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Posted by dcook60 (Member # 5579) on :
 
i heard a segment on a national public radio program today in the car.....an aids specialist was being interviewed. since "a drug cocktail" for aids has been used for the past several years, this doctor stated, aids people are GETTING WELL ENOUGH TO GO BACK TO WORK AND HAVE NORMAL LIVES.

what i'm wondering is.......do lyme people who are treated PROPERLY ever get this much normalcy? aids is supposedly a virus disease, and lyme a bacterial one. why do you think it's so much harder to treat lyme than aids, which kills almost 100% in the end?? just curious, dianne

[ 14. April 2006, 11:19 AM: Message edited by: dcook60 ]
 
Posted by seibertneurolyme (Member # 6416) on :
 
Don't have an answer, just an observation.

One of hubby's PCP's was a "specialist" in chronic fatigue syndrome. He ordered many expensive tests for his patients and most had numerous viruses.

Things like CMV, Epstein Barre, HHV-6, etc.

His primary methods of treatment were oxidative therapies -- IV Hydrogen Peroxide, Blood Ozone, and UVB. Hubby tried all these things and it had almost zero effect on the Lyme and coinfections.

UVB might possibly be of benefit, but this provider charged way too much for this treatment. Would actually like to try this again sometime.

The point is though, that the patients who tested positive for all the viruses GOT BETTER.

Don't ask me why, but I do know it worked for them.

This doc also treated for hormone imbalances but again this did not help hubby significantly -- no matter what we do things never get back in balance.

It just seems to me that viruses are easier to kill, but the difference with AIDS patients is that once the virus actually gets into their brain their time is limited. Also many of them die from Systemic Candida Infections or other end stage organ system failure -- the actual virus itself does not usually kill them directly.

Bea Seibert
 
Posted by dcook60 (Member # 5579) on :
 
thanks for the reply; good observations. i'm unable to think properly anymore, due to all these years of pain. (37 now....)


maybe it's a wonder i can think AT ALL. dianne
 
Posted by dguy (Member # 8979) on :
 
Both AIDS and Lyme are infections of the immune system, but have opposite effects: AIDS triggers weakening of the immune system, while Lyme overactivates it.

Being a death sentence, AIDS is more dramatic, so it gets more attention from the media and research.
 
Posted by tothepoorhouse (Member # 8595) on :
 
I have chronic lyme disease and one of my best-buddy friends has AIDS. We do have similar problems w/health.......he takes different meds than I do. We kid each other that maybe we should switch meds and see if one does better than the other. [dizzy]

Macabre talks...but at least we have one another to talk to and complain without pressure.

He just was informed by his company that he is not to attend any meetings internally or meet with vendors. He's never told them he has AIDS, but I think they suspect and this is why this is happening to him.

At least with lyme, we aren't considered contagious. [Frown]

I want both of these illnesses dealt with by the medical community! [Mad]

For him, his diagnosis usually results in a death sentence. For us, it's a life sentence. [Frown]
 
Posted by duke77 (Member # 5051) on :
 
quote:
Both AIDS and Lyme are infections of the immune system, but have opposite effects: AIDS triggers weakening of the immune system, while Lyme overactivates it.

I don't know if I totally agree with this Lyme can weaken the immune system as well. How many people with Lyme have low WBC etc.?
 
Posted by dguy (Member # 8979) on :
 
I think that's because white blood cells are just one component of the immune system.

It also explains why high dose steroids are so good at reducing our symptoms. Steroids suppress the immune response, and reduce inflammation and the associated pain... at the expense of letting the bugs multiply even more, of course.
 


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