posted
I've had lyme for 9 years but just started being treated 3 years ago..my biggest symptom has always been muscle pain in my legs. Sometimes i can't walk, or the pain is so bad i can't breathe. The only time it doesn't hurt is when i sleep, does anyone know if there is any pain killers or anything that helps with pain?
help!
Posts: 3 | From Connecticut | Registered: Oct 2006
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posted
When you say "muscle pain", what exactly do you mean? I have muscle spasms in the base of my esophagas which become so intense that I can't eat or drink liquids, or even move without intense pain (and breathing is strained)...
in fact, the doctor checked me one day after i'd been rushed to emergency, and the spasm had actually caused a hiatal hernia! (i was told by my doc that they are a symptom of my babesia)
I have found that Diazepam works well, but still not entirely... it is a muscle relaxant in the valium family... there may be some healthier alteratives...
i will watch as others reply and maybe get some info for myself as well! take care.
-------------------- well i know a disease that these doctors can't treat, you contract on the day you accept all you see... Posts: 97 | From nor cal | Registered: Oct 2006
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bettyg
Unregistered
posted
originally posted by JennaP:
I've had lyme for 9 years but just started being treated 3 years ago..
my biggest symptom has always been muscle pain in my legs. Sometimes i can't walk, or the pain is so bad i can't breathe.
The only time it doesn't hurt is when i sleep, does anyone know if there is any pain killers or anything that helps with pain? help!
quoting Jenna from general post.... **********************************
I'm new to this site..but i'm a teen and have had Lyme Disease for 9 years.
However, i just started being treated for Lyme 2 years ago because i was misdiagnosed.
I went through doctors telling me i wanted attention, threatening me, telling me its all in my head and everything before i found my Lyme Disease specialist who is based out of Boston .
I had such muscle diease in my legs that I couldn't walk sometimes , went to the ER many times, and even missed 2 years of school.
Although I'm on my way to recovering, I still feel like i'm stuck and doomed.
I still want to die rather then go through this pain. Is anyone else in this position?
It would really help if i had someone else who understands what I'm going through...... *****************************************
Welcome Jenna! Majority of us have been thru/are going thru what you are! Glad you found us finally. Copying this 1 response from general to here so all your story is in ONE post rather than 2 separate sections/threads. Bettyg
TDTID Flash Member Member # 10276 posted 18-10-2006 12:13 AM --------------------------------- Jenna,
I can CERTANLY relate as I know most everyone here can so you have definitely come to the right place.
This has to be so hard to handle. You sound like a very strong and level headed young lady and with all you have been through proves it.
Please stick around. I'm new also and have been through much of what you are speaking of and I see we have both been through some of the Boston doctors.
I thought for sure they were going to find what was making me so sick. But I learned the hard way that you need a lyme specialist.
Please stick around and let us know how you are doing with your treatment program? Cathy ------------------------------ Posts: 8 | From: New Hampshire | Reg: Oct 2006
Jenna, by private message, PM, I'll send you my 19 pages of newbie links/advise. Bettyg
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posted
Have you been treated for Babesia? Muscle pain can be symptom of babs.
Here is a symptom list for babs....
20. What signs and symptoms would lead a doctor to suspect a Babesia infection in a patient? How many strains of Babesiosis have been identified and how many are commonly tested for in commercial labs?
The following signs/symptoms may be present in those infected with Babesiosis:
Fatigue* Arthralgias* (aching joints) Myalgia* (muscle pain) Drenching sweats* Headaches* Emotional lability* Depression* Dark urine* Splenomegaly* (enlarged spleen) Dizziness* Nausea and vomiting* Cough* Dyspnea* (difficulty breathing) Fever* Chills* Hepatosplenomegaly* (enlarged liver) Jaundice* Malaise* Shortness of breath* Bleeding tendencies, bruising* Thrombocytopenia* (low platelets in the blood) Hemoglobinuria* (red cell breakdown, with release of hemoglobin in the urine) Hyperesthesia* (over sensitivity to touch) Pulmonary edema* (fluid accumulation, swelling in the lungs) Encephalopathy* (alters brain function) Low to normal range leukocyte counts* Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia*
Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.
An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
might want to try over the counter leg cramp pills at cvs. these pills have some quinine in them and help with cramps but aslo with the babs. not strong enough to kill babs but can use as a test to tell if you have babs.
if your muscle cramps get better, then you may need to be treated for babs.
also 2-3 bananas a day might help, if potassium is low. hope it helps let us know
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
Two items take my muscle pain down. The first is 150mg clindamycin taken a couple times a day.
The second is drinking mangosteen juice a little at a time around the clock -- every 2-3 hours or so, with lots of water since it's a detoxer. It's a power anti-inflammatory and anti-oxidant. It's definitely reducing pain. Healthfood stores carry it.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
can you explain babs to me? i've never heard of it throughout my whole time with lyme but it sounds like something i have!
Posts: 3 | From Connecticut | Registered: Oct 2006
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