I have started up Biaxin 1000mg for Babs and perhaps lyme cleanup this week after a month long break after 15mos continuous abx.
My Reynauld's has kicked up. It hurts to type and I am really cold all over and especially fingers and neck. Back to gloves and scarves in summer! A little cranky.
My question is do you think I can go down on dosage without causing a problem? I am trying to get good low-level herx going so I can take care of kids and honestly not suffer so much as I am getting tired of it.
Is the main risk getting developing resistance to Biaxin? Is that a big problem as I have already taking it for longish periods and have other options to try if this loses effectiveness?Have not done my required round of Mepron yet. Coming up...
I will go to previous LLMD next month as I am not going to Dr. J, Charlotte anymore due to insurance changes. So the Biaxin alone is kind of a stopgap measure. Using up my supply with dr.s OK.
Thanks,
Char
Posted by bettyg (Member # 6147) on :
Char, I was on 500 twice a day; 12 hrs. apart; so 1000 was what I was taking BUT I was being pulsed by the beginner LLMD.
pulsed meaning 3 days of biaxin; 2 days off; 3 days of doxycycline, 2 days off; then start biaxin again.
Do you think 3 days on; 2 days off might help your herxing?
I'm NOT A MD; just my personal experience. Biaxin didn't affect me, but doxy sure did!
Posted by shizuko (Member # 8213) on :
Biaxin 1000 mg a day every day sounds like a suicide to me!!!
I started with 250 mg twice a day (with Doxy 100 mg twice a day) every day in April, and by early May I started having repeated episodes of fainting.
My LLMD reduced both in mid May because I was having too much flare.
Since then, for over a month, I was taking Biaxin 250 mg once a day only on Monday, Wednesday and Friday, and one Doxy 100mg daily.
I am slowly increasing Biaxin and currently taking 250 mg once a day for 5 days per week (skip Tue and Fri), and I am having really bad headaches for almost 2 weeks with this tiny bit of increase.
My LLMD always says it's a "balancing act." You want to kill the bacteria, but you don't want to cause too much inflammation all at once, which could be actually harmful in some cases.