Topic: PLEASE >>ANY INFO FOR MAN LABELED WITH PARKINSON"S
daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Hello guys
I have met a man in my town who has been labeled with Parkinson's. His lyme tests have come back negative. He wants to perhaps pursue the lyme diagnosis but he would very much like to speak to someone else who has been labeled with Parkinson's and then was treated with antibiotics and fared better.
He desperately wants to talk to someone in a similar situation ...or if he can't talk to them, he would at least like to hear of stories of others who found out they had lyme.
Any help or advice would be so appreciated Thanks so much Margie
Posts: 1176 | Registered: Oct 2002
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posted
There is more than one published medical article on this subject. Also, in Art Doherty's links, he had a lot of Lyme misdiagnosed as....... a bunch of different things, inc Parkinsons.
Also was a story in the now defunct Spotlight on Lyme by someone in this situation. I could hunt around and try to scan it if you don't get any other responses.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Why don't you pull up some discussions here on Lymenet? It's been discussed many times.
My father was dxd with Parkinson's and I believe he actually had lyme, or both. My diagnosis came too late to help him. We had no clue it could be Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Thanks...I will search around on this site. I was just hoping that someone here was once diagnosed with parkinson's so that this gentleman could hopefully contact the person.
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
You may tell the person that every patient that came in with a Parkinsons Disease diagnosis to www.neuraltherapy.com, has upon starting body cleanup treatment come up with a positive Lyme test.
I know many with Parkinsons symptoms, including my husband. But be aware, that never is the cause only the infection of Lyme and co-infections, there are always other toxicities involved that are the underlying causes for the intruding microoranisms.
He/ she would have to address Lyme and co-infections while at the same time addressing heavy metal toxicity, dental infections and root canals, viruses, parasites and some other players. ABX and addressing the Lyme infection per se only, will not bring permanent improvement. I have not seen it happen with any Parkinson symptom patients -- have met a bunch of them! besides my husband.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Have the person read this very long response I posted yesterday regarding hubby's experiences with Parkinsonian tremors/myoclonus/seizure-like episodes.
If they are interested in talking send me a P.M. -- hubby will try to help. He will be 51 this month -- was 45 when first became ill with tickborne illnesses. No rash -- just had mild flu-like symptoms initially for a month or so before tremors and G.I. problems began. All Western Blot tests negative, but he does have a positive PCR for Lyme and a positive blood slide for Babesia.
Tried several Parkinson's meds which did not help his tremors and a very strong anticholinergic (Artane) made symptoms much worse -- he developed Parkinsonsian shuffle when walking and was almost to the point of not being able to move at all.
Sometimes it helps to show the person or caregiver a list of symptoms or research. It may help them to bind together several symptoms that the person recognizes (misdiagnosed) as something else over the course of years.
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Thankyou Bea, Boejr and everyone. All that information is a big help and Bea, I will let you know if he wants to speak with your hubby.
Thanks again so much Margie
Posts: 1176 | Registered: Oct 2002
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