no shock really. It appears this was done in house at the hospitals pathology lab. They did a stain and no spirochetes were seen.
They spelled lyme ...lime. So lame.
The NP said the mast cells that are present are common for IC. Then said to take doxy for my urethra pain.
She said no lyme in your bladder.....i laughed.
Posted by TerryK (Member # 8552) on :
Yes, lame is right!
I believe IgeneX will look for lyme in tissues. At least a person told me that they will. My mother has agreed to have her heart tested if she dies before she gets better.
I'm not sure but I don't think they can say with certainty that you don't have lyme in your bladder just because one tissue sample didn't show it. That's aside from the fact that they might not be able to find it because they are possibly incompetent. How frustrating! Terry
Posted by cantgiveupyet (Member # 8165) on :
yes igenex will look if you can get your dr to submit it.
this hospital has a policy they arent allowed to send samples out....it would have to be cleared by the board. Lame again. Posted by company81 (Member # 5895) on :
Cguy, I recall all your identical bladder problems that i have, and i finally had an implant put in. it took years in the making, but with the tests, all the different drugs, and nothing helped, except large doses of pain meds to ease the agony.
They just hooked me up yesterday, so only time will tell.
I know some have had resevations about this procedure, but what do you in the meantime.
as your name says cantgiveupyet... don't just keep on fighting, until you get the right answer. mary
Posted by 5dana8 (Member # 7935) on :
Cant
First I have to say Grrrrr! lime
It is my impression that unless they actully hit a piece of Bb body part it won't be seen. The bladder is a large organ and they probaly took a small piece.
It's like a real cr@p shot to find a body part in such a small sample.
I learned this recntly when I had a very small piece taken out of my stomach and sent to MDL.
Hang in there
Posted by 5dana8 (Member # 7935) on :
Sorry DD post
Posted by Foggy (Member # 1584) on :
Can't, I'm not surprised at all. I will say that my Uro said I had IC, possibly triggered & exacerbated by Lyme. It improved greatly with Elmiron, and not abx, so she was right.
Posted by cantgiveupyet (Member # 8165) on :
im leary about the elmiron as it coats the bladder and i was told prevents abx from targeting the bacteria.
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