Started me on Minocycline 200 Mg and to slowley ramp up to 400 Mg a day over the next two weeks. Supposed to add Zithromax to the regiment after 2 weeks. From there we then will start treating Babesia because he said he is sure i also have babs (running test through igenex for babs and barts).
Plus sent off other tests to MDL for Mycoplasma panel #338 along with a few other tests through MDL. Hopefully we get some answer here to fight what i have. Feel very weak since started abx. Mino makes you dizzy like hell.
Any other ideas of what i should be doing to increase energy level while being treated? I take magnesium and oxydifulis. should i take cats claw also? TOA free? parasite clense?
Posted by BostonLyme2005 (Member # 7680) on :
Hey Luke,
I just got my MDL labs back, panel # 420, NEG!
I have to lean towards Igenex now!
Posted by JeffM (Member # 8919) on :
Luke, Everyone is different. We can share our experiences, and you and your doc will have to decide. It is wonderful you got in and are starting treatment.
When I was working and had to function, I took tramadol for pain and provigil to combat fatigue. They both worked for a long while, but then my LLMD ordered rest for four months and I took a leave from work. I have not gone back, got disablity fairly quickly, and have been "resting" with abx etc. treatment for a year.
For me, I could not work while being treated and will probably never return to full time work because the stress can trigger a relapse.
The problems are different for everyone. for me it is the unpredictability of fatigue, pain and some of the neurological problems that developed while under treatment. I don't take provigil, because I don't want to just cover over the symptoms and add yet another chemical to my system.
What I am saying is the fatigue and herxing symptoms may get worse, and you should have a back-up plan -- either going slowly with treatment, and/or taking a break from work.
I get confused on this site sometimes because people say they are herxing big time, but they are still working, doing chores, and going shopping. I realize not everyone can shut down, but I didn't have a choice. So pain and fatigue are relative. I have had to stop working, rest at home, sleep when I need to, as part of the healing process. And I am just starting year two. And if anyone who reads this thinks we are rich and this is easy ... well, we are typical working middle class family. I still have children at home. My wife has had to find a job to support us. Etc. etc.
Lyme changes everything. It took me a number of months to realize that this disease is catastrophic and life threatening, and so to come out of my denial ("I'll just treat this for a while and it will go away ...") and put my health number one.
Some people here have had to move back with their parents. Their kids have to visit them in the bedroom, and become much more self sufficient. It's not what we want, but it is what we have been given, so we do the best with it.
So this may be way off base, but it is the bigger picture -- for me and many on this board, many others who don't do the lymenet thing.
Posted by Carol in PA (Member # 5338) on :
Luke, I have been looking for something to help with fatigue for years.
"From Fatigued to Fantastic," by Dr. Jacob Teitelbaum, has excellant information.
He also has a website, with all the information for free. https://www.endfatigue.com/home.nsf (You need to check all the links to find what may help you.)
iHerb.com carries some of his supplements, at a reduced price.
Don't overdo the mino .. allow your body to adjust. If you're not tolerating 200mg, I wouldn't suggest ramping to 300 ... just my non-medical suggestion.
Posted by david1097 (Member # 3662) on :
IM b12 made a tremendous difference for me. It was the only thing that kept me going in the early days.
Posted by Lymetoo (Member # 743) on :
Oh YES! B-12 too!!
Posted by Kentucky Girl (Member # 8587) on :
I give myself Vitamin B 12 with glutathione shots in my muscle, it hurts going in but helps sooooo very much.
A friend has started the mangosteen (sp?) and she says it is helping.
Posted by karatelady (Member # 7854) on :
The ONLY thing that has helped me and I mean I've tried everything for fatigue is Xango juice. Its a Asian fruit not well known in this country used for medicinal purposes.
I've been reading about it on Lymenet and other places but didn't want to do the Multi-level marketing part. A friend sold me a bottle and, I kid you not, two days later my husband came home from out-of-town and said he had his wife back. That was a week ago!
I just can't believe how much better I feel -- the pain is still there but that will take longer. The fatigue was what was killing me. I could barely walk from point A to point B.
Now I'm out doing my garden, almost not needing a nap and mentally feeling like doing things again.
I can't say enough about it.
Sandy
Posted by WildCondor (Member # 434) on :
For me the best things have been Methyl B12 shots daily for many months, Cordyceps, B vitamin injections, magnesium and the low carb diet! Exercise is also key.