I was diagnosed with Lyme disease about a month ago after being misdiagnosed with CFS for 3 years. I was bitten in the U.K and my LLMD said the coinfections are quite rare in the U.K, but I have quite a few symptoms. I have requested a Bowen test which should be done in 2 weeks. Do these symptoms suggest a possible co-infection? I didn't really talk to my LLMD about coinfections so it will be good to get a second opinion.
Extreme fatigue Weakness Joint and muscles pain Dizziness, loss of balance and light headedness Mild night sweats and chills Anxiety and panic attacks
Vision problems;- Blurry Double vision Floaters Flashing at night Spots Glare when I look at light (candles, LED's etc..)
Tinnitus Headaches Muscles twitches Chest pain Confusion, disorientation and difficulty concentrating Heart pulpitations Insomnia Back pain and stiffness
And probably quite a few others that I have forgotten.
THE END!
Looking at that list is scarey, I have so many symptoms. I obviously don't have them all the time, some come and go, apart from the extreme tiredness, vision problems and pain.
Would these symptoms suggest a possible coinfection? I am a little worried because Bowen said the blood should get to them within 24 hours when testing for Babesia and the other coinfection, but it takes 48 hours from the U.K, not sure if this will make a difference?
Posted by SForsgren (Member # 7686) on :
They suggest enough of a possibility to me that I would be getting tested for all of them. It's your life.
Posted by NP40 (Member # 6711) on :
Classic babs symptoms in your list.
Posted by WildCondor (Member # 434) on :
If I were you I would get tested for all of the co-infections as soon as you can. Some of them sound like Babesia and Bartonella to me.
You can always call the lab directly and ask about the shipping, maybe they can use serum instead of whole blood? Have you contacted MDL or IgeneX? Good luck with this! Posted by ChrisBtheLymie (Member # 8916) on :
Thanks for the replies.
I will get tested at Igenex or MDL as well, I guess I will need to find a different doctor to request the test because I have the feeling my current doctor was a little annoyed when all the forms came flooding in for the Bowen test. I don't think she understands how important it is that I get tested for the coinfections.
I will phone Igenex and MDL for details.
What symptoms suggest babs or bart in my symptom list? I was looking at the vision problems and got a little worried.
Forgot to add, I have lost quite alot of weight, about 12pounds and I get horrible static vision, can hardly see at night.
Posted by lou (Member # 81) on :
Do you know about EuroLyme? You probably should join this forum, as it is based in the UK and they will know the shipping,doctor routine there. Check in support groups section, green menu box left side of this page.
Posted by ChrisBtheLymie (Member # 8916) on :
Hi Lou,
I have joined EuroLyme, the reason why I asked here is because coinfections are much more common in the U.S, so hopefully alot of you know the signs and symptoms etc... I think I have the Bowen test all sorted. I just got back from seeing one of my old doctors and he been really great, he knows tons about Lyme and I might, if I'm lucky, be able to go on IV for a month.
I will see how it goes, if I don't respond to the antibiotics we know I could be fighting a coinfection, untill then, I think I'm going to wait untill I get the Bowens test results back before I go any further.
Thanks again.
Posted by Corgilla (Member # 4066) on :
Hi ChrisB,
I love your sign on name. Double Entendre and all that.
It sounds like you have things under control.
The one thing that sticks out in your list for Babs is night sweats and chills.
I'm pretty sure that Ehrlichia caused my weight loss but Lyme can do that too.
It's such a pain that so many of the tick born diseases have overlapping symptoms.
I'm still not straight on Bartonella symptoms so I can't comment of that.