Is Lyme known to make for extremely painful periods??? I feel like I am being ripped apart. Lovely,...just lovely. Any responses are appreciated.
Thanks.
Geneal
Posted by lymie tony z (Member # 5130) on :
I have read where a lot of women have extreme problems durring this time.
Personally I'm REALLY glad my guys don't do that every month....
I would have probably freaked out long ago! LOL
zman
Posted by Geneal (Member # 10375) on :
Thanks for the laugh. I needed one this morning. If adding insult to injury isn't enough, my current MD (not an LLMD) is testing what she calls my "girly" hormones. I hope they find out I'm still a woman.
Again thanks for the laugh. Geneal
Posted by I Have Lyme Etc (Member # 7439) on :
Hi Geneal I haven't posted in a while but thought I would repond to you this morning. I would assume (and I hate doing that ) that Lyme can make everything extremely painful. I KNOW it can mess with a womans period it's been doing it to mine for almost 16 yrs but as for all the excrutiating pain you're experiencing, have you ever been checked for Endometriosis? A lot of women who have Lyme also end up with that and from what I have been told and read Endo is EXTREMELY painful like you explaine. Might be a good idea to look into that. Be well. Robyn
Posted by trueblue (Member # 7348) on :
Hiya, I don't know if the Lyme was responsible but I had miserably painful menstruation with hormonal migraines for 10+ years.
(Getting really disgusting, sorry, but passing clots the size of golfballs is never any fun.)
I kept being told I was perimenopausal, as periods got closer together and shorter, and always checked out as not having endo.
Finally, last December, someone finally decided to do a D and C and hydro ablation(sp?) on me. It's the best thing that's ever happened to me in this regard. No more periods, no more hormonal migraines! WooHoo!
My hormones were already starting to test high, meaning low, by that time.
I wish they had done it 10 years ago and saved me all that lying on the bathroom floor curled up in a ball.
I do hope you get some relief, do ask your GYN to do some testing for endometriosis. In my case they finally figured out the lining wasn't shedding completely, hence the clots.
Posted by sometimesdilly (Member # 9982) on :
(the following is not for the faint hearted)
yep- have had horribly painful and extreme periods since lyme. Not golf balls like you, True, but huge clots and days at a time when there was no point in moving away from the potty because of the torrential flow.
Los of sonograms etc. later-- no endo, no fibroids, but a series of ovarian cysts that "resolve" on their own. Not sure if lyme related, but never had them before,a nd not sure how and if connected to horrible menstruation, but appeared at same time.
And PS- my TBD symptoms as a whole definitely intensify just before, during and for a few days after my period. I think that's fairly common too.
Dilly (D and C and ablation, eh? Worth checking into...)
Posted by Marnie (Member # 773) on :
Progesterone -> ADDITIONAL cortisol.
Triggers calcium...cramps...on top of acetylcholine doing same.
Cortisol levels also rise to trigger labor and delivery. To release calcium, to make the uterus contract.
Local anaestetics block this, which is why docs don't want to give too many (delays delivery but sure as heck makes one feel better for awhile).
HPA axis is off.
Theoretically, phosphatidyl serine 100mg 3x/day is supposed to help over time...
It can come with Ginkgo which should help with brain functioning. Vessel dilation issues.
Tricky situation re: phosphatidyl serine though because Bb has a PKC INHIBITOR (there are many...I haven't found exactly which one...yet)
"PKC transfers Y-phosphate from ATP to hydroxyl groups of serine/threonine residues in proteins."
If PKC is INHIBITED...then what? No phosphate transfer? All that is left is hydroxyl groups...oh oh.
Research threonine too. It is another amino acid.
The body is crying for the amino acids...protein building blocks...it appears. Trying to get its hands on nitrogen.
Posted by lymie tony z (Member # 5130) on :
Geneal...ya get all that(from marnie)she does go on...
and as for the rest of you......eeewwwwwwwwwwww!!
If there is such a thing as re-incarnation...I'd rather NOT come back as a girl...
Hitting from the red tees just ain't worth it!
and I just had pizza for lunch too...
zman...passing out!
Posted by Lymetoo (Member # 743) on :
tony...check back in with us later...we have to know you're OK
I had endometriosis and fibroid tumors, prompting a complete hysterectomy at age 39. It was definitely the Lyme.
I feel for ya. Wouldn't want to go back in time!! Posted by bettyg (Member # 6147) on :
I had extreme problems from 1st year I got mine! Never knew I had chronic lyme.
MD did a testerone test on me too with my complete body lab tests 4-06; I'm low there too! Glad I had my hysterectomy; should have done it years earlier. Bettyg Posted by 5dana8 (Member # 7935) on :
lyme can really mess with some peoples hormone levels and make periods heavier or irregular.
I don't have hormone problems & don't know for sure its the lyme or not.
Had lyme for the last 20 years so really hard to tell. But have had very heavy bleeding & painful periods. Heating pad & val/ultram tylonol help some.
My lyme symptoms are always worse when I am pms & durning my period. Really bites
One full week of pms & worse symtom flares
and then 10 days of long heavy periods and then some worse fatigue days after
I figure I have a small window of maybe 1 & 1/2 weeks in the month.
That's like at least 2 weeks every month shot.
I tryed low dose hormone replacement(the pill) but it made me relaspe worse. Seems not to effects everyone the same.
Some people swear hormones helped them.
Can't wait for menapause,but then again maybe not.
In my next like I am coming back as a man for sure Posted by trails (Member # 1620) on :
Dilly---Endo can NOT be diagnosed via sonogram and rupturing cysts is very much a symptom of endometriosis. It does not mean you have it, but you have NOT ruled it out unless you have had pelvic surgery. I am sorry you have been thru the pain of rupture---it was the one "friend" that woke me up at 3 am and said---ding DONG something is VERY WRONG!!! man those suckers HURT!
Geneal--As many of the women have already attested to here---lyme really messes with your hormones and it also messes with your pain receptors. So you get a nice double whammie. It friggin HURTS!
lyme can also CAUSE endometriosis. My doc used to have his research on his website that linked lyme to endo via biopsies. But it is no longer there----hmmmmmm.....
Anyhow---NOT saying you have endo--just that so much can go wrong with lyme. You should establish a close and honest relationship with a very very good GYN that will take the the time to listen to you and PAY Attention to your situation and MAYBE even read stuff you bring in or research on their own.
I would start with a good office visit and intravaginal ultrasound as well as some basic blood work if you havent had any done recently.
Advil goes a long way, but it may not be enough---I know women on morhpine and phenitnyl patches and that is not enough combined!
a good heating pad and a long hot bath can do wonders too. Also foot rubs and calf rubs really help with pelvic pain! best to you, pm me for more info- trails
Posted by Geneal (Member # 10375) on :
Thank you so much for the information and for replying. Instead of coming back next time as a man, I want to come back as one of my dogs!!!! No job, no worries, no bills, no husband..... Thanks again.
Geneal
Posted by Carol in PA (Member # 5338) on :
After doing some reading, I wonder if painful menstrual periods and passing clots might be due to hypercoagulation. Hypercoagulation is common among Lyme patients.
Yes, Lyme upsets the balance of the HPA axis (hypothalmus, pituitary, and adrenal glands.) The pituitary gland influences our reproductive hormones.
When reading The Rhodiola Revolution, I found that researchers think that Rhodiola can modulate the HPA axis.
When I began taking Rhodiola, my periods became regular again.
quote:Originally posted by Carol in PA: After doing some reading, I wonder if painful menstrual periods and passing clots might be due to hypercoagulation. Hypercoagulation is common among Lyme patients.
Sure, I would buy that!
Posted by siggy (Member # 8654) on :
When I started on my very down-hill time, starting to suspect Lyme, my periods also became very painful.
Now that I am improving with abx my pain during my period is easing up. It is a very good and welcoming sign that I am getting better.
I would come back as a cat in my next life; no worries, on top of the world, fighting with the neighbor-cat a bit: just plain fun. Posted by Robin123 (Member # 9197) on :
Hi -- I'm currently drinking mangosteen juice around the clock(every 2-3 hours)for my Lyme symptomz. I read that the juice can help reduce menstrual pain. It's available at healthfood stores; also through a multilevel market company. If you try it, start by drinking a little amount along with a lot of water, since it can detox you.
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