
Now I can go have a peaceful breakfast! Ann - OH
Posted by lucy (Member # 7802) on :
Betty, I'm so relieved that you sound OK, but I think it would be a really good idea to just get a check up.
We all know how fast our conditions can change and what if you are really depleted in something that might also help with the sleeplessness.
Looking forward to hearing your voice this AM.
Posted by ebrischoux (Member # 7281) on :
I also followed this thread and I am so happy that you are ok....I am also SO IMPRESSED and BLOWN AWAY by all the genuine concern from the board and how they really went OUT OF THEIR WAY to make sure Betty was ok.....
MAKES MY HEART FEEL FULL that there are still people out there who care....
Posted by sofy (Member # 5721) on :
Just saw this post amd am so glad I didnt see it till there was a follow up from Betty.
Before I starting getting about 5 hrs sleep at night I too had lots of blurry vision and looking at the computer was the worst. I had 3 different pairs of glasses and sometimes none of them worked.
I do think you should talk to your doc cuz prolonged lask of sleep can cause many chronic problems and you need to e sure that is the cause of your present symptoms.
Like everyone else said not everything is due to lyme but lack of sleep can cause our body to deteriorate and then lots of other stuff can happer.
Hope all get better soon.
Posted by vachick (Member # 8353) on :
Betty, Please keep us updated. We are all concerned about you!
Everyone, Thank you for displaying the amazing friendship I suspected from you folks on this forum. Wow, you all are fantastic. Bless you all.
Posted by lymesux (Member # 6248) on :
Betty, glad you seem to be better.
Be careful about being on the computer too long - they bring on my migraines and seizures and all kinds of different colors.
Also - please don't drive yourself to the ER if you are feeling that bad - have someone take you - I just gave up driving these past few weeks after stubbornly continuing when I probably shouldn't. Just please let someone take you.
Let us know how u are.
Posted by bettyg (Member # 6147) on :
Hello to my loving group of lyme freinds!
Had a good 3.5 hrs. of sleep after I left here at 8 am this morning. NO problems during the night.
Called our fire dept. to come for a carbon monoxide check....NORMAL; they checked our carbon detector & it showed NO ACTIVITY at all.
Called my PCP...yes Tree, I remembered! Nurse talked to dr.; GO OFF FLAGYL, and have co2 tested by fire dept. I asked nurse if dr. could called my LLMD & discuss taking me off what LLMD just put me on last wk. She'd try but no guarantees since my pcp is going on vacation Monday.
Called my llmd & waiting for a return phone call when he returns at 130 from lunch. Here until 2 pm when I go to nursing home every Friday noon to visit my elderly friends: 2 - 99 yr. olds, & 1-87 yrs...Mom's friend w/advanced alzheimer's disease. I play dominos w/2 who still can.
MRI/CT scan someone mentioned to me. I had CT done 5+ years ago. I've had ALL the annual blood work done. I'm now on glyburcide for my disabetes 2 med; was on diet & exercise until 1-06 when blood sugars too high for my pcp.
Can't remember if I've had MRI or not...I've been thru so much & memory keeps fading bad. Had for me to talk out loud & made a sensible sentence anymore....struggle for words.
Thanks for calling Troutscout to whoever he called; haven't got that far to track down ACTUAL person who knew me & who called local police.
But do I really have to let these 2 nice, attractive policemen go? My 2 firemen were young & attractive too. They asked hubby how he was; no problems at all.
Will get off here for now; will wait until for LLMD to call me back, but I doubt that. He's not been dependable to me for that; his staff is the pits on sending me my medical reports. Took 3 emails & 1 phone call last time.
HAPPY VALENTINE'S DAY early to all my lyme friends out there; snuggle up with your honey and restore that love that made you inseparable when you made that commitment of yours....
I love each one of you; too bad my 3 brothers who fail to acknowledge ANY of my life-threatening illnesses can not find it in themselves to care just a "little" about me! I haven't been to our sibling xmas for 2 yrs. now.
Bettyg, Iowa
Posted by treepatrol (Member # 4117) on :
ya scared the piss outa me
Now the floors wet Posted by HEATHERKISS (Member # 6789) on :
Hi Betty,
So glad you are ok. I was flippin out!!!!
Flagyl is a problem when it comes to sleeping. I was up most of the nite too.
Glad you got a couple hours of sleep.
Heather
Posted by Lymetoo (Member # 743) on :
Yes, Betty...You have to let those cute cops go!! I'm SOOO happy you are OK!!
I just got here....My new computer crashed the other day and I just got back on today...ARRRGGHH!!! [another disabling virus]
To the newbies... This is not the first time someone has been visited by the police when alert Lymenetters spotted a problem.
Good job, Lymenet!! [PS...Lou B is the board moderator, as in Lou Bachmann] Thanks for going the extra mile, Lou!
Take care, Betty. Let us know if we can help in any way!
[ 10. February 2006, 11:41 PM: Message edited by: Lymetoo ]
Posted by MizMo (Member # 8389) on :
Omigosh Betty, you gave everyone a scare!
Please do check with your doctor about a possible drug reaction. It could be very serious!
And though the ER is five minutes away...is there someone who could drive you? If it gets that bad, I don't think you should get behind the wheel.
*hug*
~~Mo
Posted by bettyg (Member # 6147) on :
Hi gang,
Thanks for the continued messages. Gee, Tree, I guess I'm on cleanup duty now.
I called police dept. to see "who" called in; they have NO NAME; left anonymous!
Ann, thank you so much calling Troutscout/Kent! I sent Kent a note & hope he will reply WHO he called. I do want to thank that person too.
Olympics beginning is going to start now, so I'm signing off FOR TONIGHT; back tomorrow.
My LLMD did NOT call me back; hubby was home all afternoon & no call. Later, my friends.
Betty, Iowa
Posted by groovy2 (Member # 6304) on :
WOW --
You guys are Awsome--
Everyone of you All should be Very Proud of Yourselfs --
What a Great group of Folks --Jay--
Posted by Andie333 (Member # 7370) on :
Betty,
I'm glad you're continuing to feel okay. That's great news!
Andie
Posted by DR. Wiseass (Member # 6777) on :
Glad you are OK, Ms. Betty!
I trust you will just badger your doc until he calls back ?!! This is NOT an insignificant matter and you need to call and call until that becomes clear to him!
Take care of you!
Hugs & Posted by trueblue (Member # 7348) on :
Betty ~ I'm so glad to see you're doing better. Please "DO" get the doc to follow up, k?
When I saw your post yesterday, I tried to figure out how to contact you but only had an email address and thought if you couldn't see the screen... how much good would that do? This lymebrain couldn't figure out the next step. I'm glad the rest of everyone did.
Now... about the 2 cute guys... why don't you keep one and send the other one here? Posted by bettyg (Member # 6147) on :
You guys are just awesome with your continued responses. The newbies got a good taste of caring & how far the members will go to HELP someone in potential trouble & not realizing it like me.
Doc, 1st we had Tutu strutting her stuff, and now your "mooning" butt for all to see. LOL
Yes, I will bug my LLMD. Thought I'd email him ALL my symptoms from that wierd day of my life so we can discuss. I'll STOP FLAGYL AS PCP requested.
I want to get the number of my rx meds down from 19!
Told LLMD that other day, you can stop trental I think he said...have to check my notes since his still haven't been sent to me in 3 wks! LLMD then prescribed 2 more!
BettyG, Iowa
[ 11. February 2006, 02:14 PM: Message edited by: bettyg ]
Posted by bettyg (Member # 6147) on :
[QUOTE]Originally posted by Carol in PA: If you know her last name, you can do a search on the white pages, for Iowa.
Just a thought. I have no idea if the surname is common or not. If there are only a few, I would call some of them, might get a relative or something.
Hmmm, better probably to call the local police department, once you know the town. Carol [QUOTE]
EVERYONE: PLEASE ADD ABOVE WEB SITE TO YOUR FAVORITES/BOOKMARK. I never heard of this before. I used it typing in my 1st & last name plus Iowa. It brought up 2 of us; I was no. 1 listed. I was really impressed. Thanks Carol for providing a valuable resource in an EMERGENCY!
Bettyg, Iowa
Posted by troutscout (Member # 3121) on :
Ok folks,
It was Ann-Oh calling me that day that did it.
I finally got the message at around 9 or so...and then went into action.
Your Iowa friend,,
Trout Posted by bettyg (Member # 6147) on :
Kent/Trout,
THANK YOU my guardian angel for calling the Ames police dept.! I am indebted to you my lyme friend who I met about 2 years ago at lyme support meeting with the legislaturers.
I'm signing off for today; thanks Kent for easing my mind as to WHO called police.
Bettyg, Iowa
Posted by Linda LD (Member # 6663) on :
Amazing story!
I am so glad it had such a happy ending.
linda
Posted by Mlaven323 (Member # 8179) on :
Reading this post was like reading a "Chicken Soup" story! It was truly heart-warming to read the concerns of the members for Betty.
Betty, YOU ARE LOVED!
I hope that you have spoken with your doctor to figure out what this is.
Posted by bettyg (Member # 6147) on :
Yes, I learned and was shown thru this post how much love/concern the lyme members of this board have for me and ALL others on me; I'm not alone .. we walk in each other's shoes 24/7.
I emailed my LLMD this weekend & gave specifics what happened asking him again to call .. NOTHING to date! He's slower than molasses.
I told woman answering the phone Fri. that this was a MAJOR herx & gave her symptoms until she cut me off.
Yes, I agree; this is Chicken soup material; heartwarming.
Bettyg, Iowa
Posted by Monica (Member # 224) on :
Betty, glad your story had a happy ending. Glad you were well enough to notice the cute cops.
If you are on 19 prescription meds, possibly there was an interaction?
When my LLMD prescribed Flagyl, he cautioned about no alcohol. When I said I didn't drink, he said to BE CAREFUL EVEN WITH MOUTHWASH.
Posted by Ann-OH (Member # 2020) on :
Betty, glad you are doing okay. I wonder if anyone other than me knows the meaning of "uffda"
I really got a laugh out of that. Are you Norwegian by any chance? Ann - OH
Posted by trails (Member # 1620) on :
Wow WHAT a THREAD I have missed here...was thinking it had to do with crime and/or teenagers: Boy was I wrong!
What a team!
Glad you are off the Flagyl!
Posted by bettyg (Member # 6147) on :
quote:Originally posted by Monica: Betty, If you are on 19 prescription meds, possibly there was an interaction?
When my LLMD prescribed Flagyl, he cautioned about no alcohol. When I said I didn't drink, he said to BE CAREFUL EVEN WITH MOUTHWASH.
Monica, I wondered abou that too..interaction. 2 weeks ago I completed a special survey for BC/BS thru CARESTEPS, independent hired. I completed detailed survey including meds I was on!
I couldn't just type med/dosage, it brought up ALL the meds for THAT one item, & I had to choose. Took forever with 19 meds!!
Anyway, they had results from survey & MED INTERACTIONS. Started reading about each of 2 meds mixing, but it was DRS. only language except or 2-3 sentences that come with EACH NEW MED giving specifics of reactions and side effects.
Ann, UFFDA, yes, I'm part Norwegian! Did you grow up by Decorah or Story City/Roland? Glad I provided you a laugh, you guardian angel you!
Bettyg
Posted by Ann-OH (Member # 2020) on :
Hi Betty, Not Norwegian, but know lots of them. I grew up nearer to Trout in NE Iowa.
Did spend 2 years at Iowa State, so I know Ames well.
Hope you are okay now. Ann - OH
Posted by bettyg (Member # 6147) on :
Ann, you wouldn't recognize much of it any more.
Roy & Bobbi Reiman, owners of the Reiman garden magazines with NO ads from Wisc. gave ISU $1 million to start a garden S. of ISU football stadium. It is 10 acres & finished now. Has butterfly conservatory with 700-800 butterflies. A great upper for our bad days. I just can't walk it. If I do, take many breaks sitting after 5 minutes! Buck roses beautiful.
Bettyg
Posted by JimBoB (Member # 8454) on :
Betty: Glad you are doing better. Checked in early on on this thread, but couldn't do much myself, glad others could. I only mentioned a gal near Iowa City that I thought MIGHT know you, but didn't know for sure.
She got me going on this list when I met her last November. Her handle here is Biting Back. But the last time she wrote me she was having a setback too, and I haven't heard from her in over two weeks, so just wrote her tonight to check in on her.
Hope she is okay too.
Jim. Posted by bettyg (Member # 6147) on :
Jim, I sent you a PM about BB/V.
Posted by chroniccosmic (Member # 7789) on :
Wow,
You guys are awesome.
This was better than CSI.
Isn't it nice to have folks jump to help you instead of the usual treatment we are all used to. We have to practically beg for help as we drag ourselves around.
Proud of each of you for helping Betty! Posted by bettyg (Member # 6147) on :
PUTTING AN ENDING ONTO THIS THRILLING STORY!
did a search on flagyl which i'll send to a newbie, and since i was on my hair-raising story, wanted to put an ending on it.
ran into my llmd 3-5 months ago, so asked him directly why he NEVER returned my phone call or detailed EMAIL as to my major herx on FLAGYL.
he told me he NEVER received either one! said he'd do some checking when he got back to the office as he'd had OTHER COMPLAINTS OF HIS NOT RETURNING PHONE CALLS!
in one email, i also complained about his RN; not helpful or friendly at all!
llmd never got back to me but i do hope he found the person for NOT giving him my messages so it does not happen to anyone else! Posted by AliG (Member # 9734) on :
Just curious Betty-
What if his RN checks his e-mail for him? If you complained about her, might she have become vindictive & deleted the message & then not given your messages to LLMD?
Chances are good that she could have been in charge of screening to see what Dr. needs to tend to, in what order.
If she is in a position to field her own complaints, that may make her feel beyond reproach.
Just a thought?
Posted by bettyg (Member # 6147) on :
ali, just sent you a pm on another subject.
thanks for your thoughts on this one!
HAVE A SAFE LABOR DAY WEEKEND WHO READ THIS!! ****************************************** Posted by on :
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