LymeNet Flash: Any Success Stories from People who have been DX strictly with Symptoms?

This is topic Any Success Stories from People who have been DX strictly with Symptoms? in forum Medical Questions at LymeNet Flash.

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Posted by hopeandme (Member # 8803) on :

Hi Folks-

I was just wondering if there were any success stories from anyone who was dignosed solely on symptoms?

Thanks for your help!

Posted by 5dana8 (Member # 7935) on :

hopeandme

I was diagnosised on symptoms only in 94. I had a negative Western blot but had every single possible symptom for lyme And every conceveable test to rule out other disease.. I had untreated lyme prior for 7 years,misdiagnosised with CFIDS.

I was given 5&1/2 weeks IV and oral follow-up. I remained in remmssion for almost 10 years.

Hope this helps

Take care

Posted by hopeandme (Member # 8803) on :

Dana-

You have given me so much Hope!!!

I greatly appreciate that! I am so glad that somebody who has gone through this sticks around on the board to give others inspiration!!

Your words are appreciated more than you know!
Hope

Posted by lucy (Member # 7802) on :

Dana,
What was your oral follow-up and how low were you on it for?