Hey guys and gals I'm so sick of this stuff I cant hardly stand it anymore.
I have been to a llmd and i'm waiting for the results to come in but it seems like each day my symptoms get worse.
Just here recently I feel like my hands and feet are vibrating. Feels kinda like pins sticking in my feet and hands.
I feel so stupid like i just sit and stare. I feel so lost everywhere I go. I neverget lost just feel that way. My head goes back and forth like a rocking boat.
When people talk I have a hard time understanding them. My vision looks like a static television. The list goes on and on.
Funny thing is one day I feel good and the next it goes all to hell. Sometimes Im dizzy and my ears ring then its something else tomorrow.
I started taking herbs until my tests come back. Sometime I think they are working but then the nxt day everything comes back worse. I dont know what to do. Heck I even tried some doxy that I had from long ago and it felt like it set my skin on fire. Seems like most of my symptoms get worse at night.
I used to be a nice person care free but now I dont even feel like I know who I am. I just go to work and pray something will change. Thanks for listening to my rambling if I tell anyone else they just think im going crazy. see ya I hope I have better day tomorrow.
Posted by trails (Member # 1620) on :
Totally relate.
Doxy--skin on fire has been noted by others here. I am on Amoxy and my skin started being hot right in this one place and then it spread to my entire legs.
Hang in there---what test reults are you waiting for? What else did the LLMD say? Lyme is a clinical diagnosis, you shouldnt have to wait on test results if there is other evidence of infection.
Each day will vary and that is the rollercoaster I call both HOME and HELL. Sometimes you can have good entire weeks and months though. I even had good YEARS. I intend to have more.
You were very concise and VERY articulate in your post. You have a knack for expressing yourself.
Try to focus on the good moments until you hear more! Trails Posted by lymed (Member # 8708) on :
Hey trails Im not sure of all the test but I do know I had to pay extra for them to go Igenex.
I also know this was tested too but I dont know the results yet cortisol, hep igg and igm, sed rate automated; t-3 resin uptake, thyroxine, tsh,herpes 1 simplex, herpes2 ab, homocystine, lyme titer.
As for what the llmd said was for me to wait for my results and we will go from there. They seemed to think I had it from my symptoms.
Why does the doxy burn so bad. Mine was in my stomach. On the skin not inside of it. It also made my pins and needle feeling worse. I really cant remember though seems like it was ten years ago but really it was just a month. My mind is slowly fading it seems. Thanks for the fast response. Feels nice to speek to people who kinda knows this isnt no joke.
Posted by Michelle M (Member # 7200) on :
Welcome Lymed. Sorry you have to be here, but you're in good company.
Your symptom magnification with taking Doxy is a pretty good indication you have been 'lymed.' I'm only surprised your doc decided to wait on your test results to hand you out some.
I sure know that "lost" feeling. I would get in my car having a picture in my head of the usual destination but not really divining how to get there (despite traveling there regularly). That really will get better. I would generally try to make up excuses if others were around. Sometimes I would pull off the side of the road to collect myself.
Getting everyone to slow down for you is a project too. More than one person talking, or multiple input, is a problem. I cannot even focus on driving if the fan on my truck is blowing, for crying out loud. ONE THING AT A TIME.
Things will start getting better soon. Post here often, as we really understand where you are. Expect some rough times but remember that there's light at the end and now you've found the answer, you're halfway there!
Michelle
Posted by lymed (Member # 8708) on :
Thanks for the reply Im glad to know other people get lost too. It makes me feel like Im mentaly slow or something.
its good to know that it will get better. I think maybe the reason my llmd held off on treating me because they are under alot of heat from the media about overtreating.
I really dont know or care aslong as it get better soon. Its very agrivating though. Seems like everything I try to do lyme just gets in the way. Its like it just knows you are about to have fun.
Just when you start to have fun its like bam lets make his leg hurt. If that dont do it lets make him dizzy or smack lets make him so fatiged he cant walk that will teach him to have fun.
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