Patients to Protest Lyme Disease Guidelines at Westchester Medical Center
Thursday November 30, 9:21 am ET
VALHALLA, N.Y.--(BUSINESS WIRE)--Hundreds of patients from throughout the country will rally outside Westchester Medical Center/NY Medical College in Valhalla, NY, from 12pm to 3pm today, to protest the latest Infectious Diseases Society of America (IDSA) guidelines for Lyme disease.
Organizers chose the venue because it is the workplace of three of the IDSA committee members, including guideline chair Dr. Gary Wormser.
Featured speakers include New York officials: U.S. Representative Nita Lowey (NY-18), Assemblyman Joel Miller, and Jim Martorano, Deputy Supervisor of Yorktown Heights.
Dr. Joseph Burrascano, world renowned East Hampton, NY Lyme expert who is vice president of the International Lyme and Associated Diseases Society (ILADS), and Pat Smith, president of the national Lyme Disease Association (LDA), will also speak.
"It is time to nationally address this travesty masquerading as the best science has to offer - the range of ticks is increasing, reported Lyme disease case numbers are on the rise, and it is evident that quite a number of patients develop chronic disease after failing a short course of treatment or after having a delayed diagnosis and treatment," states Pat Smith.
"We know testing is highly unreliable, missing up to 50 percent of the cases, and a bull's eye rash occurs in only half the patients.
Yet we have guidelines recommending that doctors be deprived of their clinical discretion in diagnosing and treating patients and that they diagnose only with a bull's eye or a positive test," Smith adds.
"The final outrage is the guidelines' failure to recommend any treatment for chronic Lyme disease, leaving patients suffering a disability equal to that of congestive heart failure."
Earlier this month, Connecticut Attorney General Richard Blumenthal launched an investigation into whether the IDSA violated antitrust laws in setting the new guidelines for treating Lyme disease.
Lyme, the most common vector-borne disease in the United States, is caused by the bite of a bacteria-infected tick. Lyme disease has been reported in 49 states.
In 2005, more than 23,300 Lyme cases were reported by the Centers for Disease Control and Prevention, which estimates a 10% reporting rate, meaning about 233,000 Americans contracted Lyme in 2005. With global warming, ticks continue to be active over the winter, and experts predict 2006 may surpass 2005 for reported Lyme cases. Symptoms of Lyme vary for each individual patient, but may include fever, chills, headache, backaches, fatigue, and a rash.
OH, this second one you posted is NOT good at all. In the sidebar they post a link to the IDSA guidelines and to the IDSA supposed Fact sheet about Lyme Here:
It would have been nice if they could have posted the LDA website or ILADS!!
Posted by Areneli (Member # 6740) on :
Oh, why don't you write them and ask to replace with ILADS?
Posted by bigmamma (Member # 7181) on :
I did. Posted by dontlikeliver (Member # 4749) on :
PLEASE CALL ABC NEWS ON 212.456.3100 AND ASK THAT THEY LIST THE ILADS GUIDELINES, AT LEAST AS WELL....
I ALSO CALLED THEM NOW AND TOLD THEM HOW I FELT.
Posted by Areneli (Member # 6740) on :
The bad link do IDSA is now gone.
Writting letters works sometimes Posted by dontlikeliver (Member # 4749) on :
see next one
Posted by dontlikeliver (Member # 4749) on :
Found it, and the IDSA link is still there when you click on Lyme Disease fact sheet...
I tried writing to them again, and it doesn't want to go through...but I was trying to politely explain that the way they feature that story now with the IDSA guidelines as the fact sheet, is kind of like doing a report on the horrors of racism and posting a link to the KKK for facts....
Posted by Areneli (Member # 6740) on :
**** I was trying to politely explain that the way they feature that story now with the IDSA guidelines as the fact sheet, is kind of like doing a report on the horrors of racism and posting a link to the KKK for facts....*****
LOL
I am not going to write after dontlikeliver; it should work.
Posted by tdtid (Member # 10276) on :
Areneli,
Great comparison. I love it!!!!!!
Cathy
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by dontlikeliver: I tried writing to them again, and it doesn't want to go through...but I was trying to politely explain that the way they feature that story now with the IDSA guidelines as the fact sheet, is kind of like doing a report on the horrors of racism and posting a link to the KKK for facts....
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