When I was a young child(5-7 years old) I was bitten by a tic. I developed a bullseye rash - red ring with light center. I was sick - very sick but have little other recollection about the event. As far as I know it was never treated. I am now 35 and have experienced over the years periods of extreme fatigue, migrating joint pain, brain fog, poor memory, headaches. The joint pain has become much worse recently - I even went to the E.D. to be treated for it. The fatigue has kept my from full-time employment. I have a Doctors appointment July 12th for it. Does anyone think this could be lymes disease? How could I go nearly 30 years with no symptoms severe enough to seek medical care? Any thoughts?
Posted by Lymetoo (Member # 743) on :
I'll send you the link to my story....it's not updated...but will let you see how it can go "undiagnosed" for more than 30 yrs. It was 42 yrs before I was dxd.
Look for a Private Message.
What is E.D.??
Also, the regular tests given for lyme by "regular" drs are not reliable. Waste of money in most cases. You need a test thru Igenex Labs in CA.
Borellia are very sneaky bacteria. They can lie dormant in your tissues in cyst form and come out when conditions are right for them to grow. They are slow growing. They disseminate into nooks and crannies very quickly and are very good at hiding from your immune system because they can readily change form and for other reasons which you can read about. Very complex bugs. More complex than syphilis and much is not known about borellia.
I was bitten at age 5. Sick off an on. Became disabled in my early 30's. I believe my illness, and that of my family is related to tick borne infections, specifically borellia along with some co-infections like babesia and bartonella.
I think it is very common for a scenario like yours to exist with a person who has lyme disease. Especially considering that a tick bite is not taken seriously and lyme was not even known about when I was bitten. This is the case for a many of us who contracted a TBI and were left untreated for decades.
With your history, I'd definitely see a specialist who can do a differential diagnosis and run all the proper tests at the proper labs. Someone who knows how to interpret the test results because most doctor's do not. In short, an LLMD (Lyme Literate MD). Go to the seeking doctor's section of this website and find one in your area that is recommended by other lyme patients.
Read the newbie links on this site. Terry
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by TerryK: I think it is very common for a scenario like yours to exist with a person who has lyme disease. Especially considering that a tick bite is not taken seriously and lyme was not even known about when I was bitten.
Exactly.
Posted by elley0531 (Member # 9434) on :
I had Lyme when I was 9...got treated and knocked it into remission.
Now, 16 years later (16 years of absolutely NO lyme related symptoms mind you) I am here with all new lyme symptoms.
I was unsure at first whether it was lyme, and stumbled across this forum (thank god) while researching what could possibly be wrong with me.
Now I keep putting pieces together, like I started to take my body temp regularly. I always feel feverish but my temp will say 96.6 or 97.2...
My suggestion...start righting down your daily symptoms and temp readings while looking for a LLMD to treat you.
Posted by tiff423 (Member # 8957) on :
quote:Originally posted by elley0531: Now I keep putting pieces together, like I started to take my body temp regularly. I always feel feverish but my temp will say 96.6 or 97.2...
Elley-
What does that mean? I have had that same temp problem since childhood. I'd feel so sick, but DR's always said my temp was normal. But, my normal isn't 98 like most people, yet DR's never believe me...Is this a freak symptom of Lyme, too? Thanks! -Tiff
Posted by minimonkey (Member # 8693) on :
Lots of lyme folks have low body temperatures -- I've heard the theory that it is because Lyme thrives better in lower temps.
Mine had ALWAYS run low -- like 95 or 96 degrees at times -- until recently. Now I run 98.6, roughly ... it used to be that the only time I had a "normal" temp was when I was sick!
Just a thought -- the hot/cold phantom fever/sweating thing is very often associated with Babesia.
Posted by Lymetoo (Member # 743) on :
I think the body temps are also low because of what the Lyme has done to your thyroid gland, adrenal glands, and possibly your pituitary gland.
I wouldn't worry TOO much about those unless you've had Lyme for quite awhile.
Posted by johnnyb (Member # 7645) on :
Add me to the list too of people who feel like they have a temperature, but it is actually a little low.
Posted by elley0531 (Member # 9434) on :
Tiff-
Yes low body temp is a symptoms of Lyme or coinfections. I am currently being treated for Lyme only, but I'm going to ask my LLMD about coinfections next appt.
Posted by Lymetoo (Member # 743) on :
Where's "regnurse"??
Posted by Nal (Member # 6801) on :
I too just sent you a PM
Nancy
Posted by regnurse2003 (Member # 9583) on :
Here I am!. Tried to have a nice day at the beach but can you believe it rained. I don't know of any LLMD's in Maine yet but I am searching. Just sent an email for a physician referral hopefully will hear back soon. I'm starting to fear the worst! But, I would rather deal with a devil I know than a devil I don't know. Hope this message finds everyone in good spirits and feeling well.
Posted by NP40 (Member # 6711) on :
Nurse, you can go over to the "Seeking a Doctor" section of the forum and post your doc request there. Someone will send you a list of doc's by Private Message.
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