This is topic Children w/ Lyme and their diets in forum Medical Questions at LymeNet Flash.


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Posted by snowflake (Member # 8950) on :
 
Since treatment began for my little lymie we have been doing the strict yeast free diet - no bread, low carb, and no added sugar. Last year the school eliminated bread or buns for her and when they couldn't, I sent meals. I also sent sugar free pudding or cookies for them to replace their deserts and they did this no problem.

They said they would need a note from the doc to continue this so I asked the LLMD if we needed to continue this at school since I am so strict at home. He said she could have breads, etc and that the main issue was sugar. I was shocked but I thought, ok, we'll try it and see how she does. The nurse sent a standard letter that only said the school needs to include something from 4 food groups at each meal - meat, dairy, vegetable, and fruit. It did not say that they need to withold sweets or breads or what substitutions need to be made, so I was frustrated it was vague. The school said the letter did not help them at all as far as dietary issues.

QUESTIONS: What type of diet does your Lymie kid eat at school? Do you restrict carbs, sugar, bread, etc and does the school allow this? Do you have to have a 504 or IEP or written documentation for any substitutions or does the school just comply?

I am afraid that with me feeling rotten I won't be able to send meals to school and am wondering how much the school is willing to do or if this is even necessary. If the LLMD isn't worried about it why am I??
 


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