I have recently seen an out of town doctor who recommends daily infusions of glutathione to clear neurological lyme symptoms but I have heard that cholestryramine does the same thing. Has anyone tried either method and what can you say about it? Glutathione I.V.'s run about $150.00 while cholestryramine is pennies per dose.Appreciate you input!
Posted by Foggy (Member # 1584) on :
A few months of weekly IV Gluta didn't do much for me nor did CSM, other than bind me up. Worth a shot, but I'd limit the expense if you don't get results. The IV Glut did lower my Mercury level so it was worth doing.
Someone said Chlorella has a similar neurotoxon binding effect as CSM.
Posted by Jennifer Geddie (Member # 9097) on :
You can raise your own Glutathione level by taking N acetyl cysteine and selenium. There are good articles in the immune support library on glutathione .
Personally , I know others who got good results with glutathione shots ( injections ) . Dr Salvato in Houston uses them . They would be FAR cheaper and less of a hassle.
There are other detox methods that other members here have posted about . The cholestyramine is a good one . I also read that sarsaparilla binds to the lyme endotoxin .
I am going to read Stephen Buhner's book "Healing Lyme " which is supposed to have excellent info .
Posted by Jennifer Geddie (Member # 9097) on :
If you are having cognitive problems , don't forget that amino acid supps may make a big difference . They have helped me !
You might search info on : "The Way Up From Down" Dr Priscilla Slagle on google .
Aminos have helped me . I take a blend and also a tiny dose of L phenylalinine , which is a precursor for dopamine . It helps with the brain fog .
Posted by docjen (Member # 7510) on :
I am doing both glutathione IVs and cholestyramine. I think they have worked differently for me (not doing the same thing). I have had glutathione IVs about weekly (and they actually cost me a lot less than $150 a session). The glutathione is a "master antioxident." It really feels like it has helped to clear brain fog and calm all my neuro symptoms. It makes you feel very very heavy and drained when you get it. The cholestyramine seems to be good at binding with neurotoxins and removing them from your body. It seems to help with pain and pressure in my head, and minimize the "seizure-like" episodes I had. My CNS symptoms are much improved since I have been in treatment. The cholestyramine does a number on your GI system, though, so it takes some real work to counter-balance its effects. It is also difficult to work around your med schedule.
If I were you I would try both. Do as many of the glutathione treatments as you can afford, and see how you feel. I would suggest spacing them out to prevent yourself from really overloading your system, and also so you can have a chance to see if it has had any real effect on you. (Don't expect night and day improvement, though. It's a long process.)
Good luck!
Posted by Aniek (Member # 5374) on :
I take a liquid glutathione manufactured by LipoFlow. You mix it in juice (or water, but it's nasty that way).
It does something, because if I take it too late in the evening I'm up all night.
Posted by luvs2ride (Member # 8090) on :
I'm on IV glutathione and have been for several months now. At first I was twice weekly, am every other week now.
I feel great for days afterward and always for two days after injection, I have white sesame seed looking things in my poop. I have read here that they are dead parasites. I sure hope so! Dead Bb would be ok too.
Luvs
Posted by Nebula2005 (Member # 8244) on :
CSM caused me to have the most God-awful pain and neuro symtoms. After almost a week off of it, I'm still recovering--I thought I had maxed-out on pain before, but I was wrong!
Interestingly, I had very little in the way of GI problems.
I've never had glutathione treatment, but I've read that at first it can cause symptoms. It's used a lot for people with immune deficiencies.
Posted by riversinger (Member # 4851) on :
Nebula, you may have needed to take Actos with the choletyramine, to lower your inflammatory levels. Some people do.
I have had a very good response to cholestyramine. It reduces pain and relieves other neurological symptoms. It brought me from 200 mg of oxycontin a day, to 40 mg. I do take Actos sometimes, to help to lower certain cytokines.
I haven't done the IV glutathione, due to expense, but I do take the liposomal and a sublingual form. If you do a search on glutathione, I posted a long article a while back on a variety of ways to raise glutathione levels. I find the sublingual tabs, from Source Naturals, helps when a migraine is coming on. It stops the migraine in its tracks.
Other than that, I haven't seen clear relief from the glutathione, but I take it, as it is an important aspect of detox.
Posted by earthsong15 (Member # 7471) on :
I started recently on daily IV glutathione (10 ml) and 3 packets of cholestyramine daily. I have yet to notice anything positive. I have been on this for 2 wweeks now. I am able to infuse the glutathione myself through my chest catheter so it is way cheaper than $150. Keep your fingers crossed that I have some improvement cause after 11 months of IV rocephin and numerous orals I am close to giving up!!!
Posted by Nebula2005 (Member # 8244) on :
Riversinger
The doctor who prescribed the cholestyramine SHOULD have prescribed Actos first, according to Dr. Shoemaker it's essential for Lyme patients to do this.
Do you have to follow a low-grain diet when you take the Actos? What dose do you take?
Thanks, Nebula
Posted by riversinger (Member # 4851) on :
Yes, Nebula, the Actos works best with the low amylose diet. Even without Actos, the cholestyramine works better if you use the diet. Most people also need plenty of fat in the diet to help tolerate the cholestyramine.
I used 3-4, four gram doses a day for the first few months. It was six weeks in when I suddenly realized how much less pain I was in. Due to my genetic type, I need to stay on a pretty regular one dose a day. I live where it is very hard to avoid mold, so I just keep taking the CSM and occasionally use Actos.
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