After 20 years of illness, I was just put on ceftriaxone IV. After 6 weeks of treatment, I felt great, better than I have in years. Almost all symtoms went away.
A few days after being off the med, I felt horrible again. My question is, how long can someone stay on ceftriaxone IV? Does anyone stay on it for very long periods of time (or indefinitely?) Thanks...
Posted by Patrick (Member # 8108) on :
I have been on IV Rocephin twice during my treatment. The first time for 12 weeks at 2mg a day. Like you I felt better than I had in years when treatment was stopped.
Unfortunatley I relapsed about 4 months later and was put back on IV this time 4mg a day for 10 weeks. The second time around I didn't have as far to recover so the gains were not as dramatic. I also lost my gall bladder due to the Rocephin but it was a small price to pay to feel so much better.
So to answer your question you can be on it longer than 6 weeks and in your case since you've had Lyme so long its going to take longer to get at all thier hidding places. I know of people who have been on IV Rocephin for as long as 6 months. But be prepared that its really hard on the gall bladder.
Good luck
Patrick
Posted by rubyart (Member # 11256) on :
Thanks for the info. Wow, 6 months! I can't imagine feeling healthy for 6 months. That would be ideal.
Do you think the Rocephin cured you after the second treatment? Well, not cured you but made permanent positive changes?
Posted by rubyart (Member # 11256) on :
Thanks for the info. Wow, 6 months! I can't imagine feeling healthy for 6 months. That would be ideal.
Do you think the Rocephin cured you after the second treatment? Well, not cured you but made permanent positive changes?
Posted by Patrick (Member # 8108) on :
I think the second round helped a great deal with the Lyme symptoms but I still felt bad. That's when the co-infections the Lyme was hiding showed up which I'm still treating. Like you I keep hoping one day I'll look back and this will be a bad memory but I'm not there yet.
Patrick
Posted by timaca (Member # 6911) on :
I was on IV rocephin for 6 1/2 months. Also oral doxy.
I made huge improvements on the rocephin. I was very ill before starting it.
3 weeks after stopping the antibiotics, I relapsed. Due to 11 months of C. diff, I am only on bicillin LA which has not been as good as the rocephin/doxy combination.
Timaca
Posted by CaliforniaLyme (Member # 7136) on :
You need to transition on to orals not just go cold turkey on the abx-!!!!!!!!!! I was on IV 9 months and know peopple wh o have been on 2 years- but you sound like you would have been fine to go off on to strong orals to maintain you- IV has risks- anywayz- glad it worked and it usually does again if it did before!!!! Take care-