I was happy with the story our local news did on my son Cameron. Here is a link to the story that they did! I think they did a great job and hope this helps spread the message in Michigan.
What a fantastic story - thank you so much for sharing it. It brought tears to my eyes when I read it. I am so glad the article talked about your frustration with Cameron getting properly diagnosed and some of the other pitfalls.
Alison
Posted by lymedesign (Member # 8791) on :
Amy,
Your son's story brought tears to my eyes. What a handsome young man he is. I wish him the best and hope for his continued recovery. It does break your heart when you watch your child missing out on "life". He should be doing all the things you mentioned in article. He has the RIGHT to be a normal teenage boy.
When is America going to wake up and realize that this disese needs immediate attention. I have two boys the same age and thank God everyday for their health. My daughter is the one suffering and I will never again take for granted what it is like to have a healthy, happy child.
Your story will enlighten many I am sure. Possibly even save someone else from misdiagnosis. We all thank you for contacting the paper and exposing the problems with finding proper treatment.
My prayers are with Cameron and your family.
Posted by lymedesign (Member # 8791) on :
I guess it is all affecting us the same way.
Posted by NP40 (Member # 6711) on :
Same story with my teenage son. No diagnosis until we found a "real" lyme literate doc.
Watch those night sweats, could be babs. My son is 16 and fully recovered but it took a year of intense abx to do it. Children have pretty good immune systems, often recover very well.
Posted by 5dana8 (Member # 7935) on :
Amy
Good job on the article.
I am so sorry about your son and hope he can feel better soon. Posted by Lymetoo (Member # 743) on :
Good job, Amy!! Tell your son we are so proud of him too!
Glad to see something written [or reported] about Lyme without all the glaring inaccuracies!
Do hope he will be treated for babesia as well. It may be there, but not showing up on tests. Does that sound familiar!?
I hope America wakes up sometime soon. Our children are at risk.
Posted by concerned mother (Member # 8128) on :
We are being treated with Malorone for the babs as well! Thanks everyone!
Amy
Posted by julier (Member # 9527) on :
Great story - I am so glad you did this!!
Julie
Posted by Carol B (Member # 9110) on :
I read your story with personal interest. A light bulb finally went off in my head-after being diagnosed myself, and learning so much on Lymnet that suddenly, years of unexplained problems for my now 15 year old daughter made sense to me.
I took her to my LLMD a couple weeks ago, we are waiting the results from blood work, but meanwhile she is keeping a daily diary, when she is not sleeping on the couch. It breaks my heart to read it. Our return appointment is in August.
We'll see. Thanks for sharing your story. Does your son post on Lymenet-is there a place for kids only to talk to each other about lyme?
Carol
Posted by Carol in PA (Member # 5338) on :
Amy, Good story. I really hope your son will recover and be able to live a normal life.
He never would have gotten the right diagnosis if it weren't for your love and dedication.
Wishing you the best, Carol
Posted by bettyg (Member # 6147) on :
Amy and Cameron; great article, and Camerson; you are mighty handsome!
Folks, when you go to read Amy & Cameron's story, please go to their CONTACT US, and reply on their story!
I was just there & typed 20 minutes my reply and also talking about Dr. Charles Ray Jones situation. It was prefect; I copied it to word, and my PC FROZE UP losing everything BEFORE I sent it to the newspaper! uffda.
I'll try again tomorrow when I have the energy to do this again.
I thought it was PERFECT to mention Dr. Jones situation and ASK FOR MONEY for his defense expenses after reading their touching story that affected their hearts! WHY NOT THEIR POCKETBOOKS TOO?
Posted by lou (Member # 81) on :
Yes, there is a lyme forum for kids, teenagers maybe. The PA lyme group sponsors this. Let me know if you want the contact info and I will look it up again.
Posted by snowboarder (Member # 6346) on :
Amy,
What a great story. I also have a child with lyme. She's 9 and ironically started showing symptoms 2 months after I did. I Immediately took her to Dr. C and she is well today.
Every once in a while she has pain here and there but nothing like she did almost 2 years ago. The word needs to get out. I'm praying for a quick recovery for Cameron. I compeltely understand the frustration with going to a regular doctor...been there done that. It just doesn't work.
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