Just wondering so I can feel as though I am somewhat normal thanks kristin
Posted by Lymetoo (Member # 743) on :
Lyme can cause extreme weakness, so this sounds right in line with it. You don't mean they dislocated, do you?
hang in there, kiddo! Posted by i want help (Member # 9786) on :
Not dislocated but just gives out randomly. I do not feel weak... Also walking crooked. I am so fed up. Posted by lymemomtooo (Member # 5396) on :
I continue to say I do not have this crap..WEll can't afford the money or time for two of us, so not sure it is a lyme symptom or not, but I have had this happen a few times..
Usually there is no pain when it happens to me.I also have no warning..I am walking and one will just not do as it is supposed to do..And I have to catch myself..
Posted by Katcon (Member # 9812) on :
This started happening to me quite frequently, but then my whole body would start to get weak when it would happen.
I am on iv rocephin now, and I am doing much better. However now I have leg pain.
Good luck
Posted by karatelady (Member # 7854) on :
Exercise (if you can) has helped me with that problem. It is a scary feeling when it happens but I haven't had it in a long time.
Sandy
Posted by shizuko (Member # 8213) on :
Hmmm, it sounds familiar.
I don't feel weak either, but my right knee does weird things sometimes.
"Popping" or "grinding" when bending is one thing, and mine is really loud.
But recently, it feels like my right knee goes out of joint or dislodged or dislocated occasionally when I move.
It's like I can feel something just moved internally in a weird way or something.
It hurts occasionally though very briefly, but most of the times it's pretty much painless when this happens.
Then, one night when I went to bed, the same knee started throbbing with a shooting pain although it didn't last that long.
shizuko
Posted by Lymetoo (Member # 743) on :
I think I've learned to compensate. I never trust my knees. When walking down deep steps, I place my foot sideways so as not to put strain on my knees.
Posted by tic chick (Member # 9156) on :
Kristin,
The walking crooked thing has been a symptom of mine for a couple of years. Now that I am being treated (same doc) I have had days were this has not been a problem so much.
My knees give out spontaneously and I've fallen because of it. I know, it is scary but this too shall pass. (I pray)
Glad your on the road to recovery. Blessings.....tic chick
Posted by am36 (Member # 9409) on :
my legs in general give out-painless, but out of gas. Weird feeling. Total give out, sometimes very very extreme.
Was originally dx with myasthenia gravis because of it.
I have it in other muscles as well, but legs are the worst. We have a wheelchair on call at home.
Usually worse at night.
I find that I need a combination of exercise (I walk) enough to keep from getting deconditioned, but not crossing the line of exhaustion. That "line" varies from day to day.
Posted by JeffM (Member # 8919) on :
Yes. For me it was neurological, not a matter of muscle strength. I could not walk up steps or stand for even a short time.
Now this has passed.
Posted by TXKim (Member # 10146) on :
My knees are the worse! They lock up on me, if I bend them and then straighten them out they crack, pop, and grind.
My knuckles on my hands do the same thing and I tend to drop everything.
It is crazy to be 34 and feel as though I am aging very fast.
Getting up and down is getting harder by the day and night time is the worse.
Posted by DolphinLady (Member # 6275) on :
Good tip Lymetoo! Thanks
Posted by GiGi (Member # 259) on :
Tendons and ligaments are severely affected by Lyme, especially heavy metals. I learned not to get on a ladder or step because I could not trust my knee.
After detoxification of every kind, my knees are totally back to normal. I do not know I even have knees and I am an old lady.
My advice: clean up your body of all n e u r o t o x i n s . If you concentrate on the Lyme bugs only, it is going to take a long time and might never happen. To get the Lyme out, you need to get all the other toxins out also. Microbes love to hang out in toxic terrain with limited blood flow until you come with the big shovel, i.e. go on a good and varied detox program.
Take care.
Posted by arg82 (Member # 161) on :
My knees buckle sometimes, too. Usually it's just one so I'm able to stay standing and if both of them buckle I'm usually able to save myself a fall by responding quickly. But it's annoying and at times I worry that I'll fall somewhere.
You're definitely not alone!
Peace and healing, Annie
Posted by BostonLyme2005 (Member # 7680) on :
Hi Kristin,
My right knee does a lot of time. I am sure it is the MS...Yeah right!
You hang in there!
Posted by tdtid (Member # 10276) on :
I have to add myself to this note. I had knee's giving out on me with my "fibromyalgia" diagnosis. Happened in public places which makes it more embarrassing.
Since then I found out my "fibro" was actually Lyme, BUT I can really relate to what you are talking about, so very possibly is lyme related.
Also, Mark mentioned stairs. I can get down them, but at this time, having trouble getting up them. Infact I can't do it.
But that I blame on the steroids they gave me for this so called degenerative disc disease. Steroids cause horrid neurological problems as I found out the hard way BEFORE I knew it was lyme.
Cathy
Posted by notcrazykate (Member # 10458) on :
Yet another one of my 'quirks' that I've never connected to lyme!
My knees give out occasionally, but not as often as my ankles.
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