Hi Guys Haven't been on in awhile. I had to take a break from treatment due to some unpleasant side affects and my mother passing away - so I've been on hold since December.
I'm beginning to get back some of the major symptoms (I think) that I had prior to treatment.
My skin feels as if I could completely jump out of it. It is severe pain all over and I can't seem to get any relief. This has been coming on for the last three days - getting worse.
Is this from the Lyme or should I be trying to discover another cause. Seems like I've seen this before - but I've never had it so severe. Seems like all the nerves are on fire in my body.
Thanks
I'm getting my letter off to Dr. J, NC attorney tomorow.
Posted by tothepoorhouse (Member # 8595) on :
I feel for you. I've had this in the past as well.
Have you tried taking a warm bath in epsom salts? I found that helped me.
Posted by Nal (Member # 6801) on :
Yep, I know what you are feeling! It was one of my first symptoms and one that still bugs me to this day a lot!!
Nancy
Posted by Areneli (Member # 6740) on :
This is also my symptom. I have improved quite a bit and was helped mostly by Metronidazol and Tetracykline (not at the same time).
Posted by davidx (Member # 8326) on :
Hagen-
I posted on this topic a while back because this is my primary sypmtom (except for me the sensation is localized in my legs).
The drs I am seeing feel that it could be lyme, bart or none of the above. There are medications (lyrica, etc.) which may help with the nerve pain.
When/if you do go back to the dr. I would like to know what they say since I am facing a similar major symptom.
I have been on doxy and then mepron/zithro. I will be starting levaquin in a few days to treat the bart so I am hopeful this might help. Have you been tested for co-infections?
I will keep trying different things in the hope that something eventually clears it up!
David
Posted by Hagen (Member # 948) on :
Thanks Guys
David
I've been on treatment off and on for the last five years. I've run the gammet of all the abx and was on the final round of Zithro and Levaquin when I had problems and stress completely knocked me out.
Since December I've been in a holding pattern - watching all the symptoms come back.
The burning pain has never been this bad - it would only last for a day or two - then it would go away. I feel maybe the stress of my mother's death and trying to help my father and handicapped brother is making it worse.
I am going to call my doctor tomorrow to see if they have an answer to this - if it helps, I will definately share.
We have to hang in there - but sometimes it's a little too rough.
Posted by 5dana8 (Member # 7935) on :
Hey haden
Sorry to hear of your mother's passing. I hope time will heal the pain you feel. My uncle passed away this week and the stress and saddness fattened me too. I have to believe we will all be togeather agian someday
Stress has always been my down fall but how to aviod it? This I don't know.
My faith has helped alot and talking to loved ones helps.
You are in good hands with dr. J as he to has saved my life . He is an angel and I am sure He will know what to do. As long as their is life there is hope.
Take care Never give up - never give in Blessings LOL from me
Posted by sweet pea (Member # 6495) on :
Hagen,
Sorry to hear about your mom, and your burning skin.
It is possible it is a symptom of bartonella. My burning skin stopped after 3 months of Septra and 2 months of Levaquin (plus other Lyme meds).
If you can, take epsom salt baths.
Take care, P
Posted by cantgiveupyet (Member # 8165) on :
im getting the burning now too.... first it was just my right foot..then this spot on my chest..on and off. Now today everything seems to be burning....i cant even tell what on me is burning.
Posted by BJG (Member # 4723) on :
Hi
My primary syptom is skin burning-ALLL over.
I have no doubt that this is Bb and/or one of the coinf.
I wear very loose clothes and sleep in soft sheets.
I take epson salt baths and use the foot detox pads.
The anti- siezure meds may help, although I was on 3600 mg of Neurotin. It did not touch it.
Keep looking for what works for you.
I would also consider Rife.
I have been told it is neurotoxins, so maybe a binding agent would help.
Don't hesitate to email me.
It is difficult when it goes from burning to ON FIRE!!!!!!! Pain is terrible.
It robs your soul.
Peace, BJG Posted by Areneli (Member # 6740) on :
Questran didn't help me so likely it is not from I neurotoxins.
Posted by iceskater (Member # 8655) on :
I am in the same boat. I have been numb head to toe since end of sept. Numb as if I were laying out in a snowbank, no clothes on, and frostbite - evry stinking pore of body is not exempt. I kid not when I say head to toes. I feel like a corpse who has forgotten to die and losing eyesight too. Charcoal, Questran, epsom salts baths- nothing is touching it. Have had lyme just about a year before diagnosed in Feb 05- eight months of ivs and orals- and continuing to decline. Save nothing is touching it. Ativan is helping me cope. I really don't think that it is a herx- think it is disease, symptoms not transient- has been 24/7 since the end of Sept.I am in so much agony every second of my life. Severe joint pain is starting too. sometimes it takes 2 or 3 hours to get out of bed. About all I can do is get on computer a little, get washed, dressed, listen to tv and radio that is it. If anyone has any ideals , I am in the same boat. Thanks
Posted by davidx (Member # 8326) on :
Hagen-
I just started levaquin today...I'll let you know if the symptoms improve or not with this treatment. I am also taking prevacid as the dr. feels the prevacid may enhance the effectiveness of the treatment. In the mean time I just try to deal with this the best I can.
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