oK so I cant find another dr who can see me before 6months..
So i called that Dr that I fired but did a take back and all was fine. I was feeling quite horrible and they said she was out until this week.
They couldnt see me until today. I called tues last week. I get there I was 6mins late..They would not see me.
They said she had a tight sched and i would need to r/s. SO I told the girl that I would see her tomorrow.
I told her that I was upset because I have never ever had my Dr actually see me on time. The past few time I have waited patiently for over and hr.
So I have this appt at 12 tomorrow.. Now her and I have had our boughts about it all.
She did the IgM and IgG test-wasnt sent out. Did the test for Erlichiosis not one for the babesiosis. CBC diff said it all was normal.I didnt get a copy yet but I will.
So here it is.. I had the rash as i have said. It was said to be ring worm. I have unexplained joint pain, my TMJ has got worse in the past several weeks.
Put it this way except for like 4 or 5 things i have all the symptoms on the list Clinically dx i would say that what it is.
She mentioned doing testing for arthritis I had knee surgery in feb that came back with nothing. I dont see it being that. but am will to do any test out there.
So how should i approach tomrrow: DO i go in and say I need to you to test me for xyz, and we need to really figure this out. And they need to be sent out someplace.
Do i go in see what she has to say and if its not what I like leave that office
if i leave though i cant get into anyone until long after i get to fl in nov.
I dont know how to do this... I am so irratated and she knows what i went ' through before. I had adenomyosis and all the gynos thought i was nuts
i proved them wrong..Not only did i get my hyst at 25yrs but it was also found that I had uterin cancer.
anyway I would love some suggestions on this I am stuck..HELP
Hail
Posted by Carol B (Member # 9110) on :
One thing I can say about having Lyme -it has helped me to be more of an advocate for myself- and have learned the hard way that Doctors are not God.
I say go with a written list of your symptoms, and a printed out list of Lyme Symptoms- and say I WANT and NEED to be tested for Lyme disease. Too bad that doesn't guarantee an accurate diagnoses, the blood work I mean.
I essentially just had to keep being persistent bout the suspicion that I had Lyme. I finally had a doc retest me-which was negative at a local lab, but then I made my way to an LLMD who did the Ignex labwork-which all came back positive.
I guess what I'm saying is- I have learned not to be intimidated by doctors-and how refreshing it is to get to a doctor who really does listen. It's the pits that we have to work so hard to get the correct treatment.
Please let us know how it goes. Also say a prayer for God to give you the strength and conviction to be true to yourself.
Carol
Posted by Carol B (Member # 9110) on :
About the time issue- I got lost on the way to my second Lyme appointment-go figure-even though I was familiar with the area . The doctor was kind enough to see me for a partial visit, and rescheduled the following week for the rest of my appointment.
But I have those same thoughts-when going to regular ducks-we have to wait on them-but do they have to wait on us? So screwed up and so frustrating. And I thought the rule of thumb was if you were 15 minutes late you could expect to reschedule- but 6 minutes? that's a bit absurd.
Carol
Posted by Carol B (Member # 9110) on :
You've got me on as roll here- this must be one of my buttons-the time issue- I remember walking out of a doctor's office citing I had waited too long and had to go. I got a note in the mail from the doctor-saying"sorry I missed you"!
another time I looked a doc straight in the face and said I had an appointment at 10:30 , I was here at 10:15 and signed in, it is now 11:15 and you are just calling me back. He apologized without offering any lame excuses.I respected that.
I have been to so many doctors- I now take along a waiting bag with magazines, deck of cards and a CD player!
I'll be quiet now and let others post! Carol
Posted by Andie333 (Member # 7370) on :
I agree with Carol that we have to be our own health advocates here.
I had no doubt I had Lyme (all the symptoms pointed to it), and the first test was negative. I also found my way to a LLMD (Lyme literate medical doctor) and was tested again through Igenex.
That second time was a strong positive, plus, I've responded to antibiotic treatment.
The point is that Lyme is both a lab and a clinical diagnosis.
If you aren't seeing a LLMD, I'd suggest trying to find one in your area. If this person is an LLMD, make sure your labs are being sent to Igenex. Those are my thoughts...
Andie
Posted by Hail (Member # 9671) on :
First thing Thank you so much..
I know that the "titer" was done right in the hopsital. Because I asked the phlebotomist that took the blood that day i went.
She has told me that the other test would be sent out and it would take a week. I dont know where.
but it was back right when I called for the results. So I a assume it was through the hospital but I can tell when I get the labs.
I know I HAVE to be my own advocate I have done it before and I will again. But with my timing right now it hard
we are now moving to fl in nov and so that gives me less than 10 weeks to get things going before i go.
Or maybe I should just wait the few months and go to the Dr i found in florida.
![[confused]](graemlins/confused.gif)
. The doctor was kind enough to see me for a partial visit, and rescheduled the following week for the rest of my appointment.![[Big Grin]](biggrin.gif)