Hi everyone Please let me start by saying thank you to everyone who replied to my post on Saturday. TinCup, I haven't forgoten you, its just been a crazy very tiring week here and I will be emailing you shortly.
I wanted to know if anyone has complete body spasms all the time and if so does your LLMD tell where they are coming from and why?
I went to an esophageal specialist here in SC at MUSC. I've had swallowing problems for the last 4 yrs but it's gotten very bad in the last yr and I dropped from 105 pds to 83 pds.
Anyway, this doctor is leaning towards a diagnosis of Achlasia. Meaning, the muscles in my esophagus don't work in rhythem anymore. They fire off whenever they want and spasm ALL the time UNLESS, I take ativan which besides being a great anxiety pill it's an awesome muscle relaxer. Treatment for Achlasia is mostly surgeries and long term outcome is NOT good.
But you see I've also been on Ativan for the last year because I can't sleep at night due to once again, SPASMS.. Only this time all over my body. Just as my body settles down to sleep some part of me spasms and wakes me up. Some nites my body has jerked so hard that it's lifted me off the mattress and snapped my neck to the point I thought I had broke my neck. Since taking, the ativan? ALL of this is gone. If I try and go to sleep without taking it? It ALL comes right back.
Now the last month or so I notice when I am writting a letter to a friend of mine, we write letters each week (smail mail) a few times durring the letter writing my eyeballs almost feel like they jump up and down and I have to shake my head because I can't see. It only lasts for a few seconds but this has been going on for almost a month now...
I am thinking that my swallowing problem is ALL spasms and thats why my swallowing goes back to normal when I take the ativan and sleep. ( all the muscles relax) What I used to think was Indigestion and GERD I now believe to be SPASMS..
Im sorry this is so long but Im wondering if anyone else has problems with massive body spasming?
Thanks so much for taking the time to read. Robyn
Posted by polar blast (Member # 9142) on :
that happened to me when i was acute..are you on meds..do you have a co infection?i was sleeping and jerked right off the bed..this has not happened in years so doxy took care of that in the begining...hope all is well...
eric
Posted by MrG (Member # 10254) on :
Yes I had full body spasms. Had one a couple of days ago. But some years back this would happen to me hundreds of times. It would scare the hell out my wife. Also had the swallowing problem for quite some time. But that isn't too bad now.
Pat Sr
Posted by Jill E. (Member # 9121) on :
Yes, I have the major body spasms, myoclonic jerking, practically levitate from the bed!
I've been in Lyme treatment two years, this seems to be coinciding more with Bartonella but it's hard to know.
Jill
Posted by spookydew (Member # 8432) on :
Hey,
I used to have severe muscle spasms frequently when I went to bed at night. During day muscles hurt but was easier to ignore it.
My toes,legs, arms, butt, fingers, neck, and face/jaws hurt. Mostly rhythmic and contractile. I noticed that certain foods and chemicals caused it.
I stayed away from red and blue enteric coated meds,dyed cereals and drinks.
I used a hot water bottle and put directly under my lower spine in straight up and down line with my spine. The spasms went away within the hour and I always fell asleep.
They went away even if I didn't feel any spasms in my lower spine at that time.
I think it's a symptom of chemical sensitivity and the hot water bottle reaches all my muscles by way of the central nervous system.
Now, I only have spasms if I'm subjected to someone's perfume.