I'll see my LLMD next week and I have a question lingering in my mind for awhile:
Should I ask for or refuse IV Rocephin?
Because from others here I know that IV Rocephin is very expensive and unconvenient, and a lot of people done it.
If it is a must, I'll ask for it anyway.
But I haven't convinced myself why it would be must.
Any input will be greatly appreciated.
Thanks.
Posted by beachcomber (Member # 5320) on :
Everyone is different. Your LLMD will make a recommendation, based on your symptoms. I did start out on IV Rocephin, after a short course of Doxy. It made me quite ill at first but then really kicked some Lyme butt and got me over the first hump. I think it is a good Rx but not the magic bullet, as many relapse after stopping it. I moved on to IM Rx from IV and am doing even better, but the dose and release in IM is not as strong as IV. IV is the big gun and a good place to start, if you can handle it. I herxed my brains out.
Posted by achey (Member # 6284) on :
I have never done Iv rocephin...
I'm allergic to penicillins and apparently the two are closely reactive.....
I've taken iv zith and clindamycin in the past. Now, I'm on iv doxy. I herxed severely on zith and clinda....seizures, paralysis and Er visits...But my infection load was very high!
Iv doxy is getting into my neuro symptoms very nicely, and so far herxes have been managable.
Trust your LLMD, and work with him/her and share your concerns... that way together the two of you and build the best treatment plan for you!
I wish you well!
Posted by david1097 (Member # 3662) on :
No it is not. In fact rocephine is typically only used in severe neurological and heart cases. If you need it, your Dr's will know right away.
The pro's and con's of rocephine...
Pro's It is fast acting and provides deep tissue penetration, including the brain. It works really good BUT.....
Con's There are a number of reports that while it has the ability to kill large numbers of the bacterial quickly, it has also been associated with a higher relapse rate than other antibiotics
It is expensive.
SO...
If you have only mild neuroligical symptoms, you will likely be started on some type of oral antibiotic.
If I where you I would not even try to suggest to the Dr which drug you should start with.
It is his job is to figure that out himself based on your case.
On the other hand if there is a money problem with the treatment that is prescribed, then it would be appropriate to discuss possible lower cost alternatives.
Posted by AZURE WISH (Member # 804) on :
It seems to depend on the dr. and the amount of time you had lyme...
One of the ducks I had put me on rocephin right away....
ONce I found my llmd he started me on bicillin then later added flagyl.
So if I were you and you were thinking about asking for rocephin....
I would maybe do a little research on the medcine ...
and what a picc line entails.....
and see if it is something you are willing to do.
Probaly a good idea would be to talk it over with your dr.
Best wishes Posted by blueskyfaith (Member # 8723) on :
Thank you all and wish you all have a good day.
Upon reading your experience, suggestion and advise, my mind was at once at peace.
Here is such a very good place that I cannot thank you enough.
And I am confident that we will win the war with the help of each other
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