yes, you read it right. i just came back from an appt with pcp and totally bs, but got what i wanted......sad but true but i've just about had it with the healthcare profession.
made appt. since the script i got from doxy spilled over into the disposal, great, just my luck. so after traumatic eng i went to see the doc and i guess after 5 it's urgent care so i get a "resident" oh hoo, beware of 25 year old residents.
gave him brief run down of symptoms, and whala....a 21 day script for doxy which will hold me over to llmd visit.
resident said, ELISA very sensitive and would prove positive after four weeks, no need for western blot if ELISA is negative. i said ID doc say treat based on clinical symtpoms....he said arthritic pain doesn't move around like i said but stays in one place. also said it could be something else and neuro would know if it was lyme, he knew my neuro. i said neuro tested me two weeks after i saw tick....he said test usually arent' positive until four weeks.
he didn't feel comfortable writing script, told me to follow up with my pcp (yeah right) and follow up with neuro as it could be something else. okay thanks now i can start being afraid it's ALS or cancer buddy now that' they've ruled out ms and tumors.....he said i'm surprised your neuro didn't order a LP to see if they're WBC and that would tell if it's lyme...i see her again sept 5th and i'm sure i'll end up with t-spine, emg, evoked potentials and lumbar puncture/.
he said even if abx make me feel better their could still be something wrong.......
okay, i wish i could just focus and say yes, definately lyme but it's people like this that have me googling other illenesses to see if i fit into that category.
i didn't even mention my zpac experience as i felt he probably wouldn't of given me doxcy and wouldn't understand when i said i had an invasion of poltergiest.
so wish me luck and symptom relief on doxy so i don't freak out with more disease processes.
thanks for all your thoughts, also, any idea if i did flunk my ENG what that means?
karen
[ 16. August 2006, 10:52 AM: Message edited by: firepipersnurse ]
Posted by Lymetoo (Member # 743) on :
You're going to beat this thing yet!! That duck was FULL of misinformation and ignorance. I can see what they're NOT teaching these drs in med school!!
Posted by liz28 (Member # 4946) on :
Next time try a dermatologist and get a two-year supply.
Posted by tic chick (Member # 9156) on :
.....he said i'm surprised your neuro didn't order a LP to see if they're WBC and that would tell if it's lyme..
Karen,
What do you mean when you say that your WBC would tell if it's Lyme? I had the ENG test as well and I believe it tells you if you have true vertigo. tic
Posted by firepipersnurse (Member # 9637) on :
regarding lumbar puncture, if they had white blood cells in my fluid it would indicate some kind of infection.
when you had your eng were you diagnosed with true vertigo? did you have vertigo at all during the test?
i had vertigo when they put the cool air in both my ears, the rest of the test i felt fine. but who knows what any of that means.
it's such a tough thing, going through tests waiting to find out some other diagnosis but then again thinking to yourself, gee, all things are pointing towards lyme but is it really or am i just denying some other illness.
kwim? karen
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by firepipersnurse: regarding lumbar puncture, if they had white blood cells in my fluid it would indicate some kind of infection.
I don't think that would be true of a Lyme-spirochetal infection.
Spinal taps are about 20% accurate in finding Lyme....so don't do it for THAT!
Posted by am36 (Member # 9409) on :
admiring your guts. Wanna come with me to my PCP to advocate?
LOL
Posted by Nal (Member # 6801) on :
Good for you!! Now stop researching other illnesses. Believe me, I have done it plenty of times and scared the heck out of myself one too many times-just dont' do it anymore ok?
Go to the appts you have scheduled. Call your LMD periodically as well to see if any cancelations have come in-persistence can pay off!
Nancy
Posted by treepatrol (Member # 4117) on :
I wouldnt publicly say that you a fibbed to them this is the kinda stuff that "they" watch for here. There are some pretty bad people out there. I would remove that from the title if I were you. That said I dont condone it but I deffinatly understand your frustration. Not judging you though. I hope you take this the right wau.
Life with this lyme sucks & so do ticks & so do a lot of Dr's.
Posted by welcome (Member # 7953) on :
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![[Big Grin]](biggrin.gif)