This is topic Help! (jiggling, scary thoughts, etc) in forum Medical Questions at LymeNet Flash.


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Posted by chicago_bird (Member # 9301) on :
 
I've been feeling depressed and sad this week, so I knew the neurolyme was getting worse.

This morning, woke up with:

- jiggling throughout body
- fasciculations in face, esp. in sinuses (feels like crawling)
- shocks in jaw and teeth
- feeling scared for no reason
- people's faces look scary to me
- pain in chest and abdomen
- difficulty urinating

This hasn't happened since my first big crash, three years ago. I really don't want to go back to feeling this way. It's VERY unsettling.

I'm not on any abx right now, waiting for a prescription to be filled. I did take 4 wks of doxy, but stopped 3 wks ago. Right now I'm just taking supplements and have been doing a no-gluten, lo carb diet for a week now.

Has anyone felt this way before?

Did you do anything that helped?

[confused]

thanks!
kate
 
Posted by treepatrol (Member # 4117) on :
 
I would get a LLMd all tose can be symptoms that you stated.Get on some abx's.
 
Posted by chicago_bird (Member # 9301) on :
 
thank you, Treepatrol.

Luckily, I am with Dr. C. now. Just had my first appointment recently, and I'm looking forward to starting the antibiotics again. It's just the darn mail-order prescription thing, it's taking so long for them to come!

I haven't had a scary brain like this since I first got sick... I was hoping it would never come back.

It seems to be better this afternoon, so I'll just grit my teeth and wait for it to pass, hopefully soon.
 
Posted by *Daisy* (Member # 9593) on :
 
Sorry you are going through this. Hopefully since you have been better, this will get better again.

You just described me, everyday.
 
Posted by 5dana8 (Member # 7935) on :
 
Glad to hear you have an appointment with a LLMD soon

With treatment your symptoms will eventually go away.

I am so sorry you have to go thru this right now. I had many of the symptoms you described but they went away with treatment.

Hang in there [group hug]
 
Posted by Aniek (Member # 5374) on :
 
I have some of those symptoms to a lesser degree. They have been going down since I started treating my autonomic nervous system.

The doctor I work with on the ANS has a very set procedure for how he treats it. But for me, the big deal is I have a serious deficiency in amino acids. So amino acids plus B-12/folic acid is really starting to help.

I wake up feeling very anxious often, and also get motor tics at the same time. And I just can't get out of bed for hours when this happens. He really thinks this will go away, but suggested I try to cut back on my muscle relaxer.
 
Posted by HEATHERKISS (Member # 6789) on :
 
Hope you feel releived of you sadness / uneasiness soon.

It's no fun having those feelings on top of being sick physically.

I suffered a couple years off and on with depression type things and would never go on zoloft or anything else my family doctor recommended.

FINALLY at a moment of total weekness I asked for valium and he gave me xanax.

I wish I had gotten the xanax sooner.

Now I don't have those terrible feelings and I use the xanax as a sleep aid here and there.

Those feelings have gone away with extensive treatment of the lyme and coinfections.

love and healing,
 


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