Please tell me your experiences, (what has worked, what has not) with New England LLMD's.
MA, NH, CT, RI, VT, ME?
I would love to hear from you.
Thanks,
Posted by beachcomber (Member # 5320) on :
My MD in CT is great. I think he has used the cutting edge treatments for me and they seem to be working. Can't complain.
Posted by vitch (Member # 8094) on :
CT LLMD and Boston LLMD were extremely kind and informative.
Posted by humanbeing (Member # 8572) on :
Haven't met an llmd I didn't adore. (BOth in CT...both different approaches and bedside manner both passionate about helping lyme pts.)
One does very aggrssive oral combos four weeks on two weeks off. He tests for all coinfections and watches symptoms for treatment changes. Extremely competent but not very warm and fuzzy.
The other has a one abx at a time strategy and thinks that length of therapy is more important than any other factor in getting rid of smptms. Watches for coinfections. Doesn't take breaks unless big herx.
Both don't recommend vitamins or other supps except acidophilus. Both are not big on IV.
Love them and wish there were hundreds more in our ignorant, lyme devastated state.
Best
Posted by Christine202 (Member # 6158) on :
I've been to 5.... 1 in MA, 2 in CT, 2 in NY..
My current NY LLMD is my favorite... I feel this LLMD really looks at the individual and does not clump all Lymies into one catagory.... I didnt find that with the others.
Although he does not actually do alternative therapies he is agreeing and open to whatever else you want to do alternatively in conjunction with abx approach......
It works for me.
Posted by sofy (Member # 5721) on :
All posters:
I wish you would use initials and states so we might be able to guess who the doc is your talking about without pm,ing all of you.
Im not ready to change just yet but always keeping my eyes and ears open to the possibility. I dont know what will happen tomorrow.
Posted by BostonLyme2005 (Member # 7680) on :
Good answers from good people. No one knows what tomorrow brings, hopefully a cure for Lyme Disease and its co-infects.
Posted by kelmo (Member # 8797) on :
It was good to hear your answers. I know we are on the right track. There are very few options in AZ, but we have an LLMD who attends all the conferences with your docs on the east coast, and has his own lab.
Our doc pulled me aside while my daughter was getting dressed and said, "this is going to take a while, but don't lose hope, I have a lot of tricks up my sleeve". Hope. We were just running out of that!
His initials are Dr. F in AZ. Gentle, intelligent, but doesn't talk down. Spends as much time as his office manager will allow (she actually has an alarm go off when it's time to move to a new patient). I'm so impressed, and sounds like you are, too.
Kelly
Posted by BostonLyme2005 (Member # 7680) on :
Thanks,
Its nice to hear from Lymies who are in your area when you are considering options for your recovery....
I laugh at healthy people when they say they are tired!