LymeNet Flash: lyme story in PA newspaper

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Posted by company81 (Member # 5895) on :

I finally got up the nerve, and believe me after all the pain and agony i have daily, i decided its time to tell my story.

How it all started was an article appeared about west nile virus and i was appalled at the amount of money given for spraying for mosquitoes.

i wrote the author and he in turn wanted more info on my illness, and it turned into a video form too.

www.dailyitem.com and it was in there last tuesday june 6, 2006. Although the video was done on high speed, I still have not seen that portion of it.

mary

Posted by trails (Member # 1620) on :

WAY TO GO MARY!!!!

I was struck at how brave you are to show how vulnerable this disease can make a person become. It was very touching to watch.

Of course I am angry that they REALLY misquoted the stats about the rash though! [Eek!]

In the most recent data, only 10% of patients are showing a rash. not 90%!!!

You are a hero for raising awareness in your small community!

Posted by secondtimearound (Member # 7249) on :

Great Job Mary! Hang in there and if there is anything I could do to help, send me an email at [email protected].

All My Best,
Scott

Posted by 5dana8 (Member # 7935) on :

Great Job mary

I am so sorry about your suffering
are you in treatment now?

Hang in there [group hug]

Posted by bettyg (Member # 6147) on :

Mary, I wasn't able to view your story since the media player wouldn't work, but I do want to THANK YOU personally for you & other woman to have taken the time and COURAGE to tell your stories about lyme disease.

We will no longer be quiet anymore. Hoping to see it someday when all my software problmes are finally worked out like they were earlier. [Smile]

Posted by treepatrol (Member # 4117) on :

Iam proud of you.

Tears rolled down my cheek while I watched.

Posted by company81 (Member # 5895) on :

Thanks for all of your encouraging words, I needed that.

5, yes I am in treatment and have been for 3 years, had IV therapy for 4 months, but have found the orals do so much better.

I do have the babesiosis and have had good luck with mepron and ketek, but can no longer use either due to the massive sickness that hit me last october.

I know the video only works on highspeed, and I don't have that either.

The positive reinforcements from everybody is always a welcome relief.

Thanks to all
Mary

Posted by elle (Member # 7721) on :

Good job Mary!

Tell it again and again.

They will listen, if all of us keep talking, someone will hear.

The victories are small but when you put them all together, they are starting to mount up.

elle . . the eternal optimist

Posted by Mlaven323 (Member # 8179) on :

God bless you, Mary!

At the end of the article, there is a question, "Did this article meet your expectations?"

Well, I wrote my reply saying that the bulls eye rash is NOT that common, that Lyme is transmitted by other vectors, that LD is often misdiagnosed for other diseases such as FM and CFS, and that it is best to try to locate a LLMD and receive the proper testing.

Maybe more replies would push the author to print an addendum to correct some statements.... [Roll Eyes]

Posted by company81 (Member # 5895) on :

Mlaven, Thanks for speaking out too. I have not seen the video yet, i was supposed to get a cd from the paper, but the guy is on vacation this week. I do recall of balling at the end, it was a bad day, and i wanted to say more, mind you this was the 2nd day he had come out.

Please do reply to the writer, we need to keep people aware and awake of this devastating disease.

We shall all perservere.