Hello everyone and Happy Holidays. Hope all of you have a safe, happy, and healthy holiday season.
I've been making good progress. My LLMD has been weaning me off ABX, and I'm happy to report I've been off the last 4 months, and only had a flare-up just this week.
My LLMD says to not get down about the flare-up, as we're making good progress and this is unchartered territory for me. The prescription is 2 weeks of antibiotic regimen - zithro and tindamax.
I woke up this morning feeling achey in different places, and one of the places is my neck. My question is this - people talk all the time how it can be a very bad sign to have pain there - meningitis, etc. How do you guys/gals know as lyme sufferers when the neck pain is the sign of something serious or when it's just normal lyme acheyness?
Thanks again....my thoughts are with you all.
Marc
Posted by heathnicole (Member # 9313) on :
Hi Marc-
I am sorry that I can't be of more help but I also have really bad neck pain. I think that out of all of my joint pain my neck is the worst
I think I remember a naturopath telling my that lyme is stored up in the neck area. .. if that makes any sense.
I am sorry I am not of more help Just know that I feel for you too
God bless, Heather
Posted by MrG (Member # 10254) on :
I believe to that this is lyme related. But you should also know lyme reuptakes your glutamate levels. Too much glutamate is neurotoxic & one of the main spots it hits is the neck...believe me I know.
I have seen countless number of people when they reduce especially 'free glutamate', they're neck pain goes away.
Pat Sr
Posted by geniveve (Member # 8646) on :
i never know if it's lyme or not since i have bulges throughout the cervical area from c1-2 down to c6-7.
i've heard bulges can be worse than ruptures and just as painful......yep, it's true......
right now my neck is killing me, it's so dang hot all the time.
Posted by lymie tony z (Member # 5130) on :
Whata ya say there skimp!?
Yes. There is always a possibility of meningitis or encephalitis...however...
The stiff neck pain...should be accompanied by a headache kinda down the right or left side of your head...depending which side of your neck is stiff...and painful.
I experience this symptom regularly on or off abx about every three months or so durring my monthly flare-ups.
Initially I knew it to be the start of neurolyme/cns infection and may very well be still connected to that or residual nerve/joint damage.
I personally have had neck trauma from a motorcycle accident in 82...and given that Bb likes to invade previously traumatized parts of the body...
this may just be an exacerbation of my injuries.
Warning....Dr C has a reputation of dropping patients that don't get better on his protocol...
The tinidazole and zith should help...as I am doing same at this point...
Give me a call....but not today...like tonight about 8pm....zman
Posted by SayYesh (Member # 8343) on :
MrG, how do you reduce free glutamate?
I'm very interested to know, as I have been slowly getting better, but this is my last remaining biggy symptom, neck pain, stiffness, crackliness.
Posted by MrG (Member # 10254) on :
SayYesh...here's a couple of lists to get you started.
Here's a post by Carol H. She's the owner of msgtruth.com. She lives in my state of NJ. Btw...she is one of the people responsible for ending my seizures. Here's the post:
By Carol H on Sunday, March 28, 2004
I thought this would be helpful since we are often asked which foods are high in glutamate naturally and which aren't. Now we must distinguish between bound and free. Foods high in bound glutamate are not a problem UNLESS they are cooked long and processed. Foods high in free glutamate before cooking should be eaten with caution. Here's the list, in mg/100 g
Natural Glutamate Content of Foods
Bound Glutamate - Free Glutamate (mg/100 g)
MILK/DAIRY PRODUCTS
Cow's 819 - 2
Human 229 - 22
Parmesan Cheese 9,847 - 1,200
POULTRY PRODUCTS
Eggs 1,583 - 23
Chicken 3,309 - 44
Duck 3,636 - 69
MEAT
Beef 2,846 - 33
Pork 2,325 - 23
FISH
Cod 2,101 - 9
Mackerel 2,382 - 36
Salmon 2,216 - 20
VEGETABLES
Peas 5,583 - 200
Corn 1,765 - 130
Beets 256 - 30
Carrots 218 - 33
Onions 208 - 18
Spinach 289 - 39
Tomatoes 238 - 140
Green Peppers 120 - 32
Here is another list. The numbers represent the percentage of free amino acid to total free amino acids present:
First number is aspartic acid, next is glutamic acid:
peanuts 2.1 25.5
almond
pecan 19.8 18.6
broccoli 8.4 14.5
green bean 4.5 2.1
kale 2.6 8.3
spinach 4.5 22.5
cauliflower 35.7 16.1
potato 3.2 4.3
crisping potato 2.0 4.0
processed cassava 0.9 2.5
asparagus 5.0 11.2
milled rice 19.0 34.8
rye 5.9 16.8
w heat 22.9 15.5
malt 6.4 15.6
blackcurrant 1.9 19.6
navel orange 8.9 3.9
lemon 24.7 13.0
tomato 11.6 34.2
banana 10.6 6.2
pineapple 9.1 2.8
strawberry 2.7 7.4
cantaloupe 22.3 8.7
apple juice 15.6 3.9
grape juice 2.3 3.6
pineapple juice 4.1 4.7
perry pear juice 10.0 10.0
green arabica coffee 11.5 25.3
green robusta coffee 10.7 12.5
red wine 4.5 16.2
pork 0.3 2.0
chicken 2.8 10.5
beef 1.1 27.7
cheese (Cheddar) 1.9 18.5
This explains that the common cry that human milk contains more FREE glutamate than cow's milk is essentially true, but that cow's milk contains nearly 4 times the actual glutamate - so if liberated it would have substantially MORE free glutamate than human milk. It shows why parmesan cheese is so high in free glutamate. Keep in mind, foods high in protein, like meat for instance, would have more free glutamate than foods low in overall protein, like milled rice. Also keep in mind foods containing vitamin C help protect against glutamate, but not if you destroy the Vit C in cooking. (Hope I didn't confuse everyone too much)
Posted by lymie tony z (Member # 5130) on :
OH well heck no!
this must be why when I juice up Kale,parsley,tomatoes,cabbage,beets,broccoli,and garlic...I feel so good...
And when I eat spaghetti with parmesean cheese all over it I feel like a meatball....
Am I right!??
zman
Posted by minimonkey (Member # 8693) on :
Skimp --
Lyme meningitis is pretty hard to mistake -- it isn't like the normal neck stiffness/headache that go with lyme --
Lyme meningitis, in my experience, is a stiff neck that precludes turning one's head at all, plus the feeling that an axe is splitting one's skull in two -- lots and lots of head pressure, pain far exceeding the worst migraine one can imagine, plus chills, vomiting, nausea, dizziness, disorientation... sometimes fever, too, though I rarely run a fever with it. I also tend to get a burning sensation down the back of my neck and spine, plus the back of my head feels like it was clubbed with a baseball bat -- very sore to the touch. I've had this several times now. Lays me flat for days, literally, every time.
The plain ol' stiff neck/headache/migraine is far less severe -- though I do get the back of the head soreness with that, too.
Posted by lymie tony z (Member # 5130) on :
Sayesh and MrG...
It's considered somewhat RUDE to hijack anothers post...
How about apologizing to skimpbiz and deleting your entries and post yer own discussion!
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