I am doing perty good- It has taken about 30 months of good treatment-
I have Lyme and babs 20 yrs-- I was real sick-Jay--
Posted by Andie333 (Member # 7370) on :
Hey, Rob!
I'm definitely a LOT better than I was when I started taking antibiotics in June 2005.
At that point, I would have ranked my overall health at about an 18. Now, I'm somewhere between 75 and 80% -- able to socialize again, to work in pretty stressful situations. I'm still missing some of my cognitive skills; I continue to get overwhelmed at times in crowds. I'm walking and about to start working with a trainer, but I can't seem to walk more than about a mile.
All that god-awful, horrible exhaustion has lifted.
I am sure the antibiotics are really working. In addition, I credit essential oils, acupuncture and Chinese herbs.
Andie
Posted by Cobweb (Member # 10053) on :
current treatment??? You ought to read the thread on vibrational remedies. Posted by Dave6002 (Member # 9064) on :
I've got a leap of improvement recently on simple medications: garlic juice, Tini, Mino and Chlorella.
I am working full time on a stressfull position and function normally.
I hope the complete recovery is not far away.
Dave
Posted by NatalieA (Member # 7714) on :
Hi- well finally since July of 05, then Feb of O6, I seem to be doing better on a combination of Plaquenil and Doxy I just started in November ( even better than the IV therapy I was on for 6 months.) But now I am having a lot of other problems with my blood disorder which has me back on 60 mg of Prednisone-which now I seem to be slipping back a little lyme-wise the last few weeks. I don't know if it's medication related or not. But still better than I was Feb through October. Natalie
Posted by Lisianthus (Member # 6631) on :
I'm doing alot better too with abx.
BTW- Rob I loved your site! Beautiful photography! You know there is a site for artists with lyme..... (Lyme_Artist) its a yahoo group. I belong to it, but not much activity over there though.
Good luck on your endevors, Lisi
Posted by 5dana8 (Member # 7935) on :
In parcial remission right now & very happy about it. Have a ways to go but am content with my current progress.
3 years of treatments with abx & 6-7 months of rife.
Rife & supps seems to be holding the diease in check for now. Knock on wood.
Sorry I couldn't accesss your site Rob. I guess I need the flash 6 plugin?
good luck to you thanks for your recents words of encouragement
Blessings, Dana
Posted by Vermont_Lymie (Member # 9780) on :
Am much better after five months of antibiotics, but still have quite a long ways to go!
I do not understand why any doctor would seek to restrict people to one month of antibiotics for lyme disease. That seems like it should be criminal.
Posted by AZURE WISH (Member # 804) on :
Hi Rob,
Did you take the photos?
The link to the lyme artist group is in my signature if ya want to check it out.
There isnt much activity cuz most of us are so sick...
its hard to finish stuff sick.
People have posted some paintings some photos a couple drawings and i have a few poems posted
Treatment is helping me. I am much better than I was and feel more me than I have in years. But I am still disabled....
and I am no where near being able to work... alot of days I am to sick to drive anywhere... Somedays I can't do much at all...
that probaly sounds bad to you but trust me it was MUCH MUCH worse.
but babysteps right Posted by Aniek (Member # 5374) on :
I'm not doing too great lately, but I don't blame that on treatment. I actually had been doing wonderfully until a year ago.
I blame my backslide on having to step back from treatment and stopping abx for a few months. I haven't been able to regain ground.
Posted by AZURE WISH (Member # 804) on :
MRB -
dont get to frustrated six weeks isnt really that long.
the first long term abx I had was rocephin and I didnt start improving until the seventh week at all.
Hang in there.
By the way just in case you didnt know. Many people who do rocephin have gallbladder problems (it causes stones)
I am one of the many on here who lost ther gallbladder due to rocephin.
Just thought you should know. I am not saying rocephin is bad ... or dont do it if ur dr thinks you should...
I just know that all drs dont inform their patients of the risk and thought you should be informed.
Posted by Boomerang (Member # 7979) on :
My husband is doing better.....still aways to go. I keep hoping each week will be the week that puts him on the final road to recovery. He's been on ABX since Oct-05. Currently on zith with pulses of flagyl.
I think his herx reactions are better, but the flagyl still does quite a number on him...even with tiny doses.
Take care all.
Posted by tailz (Member # 10014) on :
I'm on Rocephin because all my coinfections are still negative, and I'm only testing positive for Lyme. I literally felt infected fluid draining from my brain when we first started the Rocephin, but since we had to stop for 3 weeks while my liver enzymes came down, I don't feel so improved since we restarted. In fact, I'd swear I feel worse now. My hair started falling out and everything again.
I was so sure something else was going on (and I'm still not convinced some of these others won't come back positive in the future) that I bugged my doc to run blood cultures.
Now this is IMPORTANT. I'm convinced the cultures actually grew something this time because I took MASS amounts of Vitamin C crystals a few days prior to the test. Guess what it grew?
Staph. And it gets better - now there is staph growing in both the aerobic and anaerobic bottles. He was talking the other day like it was a false positive contamination. I called him on it.
Tomorrow I get an echocardiogram to see if my heart is damaged. But seriously, if you aren't improving, take lots of Vitamin C (6,666% at least!), and then hit your doctor up for some blood cultures. You can't heal if you are harboring staph.
Posted by liz28 (Member # 4946) on :
I've been symptom-free for two co-infections for over six months.
After the last one was finally cured, my Lyme started going through the classic pattern of monthly relapse cycles that got milder and milder.
I try to do aerobics or yoga every day, and every day experience a little Lyme relapse. But they are steadily less distracting. The real problem now is getting back into shape--my energy levels are very low--and unlearning "learned helplessness" to get back into a normal routine.
Posted by JeffM (Member # 8919) on :
Better.
Long haul.
Only a third of the way there.
My third PICC line in 4 months.
We are blessed that ILADS exists.
Posted by Michelle M (Member # 7200) on :
Hiya Rob.
Great photos! I'm glad to see you nurturing your creativity. Everything helps! Please check out my website too:
I am 1.5 years into treatment, currently doing a second go-round at babesia WA-1 and taking Minocycline at 300mg a day. The headaches have already started to back off (whew). The mino has been kicking my my butt, however. Falling asleep upright multiple times a day, a little dizzy and drunk-feeling.
Still, compared to when I started, WAAAY better. Head used to hurt so intensely it would wake me, I could only hold it and rock, could not even move my eyes.
I agree with Jeff M. I'm thankful for ILADS and our brave doctors!
Michelle
Posted by lucy96734 (Member # 8372) on :
I was sick for 5 years before finding out I had Lyme.
I started treatment for Lyme nearly a year ago and also threw in 7 months of Babs treatment.
I am now off all pain meds (after 5 years of daily narcotics for pain) and all but the antiseizure meds for neuropathy.
I still have monthly increases in Lyme symptoms but they are less intense. I would say that I am 90% better in about a year of different oral abx.
Posted by cantgiveupyet (Member # 8165) on :
I get sicker with each abx pill i take....due to yeast.
Taking a step back from lyme and seeing what else I may have going on with me.
In severe bladder pain today due to my latest treatment and the dr isnt sure what is going on with me.....
Posted by mag (Member # 8920) on :
boston lyme nice pix i passed on the insects!
positive for babesia and lyme
today is a bad lyme day really would prefer to be in heaven
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