Have to see neuro. any new tests I should ask them to do?
Posted by Tincup (Member # 5829) on :
Do you not have a LLMD?
I'd rather shoot myself in the foot than go to a neurologist for Lyme disease.
I'd rather shoot myself in BOTH feet rather than go to an ID duck for Lyme!
Who sent you.. and why?
Posted by lymie tony z (Member # 5130) on :
Yeah like tincup says....
Ask for a test whether a 357magnum bullit fired at point blank range will dammage your skull!???
That's about the same......for all the good neuroducks and rheumaducks do us......and IDducks especially the IDIOT ducks...... zman
Posted by Aniek (Member # 5374) on :
Hey, not all neuros are bad. I found a great neuro when I had to go to one. End of the day, said all my symptoms were probably from Lyme.
I went to him because I have what he ended up diagnosings as motor tic disorder, caused by Lyme. But I got worried when the symptoms seemed Parkinson's like to me.
Even if the symptoms can be caused by Lyme, it's always possible to be that unfortunate soul that gets two awful diseases. Or that the neurological symptoms can be treated while you are treating the Lyme. And the LLMD may not know how to treat those symptoms.
Posted by 5dana8 (Member # 7935) on :
hi lymefighter7
I went to a neuro in the beginning, when I first got lyme & was told I had possible CFIDS or phsycosematic. Long story short-I reamined sick & undiagnosised for another 7 years.
The only thing they are good for in ruling out something like a brain tumor. Or something along those lines. Which I supposed is important.
If you end up having cns lyme brain lesions they'll tell you you have ms. Do a search here . There is a ton of information on brain lesions caused by lyme infection mis-diagnosised as ms.
Uless they are Lyme literate, which is a rare neuro doc to find.
I hope you have a LLMD along with your neuro appointment. good luck to you and hope you can find your road to wellness
Posted by lymefighter7 (Member # 9224) on :
PCP sent me. I don't know what else to do at this point. Neuro. is at Johns Hopkins.
Posted by Aniek (Member # 5374) on :
JH doctors do not believe in or diagnos chronic Lyme. People on this board have had very bad experiences at JH.
Posted by Tincup (Member # 5829) on :
Dial, Ivory, or Palmolive... take your pick.
Then wash your mouth out with the one you choose for saying that bad word! Oh NO!
HOPKINS!
NO NO.. RUN RUN as fast as you can.
BIG TIME BAD STUFF!
Can't we find you a LLMD? We'll try.. for sure!
Check the new IDSA guidelines. Hopkins just added their name to the list of DUCKS who wrote them!! NOT a place to go.. REALLY!!!
![[Big Grin]](biggrin.gif)
![[cussing]](graemlins/cussing.gif)
zman
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Do a search here . There is a ton of information on brain lesions caused by lyme infection mis-diagnosised as ms.![[Eek!]](eek.gif)