LymeNet Flash: CHANCE TO HAVE YOUR VOICE HEARD

This is topic CHANCE TO HAVE YOUR VOICE HEARD in forum Medical Questions at LymeNet Flash.

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Posted by daystar1952 (Member # 3255) on :

Hi guys.....I went to the site below, suggested that long term appropriate antibiotics be tested in M.S patients and why. Maybe if enough people write to them about this, something will get done?

Margie T

Dear ALL,

Re: YOUR VOICE IS NEEDED - OPPORTUNITY to suggest a MULTIPLE SCLEROSIS/LDN CLINICAL TRIAL

Could you please add your voice to a new initiative which invites 'ABC Radio National - Health Report' website visitors to "Suggest a treatment for testing".

The ABC website states ...

"Your feedback will be used to identify treatments that people would
most like to see tested. We hope to use this to set-up a clinical trial."

This is a very real opportunity to voice your suggestion for a MULTIPLE SCLEROSIS/LDN CLINICAL TRIAL.

This initiative is not limited to Australian responses (I phoned the ABC this morning to check on this). It is open to international responses, so this is a very real opportunity MS sufferer's cannot afford to overlook.

I understand LDN has application for other conditions, but I am sending this in the interest of a focussed starting point for clinical trials.

You can forward this email to anyone with an interest in advocating for an MS/LDN Clinical Trial.

Kind Regards,
Cris Kerr
www.casehealth. com.au
www.casehealth. com

1) To make your suggestion, go to ...
http://www.abc. net.au/rn/ healthreport/ suggestions/

The ABC online form is a very simple format and it took me less than
30seconds to enter my suggestion (see below):

Health issue: Multiple Sclerosis

Please click and Paste

Treatment: Low Dose Naltrexone
http://www.lowdosen altrexone. org/
http://www.ldnresea rchtrust. org/
http://www.msrc. co.uk/index. cfm?fuseactionfiltered= show&pageid=651
http://www.digitaln aturopath. com/treat/ T74481.html

2) After making your suggestion, please email me at
casehealth@optusnet .com.au
YY=13890&order= down&sort= date&pos= 0&view=a& head=b> to let me know
because if the numbers are significant, I'll follow-up with them on everyone's behalf.

(PS To differentiate your email from SPAM, please type the following into your email subject area ... MS/LDN CLINICAL TRIAL SUGGESTED - your COUNTRY.)

PLEASE PASS THIS ON TO AS MANY PEOPLE AS YOU CAN......... .....

Always, Crystal

Posted by bettyg (Member # 6147) on :

Margie, I copied the link and will send it to an online friend with severe MS/lyme.

LDN; DOES THAT STAND FOR LYME DISEASE NETWORK OR WHAT? thanks! Bettyg [Big Grin]

Posted by rcs2 (Member # 9663) on :

Hi Betty,

I think it stands for "Low Dose Naltrenox". I might be wrong.

Does anyone have tried this drug? I saw an old thread about it and was curious if it works for neuro Lyme.

Posted by bettyg (Member # 6147) on :

RC, thanks for your explanation of what the abbreviation meant!

The friend I mentioned above I sent the email link to, her MS is terrible.

In it she mentioned she was on the LDN and magnetic therapy. She had lyme years before but whoever has tested here where??, and reports she is negative for lyme.

She talked about their doing other things for her. Sounds like another mysterious illness she has in addition to everything else WITHOUT a name to hers!

She uses the voice computer since she no longer can type. Bettyg [Big Grin]