posted
Hello fellow Lymies.This is my first post. Even though I have been reading for months.. as much as my eyes will hold out for and feel like I know some of you....Anyway...I have been misdiagnosed for years. Like many of you my pain has been almost unbearable. My doctor put me on a new drug called Lyrica. It is used for neuropathy in diabetes. It has been a God sent... The first day after takeing it I got out of bed and walked into the middle of my living room...before realizing that I did it with no groaning, grunting or pulling myself up. It does make the head feel foggy....but thats a normal state for me....anyway...just wanted to share in the hopes it may help others.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi,
Thanks for sharing your good reaction to Lyrica.
I'm curious whether you had ever tried Neurontin? I couldn't tolerate even tiny doses, so I have been scared to try Lyrica.
But burning neuropathy, head to toe, is my most uncomfortable symptom. I also have muscle aches. It sounds like Lyrica is helping you with muscle pain, primarily - is that right?
My internist (not my LLMD) wants me to try Cymbalta, which is supposed to help neuropathy, too. But it is contraindicated when taking quinolone antibiotics.
I appreciate your feedback and the posts of others who have received help with neuropathy symptoms.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
Hi Jill The Lyrica helped with all the pain not just the nuropathy ( which feels like lava or hot lead being poured through my extremties). I have never tried the drug Neurontin you mentioned...I have however been on cymbalta...It was not good at all for me. It really increased my mood swings....boy did it Best Wishes
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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posted
I think Neurontin is supposed to do the same thing as Lyrica - can't say for sure though. My insurance pays for Neurontin but not Lyrica and Ly is $121/month.
-------------------- Pam Live well. Laugh often. Love much. Posts: 53 | From Ohio - south/southeast | Registered: Oct 2005
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posted
Yes it is expensive (lyrica) my insurence pays or at least untill they fire me...which will prob be this week.....Love your quote by the way
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
hey bubbear, im going to be fired soon too.
i was given this by my uro for my bladder pain. I could handle 25mg a bit...but i was very clumsy while on it. they tried to increase the dose to 75mg and i was drugged...it was really bad.
it didnt really do much for my symptoms....i did feel a bit more relaxed on it but that is it.
im glad that you are getting some relief
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I take 50mg twice a day....It took some getting used to...I still get real foggy at times.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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posted
I take Lyrica at nite, 100mg. Helps with nerve pain and getting into the deep sleep for immune repair. I couldn't take Neurotin, have been told Lyrica has less additives, less fillers. Maybe that is why I can handle it better.
Don't be scared of it
Posts: 315 | From USA | Registered: May 2005
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posted
My neuropathy felt as tho someone had peeled the skin off my legs, then salted the wounds. On my face it was buzzing, crawling and stinging. I think I would be dead if not for Neurontin. I take 2100mg day plus 25mg Elavil. It isn't completely under control but that little dash of Elavil (amitriptylline) was a major help. There are side effects to the N I don't like. Weight gain and sometimes tiredness and drunk feeling. I prefer these to the pain. I am on generic N now and doing okay but when they switched generics I couldn't tolerate it -- felt like someone steamrolled me -- so I can only take one manufacturer's brand. I am now on Medicare and Medicaid, so they cover it. When I could work I maxed out two credit cards just for symptomatic relief from pills!!
Posts: 459 | From Connecticut - just across the river from the Lymes (Old Lyme, Hadlyme, East Lyme, South Lyme & Lyme) | Registered: Oct 2000
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posted
It is wonderful when you find something that helps.
I couldn't tolerate Neurontin either. For me Topomax helped without the side effects. I am hopeful that soon I won't need it but for now it does make things bearable most of the time.
I take my Topomax with a side of Elavil too.
-------------------- Lucy Posts: 342 | From Hawaii | Registered: Nov 2005
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