This is topic I think it's Lyme in forum Medical Questions at LymeNet Flash.


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Posted by shepbud (Member # 11036) on :
 
New to this board....
Trying to figure out how to post!!!!
Had a tick on my sweater that was draped over my shoulder in July 2004 while sitting at my desk at work. A co-worker pulled the sweater off, showed me the tick and shook the sweater. I became seriously ill after a few days and haven't been right since..........Long story..............
Before that day I was a healthy 48 yr old who went once a year for a physical. I could run circles around my kids. Labcorp tested neg 3X since then.
Tried to get the numbers related to the blood test from Labcorp (report says neg only-no bands)
They tell me I have to get them from the doctor
 
Posted by bettyg (Member # 6147) on :
 
welcome bud to board!

i'll send you a pm, private message, with my newbie links/advise right afte this ok.

please post in SEEKING DR. and show your STATE AND NEAREST LARGE CITY where you're looking for a good lyme literate md, LLMD.

you need to be teste for lyme only at these 3 top quality tick/lyme labs in usa:

igenex, calif.
md labs, new jersey
bowen labs, florida

my personal favorite is igenex where they send your md the paper copy that breaks down ALL 16 PROTEIN bands into: positie, negative, and underdetermine...they see something but can't tell for sure!

glad you found us; we'll teach you a lot as well as provide SUPPORT when you need it. [Big Grin]
 
Posted by Lymetoo (Member # 743) on :
 
I agree with the labs bettyg gave you in her post. None others will give you an accurate assessment of what is happening in your body.

The best in my opinion is Igenex. www.igenex.com

Get the test done early in the week so that the blood does not sit in the post office over the weekend.

Your PCP can run this test if he/she is willing. Not willing??? Find another dr. Better yet, find an LLMD.....an MD who is Lyme Literate.

You can post in Seeking a Doctor if you need one.

What kind of symptoms are you having??

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

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Posted by CaliforniaLyme (Member # 7136) on :
 
I don't tend to agree with any labs since so much of Lyme is sronegative and so much of Babesiosis and Ehrclihiosis and Bartonella too*)*!)!

But hey- W E L C O M E ! ! ! ! ! !*)!*)!*)!
 
Posted by shepbud (Member # 11036) on :
 
quote:
Originally posted by Lymetoo:
I agree with the labs bettyg gave you in her post. None others will give you an accurate assessment of what is happening in your body.

The best in my opinion is Igenex. www.igenex.com

Get the test done early in the week so that the blood does not sit in the post office over the weekend.

Your PCP can run this test if he/she is willing. Not willing??? Find another dr. Better yet, find an LLMD.....an MD who is Lyme Literate.

You can post in Seeking a Doctor if you need one.

What kind of symptoms are you having??

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

 -

Symptoms started a few days after the tick incident. Right arm and neck swollen with a red rash. I felt horrible from that moment on....
Severe heartburn and constipation fatigue, lethargic, and dizzy to the point of passing out. My face felt as if it were burning, I couldn't hold my neck up. It felt as though my head would snap off. My ribs and the sternum bone hurt SO BAD!!! I was afraid to go to sleep at night because the symptoms were much worse at nighttime. I could not lie on my right side because of the arm. It would have a weird throbbing sensation and then my whole body would feel "sick".......This all started in July of 2004........In August of 2004 I developed a hive like rash all over my body. It wasn't the blister like type of rash but more of a petechiae type with red bumps. Many other odd things happened along the way. Neuro dx a severe vitamin B deficiency. (below 100) The shots made me feel worse!!! My stomach is all messed up. Intermittent diarrhea and constipation. Gastro dx gastritis. Sent to endo to dx thyroid nodules!!! Thank God still benign. I swear to God I could feel those things forming in my body!!! In Jan 2005 had a Mammo...all clear!!! Few months later while having a chest x ray they saw calcifications..so back for another mammo. Had surgery...dx LCIS (Lobular Carcinoma in situ)
I have a mole on the right side of my cheek that I was born with. I started to get nervous at some point thinking it turned cancerous and spread down my right arm!!! I go twice a year to have it checked by different doctors. No one will take it off!!! They say it's OK. Then I began having mouth problems. Perio problems and now mouth sores with strange salt taste in mouth!! I have a super tiny pearl like pimple on my palate that formed. The dentists (4 different ones, along with 3 ENT's) tell me it's OK. A blocked salivary gland. It has been almost 3 yrs and it's still there!!!
My feet and knees hurt. The right knee and the right side of the ankle in particular have what looks like a sack like swelling on the right side of the bone. The heels and ball of both feet hurt when I get up in the morning. I would get rashes on both ankles and the top part of the foot. The odd discoloration that is on my arm is also on my right foot. It looks worse when I feel "sick".
My daughter in law was visiting last night and said to me, "What's wrong with your arm?" It is very noticeable to everyone except my doctors. The strange blotchiness and scratch like marks and these pimply looking things. (real tiny) This extends from my right hand to the back of my ear, including the right shoulder area.
I work in a call center and and sit at my desk 7.5 hrs a day taking approx 100 calls a day. The arm motions aggravate the condition. I have always been a well liked employee who received the best performance ratings in the office. i would carry over almost all alloted sick time as well as vacation time. The past few yrs have put a strain on my relationship with management. They were very concerned at first, but with no dx, they are losing their patience with me. I sit quietly at my desk and try not to complain. Thyroid levels appear normal, but yet I'm freezing at work, most times sitting with my coat and a blanket on. My daughter and a few other family member work for the same division, so I don't want to cause waves.......I don't want my husband or anyone else to see how upset I am for fear that they will rock the boat.
I don't know if I have Lyme, but when I couldn't get an answer from the docs, I googled my symptoms and this is where I wound up.
God help us!! I have never felt so alone in all of my life!! I just keep thinking this can't be old age. I push myself to eat better, excercise, and stop smoking. Feel better for a while....then it starts all over again.
Thank you for listening to me....
 
Posted by shepbud (Member # 11036) on :
 
Strep in urine. I forgot to mention.......
Felt fine all day....all of a sudden severe pain when urinating. Bloody mucous sent me to the docs. dx...step in urine. Gave me Cipro. Felt fine...all clear in a week, thank God did not return.....
 


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