I was told from a few Dr.'s that I had CFS/Fibro, well.....Would I have had the results I did have from Igenex, if I did not have Lyme, and only was suffering from CFS/Fibro?
Posted by bettyg (Member # 6147) on :
Hi Rob,
Please copy/paste this post to your other post; they go together ok.
Then come back here and EDIT/DELETE this post. leave topic line BLANK then others can't add to it, and ALL info in the same place.
Yes, results would be the same; you HAVE LYME based upon the positives you showed.
Posted by dontlikeliver (Member # 4749) on :
Hi Boston Lyme,
No, you would not have a positive Lyme test if you had only CFS/Fibro. That is if you even agree that there is CFS/Fibro as a disease on it's own. I am not convinced. I think it is a symptom of another underlying illness. Yours appears to be Lyme if you have positive WB>
Posted by BostonLyme2005 (Member # 7680) on :
I am not sure there is a CFS/Fibro.....
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by BostonLyme2005: I am not sure there is a CFS/Fibro.....
Exactly
Posted by minimonkey (Member # 8693) on :
I'm in total agreement -- CFS/Fibro describes a cluster of symptoms, not a distinct clinical entity -- Lyme is one cause for them, there certainly appear to be other causes, too....
Lordy, don't say that over on the FMS board, though... you'll be banned immediately.
Posted by Foggy (Member # 1584) on :
What does your LLMD think?
Posted by BostonLyme2005 (Member # 7680) on :
The LLMD said at first he thought were I suddenly came down with the fatigue so strongly, that is might have sounded like CFS, but when I told him I was at the shelter for 6-7 weeks in a row with ticks and other bugs on me, brushing them off of me and the dogs, he then said I must have been infected more than once
Posted by BostonLyme2005 (Member # 7680) on :
Foggy,
how is your fatigue situation?
Are you feeling better still?
Posted by klutzo (Member # 5701) on :
I agree with those who said there is no CFS/FMS. It is just a list of the symptoms of various stealth infections, often Lyme, sometimes mycoplasmas, sometimes both, plus coinfections, deficiencies, and reactivated viruses due to the immune dysregulation that stealth infections cause. My dx for the first 3 yrs. was MS. My dx for the next 17 yrs. was FMS. It was Lyme all along. Klutzo
Posted by Foggy (Member # 1584) on :
I agree with Klutz and others. Something pathogenic, viral, parasitic, metals had to trigger the so called CFS/Fibro malaise.
Rob, fatigue has remained better since I took the Mepron in '03. This made a HUGE difference and while I had to pay out of pocket to see this LLMD, it was well worth it. No Babs relapse to date, knock on wood.
Complancency when one isn't improving just wasn't gonna cut it for me. Got to go. I'm off for my 1 mile daily walk. Posted by valymemom (Member # 7076) on :
My sons have started to see a local PCP who for years has treated a large amount of CFS and Fibro patients. A poster here got him to test for lyme thru Igenex and thus became his first lyme patient.
He started testing his CFS/Fibro patients and found out many had lyme.
He has written a paper about the connections and is hoping to publish it in a medical journal.
Posted by BostonLyme2005 (Member # 7680) on :
Hey Valy,
Can you find out where that paper is? What Journal it is published in? Maybe ask the Dr. for a copy so you can post it here? This would be a great help to other Dr.'s and all of us!
Thanks,
Posted by DocLand (Member # 7794) on :
Hi Boston, The doc has written the paper and is now submitting it to see if he can get it published. If it is accepted, it will probably be several months before it is in print. My husband goes to the same doc as valymemom's sons and was one of his CFS patient that is now properly diagnosed with Lyme disease since being tested. Kristie
Posted by BostonLyme2005 (Member # 7680) on :
OK!
Gr8! Keep on it! Let us know.
Posted by minimonkey (Member # 8693) on :
I really hope that paper gets published! There is so much controversy around these topics that it wouldn't surprise me at all if it didn't, though... some of the best research out there has been rejected time and time again...while terrible studies make it to press...
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