posted
Hi- I was taking rocephin IV for about a week and a half when dr. called and said to stop since liver enzymees elevated. That was almost two weeks ago..I still have PICC line in, and I guess they will start something again, but why the long wait? I think they were starting to help, and now I'm back with more twitches, dizziness, insomnia, back/knee pain,fatigue, etc. I heard something about "milk thistle(?)" to help with this.. ? Anyone know about this? Also, do IV antibiotics normally cause this effect or just this particular one ( rocephin?). thanks, Natalie
Posts: 37 | From NJ | Registered: Feb 2006
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Nat. Sorry you're having a pause with your IV. That's really common. I had the same problem, repeatedly, with mine, due to elevated liver enzymes.
Usually a week's rest will return your liver numbers to normal; 2 weeks should certainly do.
Ask your LLMD what liver support support he approves; seems I've seen some great recommendations on here but can't recall right now (milk thistle is just one component).
Ask also - if the wait is going to be much longer - if you should flush your line in the meantime, just to keep things open and flowing. Get a definite answer to make sure you haven't "fallen off the radar" -- !
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Milk thistle would be a good one to take to help the liver. May want to take something to keep your gall bladder from becoming sludgy. Your doc can prescribe actigall or possibly an herb like curcuma. Definitely check with your doc.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Hi Nat,
Sorry to hear you are dealing with the liver complication after going thru getting your piccline.
I am finding with my daughter's dr, who is excellant that we do need to keep phoning them to keep things rolling when they are stalled with complication. (daughter has had a few with picc and also us with the insurance)
Also, researching and suggestion options tends to get them moving as they tend to have strong opinions and dislike a patient getting ahead of the game mentally. Maybe it is also concern that whatever I come up with is a dumb idea.
When you do a lot of research here, your ideas are generally good or at least not ridiculous which gets their attention that you are not just blindly waiting for them to act. Most folks struggle to advocate for themselves when they are dog sick.
posted
MANY, many, many people have lost their gall bladders to Rocephin. Milk thistle MAY help, but if it were ME [and it's not] I would try another abx or ask your dr for some Actigall, by prescription.
I'm not that impressed with Rocephin from hearing all the stories on this board for the past 5 yrs.
As it says below....I am NOT a dr!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
thanks everyone for your advice..I am still flushing my line 2x day, and guess will wait and see until next week's appointment.
To Lymetoo-what do you mean about losing your gallbladder?! is that common with this antibiotic? I am already possibly contemplating losing my spleen due to this ITP, so I didn't want to think about another problem! Yikes! Regards, Natalie
Posts: 37 | From NJ | Registered: Feb 2006
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
Hi Nat!
Gosh, hang in there and like others have already said.....don't allow your "case" to get off the radar of your doc. Be persistent with your presence.
You have already heard the helpmates for gall blader protection. Do a search on Rocephin and learn all you can about what ever ABX your are taking, oral or IV. You do NEED the helpmates!!
There are a lot of success stories with Rocephin....I swear by it!! It has saved my life. Many of the success stories with Rocephin are not on the board here anymore. Many have gone on with their lives.
Good luck and hang in there. If you were seeing good results that soon...I would consider that a very good sign. Nevertheless, it may take several months to get the maximum from the drug and to hold on to the progress.
Healing smiles and laughtr....lightfoot
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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quote:Originally posted by nat: -what do you mean about losing your gallbladder?! is that common with this antibiotic? [/QB]
VERY common. I'm glad lightfoot has had a good response to it. My concern with it is that more often than not, people relapse bigtime after going off it.
Make sure your dr follows up with plenty of oral abx after you are finished with the Rocephin.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Livit 1 amd Livit 2 together, 2 each twice a day, works well for Liver. Cilantro tincture taken just as you start to eat your meals on the tongue, a squirt, helps the gallbladder.
If you have had drugs that affect the Liver and never had a colonic while you are doing them, go do one: you will go into shock as to the black, black liver dumps that come out (after the normal stool). Then you will realize how bad that stuff is in the long run. I would not touch any of the abx IV's again or abx oral without doing lots of colonics and lymph drainages.
Same when you do the herbs. Colonics are a must. You will only believe me when you see what comes out during the latter first colonic. Sometimes it takes three of them before you see it.
Then you will realize what you are doing to your organs. It's worst with pharma drugs, and of course a lot of what I read here, many are taking them for sleeping, for pain, etc.
You cannot do that for a very long time, or you are bound to get your organs into trouble.
Do colonics, do colonics, do colonics!!!!!! at least do that much for your body.
Same when you do parasite medicines, natural or others. Do not do it without colonics. Everything gets stuck in their - the organs cannot process that onslaught!
Kidneys: When they start hurting just a bit on the back above the waistline, bad news. When your urine is not stinky and dark, at least in the morning, bad news. Light colored urine, bad. No matter how much you drink, has got to be dark in the morning. Otherwise sign of their inability to filter properly.
If your complexion just even so slightly goes into the tanned look/last remnants of a sun tan, take it as a warning. Your liver is desperate. That's when you got to take fast action. Organs come only once, last time I heard.
All you have to do is look in the mirror - you don't have to wait for some liver panel. It helps, but the warning signals come earlier. Even the slightest nausea is a sign of liver distress. If the right upper part of your chest is bulged looking and hard, your liver is in distress. You can have your partner feel it. Both sides, left and right should feel the same. Right higher - swollen looking, bad. It was the first thing Dr K. told me to pay attention to when we are not seeing him all the time.
I don't care who your doctor is - if he does not warn you in that regard, he/she should not be doctoring. You cannot be prescribing that hard stuff year after year and expect people to hold on to their gallbladder, kidneys, liver without protecting them so it won't happen.
Neural therapy with Heel hepa is excellent. We got these additives all throughout our treatment - at the slightest sign of it.
Don't ignore it. It is serious. If your doctor doesn't warn you, find another one. I don't care whether he is an LLMD or not. Any doctor interested in his/her patients wellbeing should be on the lookout for this when he writes prescriptions and knows his patients are doing this daily, for months on end.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
Hey Gigi, you might tell us where to get those items.
Thanks for the info on the kidneys. I can relate.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Lymetoo, Livit 1 and Livit 2 you can get from www.Ayush.com. It is an ayurvedic. We use quite a bit of their stuff. They are here in Bellevue, WA. Find the phone number on their website.
Cilantro Tincture is my oldest standby. If taken at night as, a few drops in tea, it works as a mercury detox for the brain. It crosses the bb barrier that is slightly open at night.
If you take it right at mealtime, it supports the gallbladder/liver digestion.
You can get it at Biopure. Only get organic - you don't want more toxins than you already have. 1-800-801-6187.
Dandelion of course in the health food store.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi GiGi
Is an enema-say a coffee enema- compariable to a colonic?
I am in the boonies here and know a colonic isn't within driving distance .
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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