My LLMD thinks I've had Lyme longer than I thought. I got a rash and symptoms in June, but have had tick bites all my life.
I had 5 indeterminates, 3 positives, and 2 ++ positives on my IgG and IgM Western Blots from Igenex....after I'd been on doxy for 2 weeks.
I have had plantar fasciitis and difficulty making decisions in the past year or more.
I started appropriate antibiotics 2 days after developing the rash.
I'll be treated through Thanksgiving, then we'll see.
My LLMD explained this to me, but I don't remember what was said.
I also have babesia.
[ 14. February 2008, 12:56 AM: Message edited by: hshbmom ]
Posted by kitkat32 (Member # 9682) on :
Hi Nancy,
Could he possibly mean it was in remission?
I went for almost a year in 2001 with no symptoms and then for 9 months 2005. I was infected in 1996.
kit
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by hshbmom: I'll be treated through Thanksgiving, then we'll see.
ARe you kidding?? Have you started meds for babesia yet?
I'll send you my story. I had "silent lyme" forever...but it wasn't so "silent"...just misdxd.
Nancy...send me your email through a PM if you want the story.
Posted by lymie tony z (Member # 5130) on :
I have never heard it referred to as "silent" lyme.
Asymptomatic...perhaps.
Anyway...this thing can lay dormant or only give small indications that we're infected...and go dormant only to return like TUTU says...
Speaking of you TUTU...my wife ran into a lady at church who has a sis in texas with all kinds of symptoms...was bit by a lonestar...but ducks of course tell her she does'nt have lyme...
Hopefully she'll get on here and find out more info...
zman
Posted by hshbmom (Member # 9478) on :
I started with Lyme treatment, then added babesia medicine.
I've only taken short breaks between antibiotics. I start more Lyme medicine tomorrow. ...minocycline to target the brain
I look forward to getting back on the medicine, but don't look forward to any herxes or other lovely attributes of minocin.
Kitkat & z man, asymptomatic is probably a better word choice than silent Lyme.
I've been aware of Lyme disease for at least 10 years because my neice has it. She was misdiagnosed & inaccurately treated for years. When I got the rash I was in the MDs office immediately. I knew not to take chances if the rash I had was caused by Lyme.
[ 14. February 2008, 01:04 AM: Message edited by: hshbmom ]
Posted by Aniek (Member # 5374) on :
Nancy,
I had Lyme 17 years, and didn't realize I was sick most of that time.
I know when I was infected because I had a bulls eye rash around a bug bite. But 19 years ago, nobody knew about Lyme.
I had periods on and off of pain in different places. I knew the pain was all related, and at times suspected Lyme. But most of the time I joked that I was "put together wrong" because I'm hyperflexible in some joints and have very limited flexibility in others.
I have since been able to make a connection to a trigger many times I had major symptoms. I look at it like the straw that broke the camel's back. The triggers become too much on my system and the Lyme appears.
Inflammation of my knee started shortly after having very bad abdominal pain on a trip to England. I think I had food poisoning.
Lower back pain became very bad after my first UTI. My hand pain that lead to the diagnosis started a few days after having bad cramps following a meal in Italy.
I had neurological symptoms triggered from moving to an office building still under construction.
Posted by Lymetoo (Member # 743) on :
Tony, I'd be happy to talk to her if you need me.
Posted by lymie tony z (Member # 5130) on :
Oh Geez Whiz TU TU,
That means I'll HAVE to go to church next sunday to see if I can meet up with her....
I knew you would say that!
LOL.......
tony
Posted by Moosie (Member # 10033) on :
TuTu, I think. . .
I would be very much interested in reading your story, and hearing about others here who have had YEARS of problems on and off. Like someone else, I KNOW I had tick bites, numerous times, when I lived in Kansas, and had the bull's eye back in 1989 that the doc said was probably just a spider bite, even though I told him I dug a tick out of the middle of it. Didn't mean too. I was just kinda poking and picking, and out it came. I'd jsut moved from Chicago and never even saw a tick before in my life. I pulled them off of many parts of my body over the 17 years I lived in that house. . . I've been seriously ill at times and in pain almost constantly since then.
Anyhow, information would be appreciated. Thanks, Moosie.
Posted by lymednva (Member # 9098) on :
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