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Posted by focusonsurvival (Member # 9124) on :
 
Hi all. Let me say Thanks in advance! My sister has been having respiratory infection after respiratory infection. Then a few weeks ago, she began to have pain in her elbow like a pinched nerve that caused pain - a heavy feeling in her elbow and sent pain to her neck and through her back. She is now having the same feeling in her legs. She has seen a few ER docs who prescribed - steroids which did not make a change. She continues to feel the symptoms. I remember when I first got sick 8 years ago, this sounds familiar. They are doing tests to rule out MS etc....! I am adamant that she look into lyme, but family thinks i am always thinking everything is lyme. What do you all think about her symptoms - any familiar to your experiences. I need to find her a doc in MI to rule this out correctly. Any ideas?
 
Posted by iceskater (Member # 8655) on :
 
I would get tested anyway. Better to be sure than sorry.

SmileyCentral.com
 
Posted by chroniclymie (Member # 7697) on :
 
agree with iceskater better to do than not.
lyme can cause resp problems
cortisone makes lyme worse
lowers immune system.
lymie should not have steroids period
docdave130
 
Posted by Beverly (Member # 1271) on :
 
Hi focusonsurvival,

So sorry about your sister.

I agree with iceskater too, I think she should atleast be checked for lyme to rule it out.

If you would like the name of a doctor in Mi, you can email me at
Bev4442003@yahoo, or go to the support groups listing for Michigan.
 
Posted by bettyg (Member # 6147) on :
 
quote:
Originally posted by focusonsurvival:

Hi all. Let me say Thanks in advance!

My sister has been having respiratory infection after respiratory infection.

Then a few weeks ago, she began to have pain in her elbow like a pinched nerve that caused pain - a heavy feeling in her elbow and sent pain to her neck and through her back. She is now having the same feeling in her legs.

She has seen a few ER docs who prescribed - steroids which did not make a change. She continues to feel the symptoms .

I remember when I first got sick 8 years ago, this sounds familiar. They are doing tests to rule out MS etc....!

I am adamant that she look into lyme, but family thinks i am always thinking everything is lyme.

What do you all think about her symptoms - any familiar to your experiences. I need to find her a doc in MI to rule this out correctly. Any ideas?

Lymeneter Kay found this list of symptoms at http://www.lymediseaseaction.org.uk/symptoms.php
It says it all:

Tick Borne Disease - Symptom A to Z
Lyme Disease is systemic, it can effect the whole body.
This page lists the possible symptoms.

Abdominal Pain
Achiness (Generalised)
Acrodermatitis Chronica Atrophicans/ ACA
Alcohol - Extreme Effects Of
Anorexia
Anxiety Attacks
Arthritis
Back Pain
Balance Problems
Bell's Palsy
Bladder Problems
Blindness
Blood Pressure - Raised
Bone Erosion
Bone Pain
Bowel Problems
Bradycardia - Slow Heart Beat
Brain Fog
Breast Discharge
Breast Pain
Breathlessness - Air Hunger
Carpal Tunnel Syndrome
Chest Pain
Chills
Cholesterol - Raised
Choroiditis
Clicking Joints
Cold Feet
Confusion
Conjunctivitis
Constipation
Costochondritis / Ribcage Pain
Cough (Non-Productive)
Cramps
Deafness / Hearing Loss
Dental Pain
Depression
Diarrhea
Difficulty Concentrating
Disorientation
Diverticulosis / Spastic Colon
Dizziness
Dyslexia
Ear Pains
Encephalitis/ Encephalopathy
Erythema Migrans Rash
Facial Pain
Facial Palsy
Fasciculations / Muscle Twitches
Fatigue
Fever
Fibromyalgia
Floaters
Flu-Like Symptoms
Fluctuations of Symptoms
Foot Pain
Forgetfulness
Hair Loss
Hallucinations
Headache
Hearing Loss
Heart Block
Heart Problems - ECG Abnormalities
Heartburn
Hepatitis
Herxheimer
Hoarseness
Hyper Sensitive Hearing
Hyperacusis - Sound sensitivity
Inability to Concentrate
Inability to Remember Words
Insomnia
Involuntary Jerking, Limbs and Trunk
Iritis
Irritable Bowel
Jaw pain/ Temporomandibular joint disorder
Joint Problems
Joint Swelling
Knee Joint Pain
Libido - Loss Of
Light Sensitivity
Liver Problems - Raised Enzymes
Malar (Facial) Rash
Marked Personality Changes
Memory Loss
Meniere's Disease
Meningitis
Menstrual Irregularities
Miosis - Decreased Pupil Size
Mood Swings
Motion Sickness
Muscle Aches
Muscle Spasm
Myoclonic (Involuntary) Jerking
Nausea
Neck Pain
Nerve Conduction Defects
Nightmares
Numbness
Optic Neuropathy
Palpitations
Panic Attacks
Paraesthesia / Abnormal Skin Sensations
Paranoia
Photophobia
PMS - Pre-Menstrual Syndrome
Psychiatric Problems
Ptosis - Drooping Eyelid
Rash
Retinal vasculitis
Reynauld's Syndrome - Cold Hands & Feet
Seizure
Shivering
Shooting Pains
Shortness of Breath
Shoulder Pain
Skin Sensitivity
Sleep - Excessive
Sleep Apnea
Sleep Disturbances
Sleep Inability
Slurring of Speech
Smell Sensitivity
Sore Throats
Speech - Slurred, Slow
Speech Errors
Spinal Disc Problems
Stiff Joints
Stiff Neck
Swallowing Difficulty / Dysphagia
Sweating (Profuse)
Swollen Glands
Symptom Flares - Approx 4 Weekly
Tachycardia - Fast Heart Beat
Tendonitis
Testicular Pain
Tingling of Extremities
Tinnitus / Ringing in Ears
TMJ - Jaw Pain / Stiffness
Tongue Numbness
Tongue Pain
Tooth Pains
Tremors / Shaking
Uveitis
Vasculitis - Circulation Problems
Vertigo
Vibration Sensitivity
Visual Disturbances
Vomiting
Weakness or Paralysis
Weight Gain
Weight Loss
word block
 
Posted by johnlyme1 (Member # 7343) on :
 
[QUOTE]Originally posted by focusonsurvival:
[QB] Hi all. Let me say Thanks in advance! My sister has been having respiratory infection after respiratory infection.

Well fisrt of all, your sister has direct evidence of a respiratory infection. My lyme infections came on with pnenominia. The docs gave me a z-pack of zith and sent me on my way. 14 months later my LLMD diagnosed lyme, bart, erhlichia, babs, and myco. Once we started treatment things started to improve. When I went on zith to really start to hit the myco a lot of joint pain started to go away real fast and part of the lung issues started to resolve. What I noticed with the myco is that it had a whole layer of joint and nerve pain onto itself. once this layer was removed it was then that I could identify the difference of what the lyme pain was. It cycled where as the myco was constant and reduced very quickly with the zith, even after 4 days on ABX I felt much relief

If you look to see if your sister has any of the myco infectionss it would be a good place to start at least. Myco can cause a lot of pain and nerve issues not to mention the lung issues. It took 6 months of treatment to get my myco test levels down to normal. I was tested by quest for all the myco infections and only myco M. came up.

Erhlichia also has been know to cause lung issues. The other infections have different symptomology - babs air hunger sweats, bart crazy emotional stuff with possible foot pain and deep bone pain. And so on
 
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