sorry to keep making posts like this but, just wondering if there have been any new breakthroughs or anything expected.
it always seems like that lyme research facility is always just this close to opening, and no new research elsewhere seems to be surfacing. is there anything particularly showing promise. more assuredly helpful drug ideas from studies? development of new tests for possible standardization? better political and public recognition, and legal and financial backing?
i am on mino + flagyl but am barely remebering to take my own pills. my brain is definately... changing. but i can't say that it's going to any better a place. i felt different outside with my dad, but as usual, and i was prolly even worse this time could not co-ordinate my interactions and memory to get anything done. i feel very lucky most of the things i say i my head aren't getting out, but god, that is a severe worry...
unless i was taking something that would assuredly help a neurolyme case quickly, i don't have the competence to get better, and this is a huge problem.
Posted by char (Member # 8315) on :
Hi,
Sorry that it has been so hard for you.
How long have you been taking antibiotics?
Char
Posted by gopats (Member # 5218) on :
How long have you been taking the antibiotics - have you tried others? Maybe it is worse for you because they are working - possible herx?
Hang in there. I was so bad a one point I had not idea what day or month it was but I've been able to hold a regular job for the last year and a 1/2 - something I couldn't even think of before.
Posted by bv (Member # 9578) on :
I have neuro lyme. Had constant dizziness, burning skin, muscle twitches, lot of sensitivity to noise, floaters in my eyes.
Been on doxy & alinia for 3 months. Before that was on doxy & flaygl for 6 months. Dizziness went away about 4 months ago. Sound sensitivity went away 2 months ago. Other symptoms have started to fade somewhat.
Hang in there. It takes time to root out this bug. The abx will work. Good Luck.
Posted by Travlr1 (Member # 9681) on :
danielb,
Have you tried Rocephin IV. It was the only abx. to help my neuro lyme until I hypersensitized to it.
Hope you get well
Travlr1
Posted by danielb (Member # 8522) on :
sorry did not remember my thread. thanks for responses. gave up on abx, could not remember to take them. will try again later date. now trying namenda (aka ebixa, memantine) that may help cognition and ability to do. very desperate for something to help. not to optimistic at this point.
Posted by CaliforniaLyme (Member # 7136) on :
Those HUGE plastic pill boxes with pills for am noon etc can be super helpful with remembering and forgetting re meds!!!! You can put in for the whole week and then it is easy to see if you have forgotten!!! Take care- Sarah
Posted by Lauren M. (Member # 10868) on :
Hi Daniel,
I also have a big pill box with my meds divided up, and an alarm clock that goes off when I need to take my meds. I have to take so many I'd surely forget them if I didn't do this.
![[bow]](graemlins/bow.gif)
It was the only abx. to help my neuro lyme until I hypersensitized to it.![[Cool]](cool.gif)