My lovely PCP just sent me a letter saying that my Vitamin D level on some recent bloodwork was very low.
Any idea what causes this? She feels that this low level might be contributing to my persistant fatigue and wrote me a Rx for Vit D 50000 IU capsules one per week for 8 weeks.
I'm not sure but I remember reading something about not supplementing Vit D because of inflammation or something? Had to do with the Marshall Protocol I think?
Any pros or cons to supplementing Vit D? Anyone had any luck improving symptoms?
Thanks!
P.S. My PCP is not LL but very openminded and lyme-friendly. Just wondering if her recommendation would contradict lyme treatment? I will inquire with my LLMD.
Posted by pomegranite (Member # 3339) on :
Reportedly one of the most natural ways to get lots of vitamin d and an immune boost is to buy ****ake mushrooms (which are natural immune system boosters) and turn them over with the underside of caps face up in the sun for 4 hours. Then cook and eat. They concentrate Vitamin D in a very bioavailable healthy form.
Pomegranite
Posted by meg (Member # 22) on :
Yes, well this could be a controversial subject at best--but since you have no answers yet, I'll give my opinion.
I would consult my LLMD for his/her take on this for sure. My personal belief is that we lack many vitamins and nutrients, one being vitamin D.
That said, I believe that the effectiveness of the Marshall protocol lies in the Mino itself.
Could Vitamin D interfere with the Mino and thats why the protocol works? Do you need inflammation for Mino to work? I have no information on any of this, but would love to hear from someone who knows.
Here's Dr. Mercola's take on this subject-- Vitamin D and inflammation Posted by pomegranite (Member # 3339) on :
Weird...I don't know why my message showed up with ***'s instead of the name of the mushroom.
I didn't type it that way. I was just alerted to this fact by a pm that asked why I wouldn't name the mushroom.
****ake mushroom upside down in the sun!!!
Pomegranite
Posted by pomegranite (Member # 3339) on :
Ok I get it...this board must be autoreplacing 4 letter allegedly obscene words with stars.
So think of the four letter word for caca or fecal matter and put those four letters where the stars are in front of "ake"
that's what belongs where those stars show up.
The problem with attempts at censorship is that they never really work the way they are meant ...
Here let me try this... put the word together there is no space between when its spelled properly
shi take
Pomegranite
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by pomegranite: shi take
[/QB]
This is cracking me up!!!
What I want to know is are most of us low in vitamin D or high?? I think i'm going to get tested to see what mine is. It may make a difference with my granulomas.
Posted by tabbytamer (Member # 3159) on :
I'm chuckling too. Good thinking Pom on a way to finally get the mushroom name out there
My bloodwork just came back low in vit D also. But my LLMD suggested I supplement with vitamins. I haven't decided yet.
Posted by bettyg (Member # 6147) on :
The www.marshallprotocal.com has extensive info there about vit. D and the other D one; explains what is going on.
You can get your daily dose of vit. D from the sun but protect yourself especially if your on doxycycline.
Lymies are HIGH; I brought mine way down, and beginner LLMD wanted to put me on vit. D pills too; I declined.
Posted by tabbytamer (Member # 3159) on :
betty,
I can't seem to get to any info at that marshall protocal site.
When you say Lymies are high, what "D" are we speaking of?
I was tested for Vit D 1, 25-Dihydroxy, which was "normal" at 44 pg/mL (reference range: 15-60)
and
Vit D, 25-Hydroxy, which was "low" at 18 ng/mL, (reference range: 20-100)
Posted by Bluetick (Member # 8467) on :
Thanks for all of your input and the tip about the mushrooms.
Vit D, 25-Hydroxy was what I was tested for and it was 10 ng/mL.
Posted by elle (Member # 7721) on :
I received my prescription in the mail today from my dr. My level was 7. She is a llmd and is working with me on some hormonal/gyn issues.
At 47, it is hard to distinguish the peri-menapause from the lyme symptoms. But the distinction needs to made none the less. I have no desire to take abx for hormone issues nor hormones for lyme symptoms.
She also noted to avoid supplements containing more than 2500 IU of Vit A.
elle
Posted by trueblue (Member # 7348) on :
pomegranite ~ I'm still laughing about the sh*taki mushrooms. I sort of want to see what other words get autocensored. Ok, not sort of am dying to make up a list of certain words contained in others to see what happens. Obviously I have too much time on my hands.
I came looking for this subject today. I was called a few weeks ago and told I was Vitamin D deficient and needed to add 1000 IU of Vit D-3 (without vitamin A, eg. from fish oil).
I finally got the test results and they were as follows:
Vit D, 1,25-dihidroxy = 57 (reference range 15-60)
Vit D, 25-hydroxy = 14 Low (reference range 20-100)
As far as I can tell your VitD 1,25 comes down as the VitD 25 goes up.
I'm taking the 1000 IU recomended and getting another 400 IU in my multi. I have not been retested only told to keep going. I'm not sure this amount is enough to raise the low level any time soon.
(From what little research I did, I believe this amount is about what's needed for someone my age and gender to just maintain the level.)
I was cautioned to add the Vitamin D slowly but haven't had a problem so far. I don't know what the reaction to a dose of 50,000 IU would be.
I felt better after starting the vitamin D3. Additionally, my twitching went away for better than 3 weeks. I'm not sure why but I'm not unhappy with that. (The twitching returned briefly after a bout with the flu and a z-pak of Zith, but seems to have subsided again.)
Anyway, not sure that's any help but just another person with low D level and perhaps most of us are. No one ever tested me for that before.
Do check with the LLMD and see if they (LLMD and PCP) can agree on the best way to address the problem. It may be they agree or decide to attack it slower.
Posted by Bluetick (Member # 8467) on :
Hi all,
thanks for the responses. I have been doing alot of reading that has led me to a bunch of info about the MP.
Given that, my D 1,25 level 'should' be high even though my D 25 level was low. I am going to have my PCP check that when I see her next.
My LLMD said that he certainly wouldn't discourage me from supplementing but to be aware that the jury is still out on the different types of D and the role that they play in inflammation. He said that supplementing D might increase the D 25 level but then it will essentially be "feeding" the bugs because they will be happy to convert it to D 1,25.
He doesn't fully subscribe to this because there really isn't a ton of scientific evidence about this but some of his collegues do. Fodder for thought.
Posted by dguy (Member # 8979) on :
I suspect most people infected with Lyme will have low 25D since the bacteria are busily converting it to 1,25D.
The following article explains this from a Sarcodosis point of view. Sarc bacteria share many similarties with those of Lyme:
![[lol]](graemlins/lol.gif)
![[Smile]](smile.gif)