Hi I am new here I just was diagnosed with Lymes asbout a month ago I have been suffering for along time since early 1980s. I was diagnosed with everything you can think off. Starting with MS because they found I had Optic Neuritis and experieced alot of different numbness all over my body. Also Lupus because I had the butterfly rash over the bridge of my nose and my cheeks and forehead. Thoraxic Outlet Syndrome they remove my first rib I wonder if this one was related or not. I wondered however, if the arthristis (sp) all over my joints is do to the lymes or to the post polio as the Dr. claims. Severe Fibromyalgia, RSD, which is a burning of your skin all over your body, which is something neurological. I do sufferer of trigemeral Neuralgia which is horrible very painful and it last several months at a time. By the ay it does attack my teeth as it attachs the muscles of my jaws and cheeks forehead. Head becomes numbed. I also have problems with my heart, I get arithmya, and angina I have been in ICU because of it twice two years ago. They didn't know what was going on. Now regarding my legs, this is new about three or four months if I sit for more of 5 or 6 minutes my legs go death on me. I use the word death, because I do not feel the pins and needles, that numbness brings with it. They are completly gone. I have to rubb them several minutes 5 maybe more. in order for the energy to returned back to them. It is very scary now starting to happen when I am standing up in one place for more then a few minutes. Does anyone has this experience? Please if so reply, you can e-mail me if you like. I am glad that this place exists now I can read and become inform. Thank you Posted by BostonLyme2005 (Member # 7680) on :
Hi Elie,
My legs were numb a great deal last year, most days I went to work.
They still are a lot but not so bad. I hope you get some more answers to this post..
Hang in there my friend,
Posted by pattilynn (Member # 8065) on :
I've been numb all over for almost a year. Sometimes I wake up and it's from the neck down. I have it on my face too.
When I say numb, I mean it feels numb(paresthesia) but if I touch it my sensation is intact.
It moves around from day to day but stays in some areas.
Posted by Yemaya (Member # 8842) on :
Yup, numbness here too. My right side will sometimes go numb from my top of my shoulder to bottom of my foot and other various versions.
Also get tremors up and down left leg. Sometimes use a cane for it and for the arthritis in my knees.
Posted by Monica (Member # 224) on :
Sorry to hear about your problems, but not surprised as they are very common with Lyme.
When posting, please break up into paragraphs so that it is easier for us to read. Okay?
Posted by bettyg (Member # 6147) on :
breaking this up for us neuro lymies to read. Please hit the enter button often and double space each paragraph please....thanks! Bettyg
quote:Originally posted by Elie777:
Hi I am new here I just was diagnosed with Lyme about a month ago I have been suffering for along time since early 1980s. I was diagnosed with everything you can think off.
Starting with MS because they found I had Optic Neuritis and experieced alot of different numbness all over my body.
Also Lupus because I had the butterfly rash over the bridge of my nose and my cheeks and forehead. T
horaxic Outlet Syndrome they remove my first rib I wonder if this one was related or not.
I wondered however, if the arthristis (sp) all over my joints is do to the lymes or to the post polio as the Dr. claims.
Severe Fibromyalgia, RSD, which is a burning of your skin all over your body, which is something neurological.
I do sufferer of trigemeral Neuralgia which is horrible very painful and it last several months at a time.
By the ay it does attack my teeth as it attachs the muscles of my jaws and cheeks forehead. Head becomes numbed.
I also have problems with my heart, I get arithmya, and angina I have been in ICU because of it twice two years ago. They didn't know what was going on.
Now regarding my legs, this is new about three or four months if I sit for more of 5 or 6 minutes my legs go death on me. I use the word death, because I do not feel the pins and needles, that numbness brings with it. They are completly gone.
I have to rubb them several minutes 5 maybe more. in order for the energy to returned back to them.
It is very scary now starting to happen when I am standing up in one place for more then a few minutes.
Does anyone has this experience? Please if so reply, you can e-mail me if you like. I am glad that this place exists now I can read and become inform. Thank you
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